womens hair loss

Hair Loss at The Age of 20 – Veronica’s Hair Loss Story

by Y on October 11, 2007

Hair Loss At The Age Of 20 - Veronica's Hair Loss StoryWow, I’m so happy I just found this site…I’m 20 years old, have had been genetic hair loss for four years now. About 2 years ago I had a biopsy done and my derm told me it was probably genetic, he put me on Rogaine, Spiro and Yasmin. I was on those meds for about a year… and they did absolutely nothing. Last year in the fall my hair loss was getting really bad and I was getting so desperate for something, so I spent over $1000 on getting Invisible Hair extensions. I was assured by so many people that they would be safe, and definitely the perfect solution. The extensions were great! I loved having so much hair and planned on having the extensions put back in. Well when I got them removed for the first time I was SO devastated, more than half of my already thin hair was gone.

Its been since January now since I’ve had them out and I feel like I’ve hit the bottom. I’m in college and can’t concentrate on anything. I’m always way too focused on everyone else’s hair and I feel like I’ll never feel normal again…I haven’t been able to wear my hair down since I got the extensions taken out. My poor hair is
still falling out like crazy… it’s so thin I can’t even wear it in a ponytail, I feel like I will be bald soon.

I’m so scared, nobody seems to understand. My best friend and my family just tells me to cope with it like its no big deal. I feel like I have no where to turn. That’s why I was so glad I found this forum…I really sometimes feel like I’m the only one experiencing this and it’s comforting to hear everyone’s story. I’m not sure what to do with myself, I hate going out, even going to school because I just feel so ashamed…I don’t even know where to start looking for a wig around here (I’m from Portland, OR). And I feel like seeing another doctor would also be pointless. Anyways, Thanks a lot for listening to my story.

~Veronica

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Dear Veronica,

Thank you for writing and sharing your story, I’m so sorry you are having to go through this. It probably is of mild comfort, but know you definitely are not alone and there are A LOT of women who start to lose their hair at young age. Who knew? I definitely didn’t until I started going through it. Here comes my usual disclaimer I provide on every question I respond to. I am not a doctor and cannot provide medical advice or treatment, this is just my opinion. Ok…

After reading your story I have so many questions. Did your dermatologist put you on Rogaine, Spiro and Yasmin all at the same time? You said you are 20 and have been experiencing hair loss for 4 years, so you started losing your hair at 16 and saw your doctor at 18. Did he provide any explanation as to what might have trigged your hair loss at such a young age? You stated that after a year the medications did nothing, but you didn’t say whether or not you stayed on them or took yourself off. I’m curious because if you took yourself off after a year and the following year noticed a rapid decline in your hair, then perhaps the drugs were doing more than you thought. Sometimes all the drugs can do is slow the hair loss process down and help you maintain the hair you have,. Not all women experience a phenomenal regrowth after treatment. Even after I started treatment, I never regained the hair I had and was pretty convinced the treatments weren’t working so I eventually took myself off of aldactone around 2003… I think. The dates get fuzzy. Anyways, my hair loss increased dramatically. That could have just been from getting off the drug and it may have re-stablized eventually, but that scared me enough to get back on. Not only did I get back on aldactone, but when I got back on, I had my dose increased from 100mg to 200mg a day.

If you would have asked me then about my hair, I would have complained about the hair I once had and that it was so thin and continuing to fall out. But looking back it was doing fairly well after the 200mg increase. [click to continue…]

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Know Of a Great Women’s Hair Loss Doctor? Fave Them!

by Y on October 10, 2007

Know Of A Great Women's Hair Loss Doctor? Fave Them!I have received numerous emails from women who want to know if I know of any good hair loss doctors in their area. Unfortunately I don’t, but I think there are probably plenty of women who have found doctors they trust and believe are truly helping and listening to them. So I’ve decided to give women the opportunity to recommend their doctor should they wish to do so. I’m calling it “Fave Your Doctor” and you’ll notice I added a little button in the side bar.

What makes a good hair loss doctor? In my opinion I’d start with a doctor that doesn’t dismiss your complaints of hair loss and doesn’t demean the emotional implications it is having on your life. What else? Let’s see, a doctor that routinely treats women’s hair loss and has a lot of experience with the causes and appropriate treatments. A doctor that listens to your concerns about the recommended treatments and answers all your questions, providing you all your feasible options as well as explaining any possible side effect of those options. In my opinion the doctor should definitely order the necessary bloodwork to help diagnosis the cause of your hair loss.

You know when you see a doctor whether or not they are good, and you know when you have the itching urge to run out of the office screaming your head off because you simply can’t be heard. There are a bunch or qualities that make up a good doctor. I place a high importance on a good bedside manner because when you suffer with hair loss you feel so vulnerable and are reaching out for help, I want that vulnerability to be received with care and not with a stern “well it’s just hair loss, it’s not going to kill you.”

How does fave your doctor work?

It’s pretty simple. If you’ve had a good experience with a particular physician and think that he/she would be a great resource to recommend to another woman, please fill out the form here. Or click on this button from the sidebar Fave Your Doctor?Hopefully I’ll be able to compile a good size list of different doctors who treat women’s hair loss located throughout the county and in other countries as well.

I’d like to take it one step further, so in the form I’m asking if you would allow for another woman from our site to contact you via email to learn more about your experience. Either way, your email will not be published, and I completely respect your privacy should you not wish to be contacted. [click to continue…]

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Best Things To Do – The Bald and The Beautiful

by Y on October 7, 2007

Best Things To Do - The Bald and The Beautiful

Accept yourself, let it go and laugh. You’re not “suffering” from baldness. You’re suffering from sadness brought on by your attitude towards being bald.

I first exhibited Alopecia Areata in 1984 at age 10. My hair all grew back by age 14. At age 26 it all fell out again. May 2006 all my body hair fell out and that is where I stand today. (Pretty convenient on my legs and bikini line).

The biggest challenge that I’ve had since first losing my hair is learning to like myself despite my baldness. I still struggle with that sometimes. But learning to laugh at your baldness and allowing others to laugh at it
makes it so much easier to deal with.

If you are bald with no life threatening conditions, count your blessings. Yes, it sucks that I have to draw on eyebrows daily and that my head sweats when I wear a wig, but thank GOD I’m healthy.

So much of your hair loss is driven by your attitude. Choose happiness and choose peace. And don’t worry about hair – you get to sleep in 10 min. more because you don’t have to blow dry or curl it! 🙂

– The Bald and The Beautiful

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Dear The Bald and The Beautiful,

Thank you for writing and sharing your incredibly positive attitude with everyone. Everyday I work on accepting myself because I know with that, I will be able to take back control of my uncontrollable hair loss. It’s very hard, but I’m better than I was before. It’s so important to hear positive stories like yours. What you have achieved is so invaluable, you seem to have reached a place that so many of us strive for… self acceptance.

~Y

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Hair Loss At 20 Years Old, Sarah’s Story

by Y on October 4, 2007

At the age of 20 years old, I decided to go on birth control, so my doctor prescribed me to “Symphasic”. About 3 or 4 months later, I realized that my hair was thinning, I left it for about 6 months.. and then I went to my doctor, and she switched me to a different birth control – Yasmin. I thought it would be the answer, and I would be cured… but I was FOR SURE wrong. The hair loss got worse. Every month I lost a little more. It wasn’t until this past June that I decided to give up birth control all together and hope for the best. My hair loss began to stop a little, until around the middle of September, and that is when it started shedding more, and it continues to October, which is now. I keep hearing that it takes up to 6 months or more for birth control to get out of your system, and I HOPE that I will then grow my hair back, but what these women on the this site have to say is no hope.Does this sound exactly what you women have gone through? I am starting to get scared. I have had blood tests- and apparently there is nothing wrong with me. Should I be hoping that going off birth control was the best thing, and I will grow my hair back? I am so stressed about it, and like other women say… it takes up about 98% of my thoughts every day! I am crazy self conscious and i cant stand it any longer. if you could please write any comments or suggestions, it would be greatly appreciated!Thanks so much
Sarah

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Hi Sarah,

I read your story and I instantly was taken back to 8 years ago since your hair loss began around the same age mine did. I have to point out that I’m not a doctor, but here is my opinion on your situation. Honestly Sarah, I think you have a really really good chance of recovering from this completely, I’ll tell you why. The duration of time you were on the pill wasn’t very long, and also Yasmin is suppose to be a low androgen index birth control pill so I don’t think the damage it would cause would be as severe as say the pill I took, which was Loestrin FE, the highest (or at least was the highest) androgen index pill. I’m not sure about the Synphasic birth control pill because I’ve never heard of it, I tried to Google it and didn’t find much on it, however, on the upside I didn’t find anything good or bad on Synphasic, which I think is a good sign. When you type in the pill name I took “Loestrin” and “androgen index” or “high androgen” you’ll find TONS of stuff that point to women having hair loss problems, a lot of sites explaining it is a high androgen pill etc etc. I don’t even know why they prescribe it to women and I certainly don’t know why they had prescribed it me at 20 years old. I didn’t find anything like that about Synphasic, that’s not to say that the pill wasn’t bad for you, obviously it was, you had hair loss from it, but at least there isn’t an overwhelming about of negative stuff on it. I think that’s a good sign. [click to continue…]

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A Shower In The Dark – One Of My Hair Loss Rituals

by Y on October 2, 2007

A Shower In The Dark - One Of My Hair Loss RitualsLike I mentioned in another past post, one of the things I do when I’m struggling a lot with my hair loss (such as now) and the shedding is so extreme, is that I shower in the dark. I waited yesterday for the night to come so I could shower. I can’t bear to see the hair falling out all over the place and stuck between my hands, it is too much torment for myself. Needless to say I also comb my hair in the dark as well. Quickly combing through what is left my hair, scooping up the pile that fell out, and making a beeline straight for the toilet where I put to rest my fallen hairs. It didn’t overly depress me as it sometimes can, I guess my mind was a little stronger yesterday. That is just how it goes. Some days I’m stronger with my hair loss and others I am so wrought with depression and sadness. I am thankful for the stronger days, I pray for more of those days all the time.

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Endocrinologist or Dermatologist – Which Doctor Should I See For My Hair Loss

by Y on September 30, 2007

Endocrinologist or Dermatologist - Which doctor whould I see for my hair loss?I must first clarify and make it known that I am NOT a doctor and cannot provide medical advice, the following post is merely my opinion based on my own experiences.

In answer to which doctor should I see for my hair loss, my opinion is that you should probably see both. Most doctors don’t know enough about hair loss as it is, so seeing doctors in different specialties may actually help you get a better, more accurate diagnosis. I am sure there are various conditions of hair loss that might be better served by seeing one more than the other. Perhaps a dermatologist would be better suited in determining if the cause was an infectious skin condition such as ringworm or scaring alopecia, and an endocrinologist may be better at diagnosing hormone related hair loss. The truth is, any doctor whether it is an endocrinologist, dermatologist, or general practitioner with a strong interest and knowledge in hair loss can make a proper diagnosis and work with you on the the treatment they think will produce the best results. The operative words here are “interest and knowledge.”

Try and find a doctor that seems to care about women’s hair loss, and understands the emotional devastation it causes. I don’t want my doctor to dismiss my hair loss, and I don’t want him/her to tell me it’s no big deal. It is a big deal and if your doctor makes you feel uncomfortable in any way, they he/she is not for you. If possible try and speak with the doctor by phone (believe it or not some doctors will talk to you on the phone first) and if the rules of the office don’t permit this then try and ask as many questions to the receptionist, such as, does Dr. X see a lot of women for hair loss? Does he order blood work? What does he usually prescribe for treatment? The reality of that last question is that their is no “usual treatment” every woman is different and hopefully the receptionist tells you something to that effect. I don’t want to see a doctor that prescribes Rogaine as his/her first line of defense even before making a proper diagnosis with blood work or any other necessary tests. I firmly believe you should not be walking out with a bottle of Rogaine the first day of your appointment. Sure the doctor can probably be able to tell if your hair is experiencing miniaturization, but what about the blood work to determine the causes? Rogaine may be the right treatment for you, but I’d like to know why. [click to continue…]

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Also Afflicted, Pat’s Story

by Y on September 29, 2007

I have had round patches of hair missing for several years. Fortunately, it grew back after months of rather inventive hairdos. There were years where I had absolutely no problem. Then the familiar sensation would return, a small bump pops up (like a bug bite), the hair falls out and a new bald spot is
formed.

Over the years, the spots have gotten larger. One of the ones I have now covers almost all of the top of the back of my head. This particular spot is finally growing hair (after a whole year) and contains a wonderful little tuft approximately one inch in length. It sticks out pretty good right thereon the top of the back of my head.

I am not a person who experiments. Many years ago I sought advise from a dermatologist who administered shots into the scalp. I’ve asked regular physicians, tried volumizing shampoos and conditioners, rubbed ointments into my head and decided, screw it. I’m not doing the potions and the lotions nor am I doing the pills or the shots. Mind you, I’ve been very lucky that it hasn’t fallen out to the degree that I have now seen in other women. The sad thing is that I have been dealing with it for so long, that I feel like it is just another part of life.

I had absolutely no idea it affected so many women! Perhaps a solid solution is forthcoming.

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Pat, Thank you so much for sharing your story. Reading the different stories I see that some of our hair loss situation’s our so very different, some the same. Depending on where you are in your hair loss, some women seem to have adapted better, others not, but at some point we all have known intimately the struggles and insecurities that hair loss brings out in the women it attacks. Your hair loss sounds like it is alopecia areata. Is that what you were diagnosed with? Like you said, I hope a solid solution is forthcoming as well. It’s long over due, and not enough emphasis has been put towards figuring out exactly what causes women to lose their hair.

Updated

Pat Writes: Yes, I was finally diagnosed with alopecia areata in 2001. [click to continue…]

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Tips For The Female Hair Loss Sufferer

by Y on September 27, 2007

Tips For The Female Hair Loss SuffererI hope for this to be a constantly evolving list with other women adding their own suggestions that have helped them. These are a few that have helped me to try and avoid focusing on my hair loss and just live a more normal life.

1. Be positive and maintain hope. Everyone’s hair loss situation is very different, and yours may actually be telogen effluvium caused by some type of stressful event, or perhaps may be a temporary shedding due to a hormonal change. If it is not, you still must remain positive, even on the down days. Believe that there is a possibility of a brighter tomorrow.

2. Vacuum A LOT. I think the vacuum is the hair loss sufferers’ best ally. By vacuuming frequently you avoid seeing all your hair all over the place. The less hair I see on the floor or on the counters the better I feel, even when I am shedding a lot. Constantly seeing your hair everyone is just a frequent reminder of your suffering and doesn’t allow you to focus on other things (at least that is the way it is for me).

3. Get Rid of Your Shower Drain Hair Catcher. I’ll wait while you throw it away 🙂 That thing is evil! Counting your hairs is one of the cruelest forms of self torment. I am guilty of it myself.

4. Invest in a sticky roller brush. I make sure before I leave the house that I’ve given myself a once over with those sticky roller brushes that are meant to pick up animal hair (I even keep one in the car). I do this because I would prefer to take the hair off my own clothes rather than have the person I’m with feel compelled to pick it off my back for me. UGHH. I hate that. If I was having a good day, that would ruin it for me. I once had a friend I was out with tell me how much hair I was shedding… gee thanks. This was early on in my hair loss and she had no idea I was losing my hair, but that certainly put a damper on my day. I also had another person tell me I was shedding like a cat, I think you know how the rest of my day went after a comment like that. [click to continue…]

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Creating Women’s Hair Loss Awareness

by Y on September 26, 2007

Creating Women's Hair Loss AwarenessSeeing so many women walking around with hair loss is agonizing. I just want to run up to them all and give them a big hug, let them know that I know exactly how they are feeling about their hair. I notice all the little things that probably no one else does, the frequent touching to the head, eyes down, general display of uneasiness. I look at all those women, and I see myself. Do they see me? I do those same things as well. I wrote a past post talking about the high prevalence of hair loss in women today, called “Hair Loss, Hair Loss Everywhere – What’s In The Water?”

Shouldn’t there be a universal sign all women hair loss sufferer’s should have to acknowledge from afar that we are one of the same. I feel like jumping up and down and waving my hands in frustration that there is so little women’s hair loss awareness. It is a life upsetting disorder, it has robbed me of being the person I really am. Feeling self conscious has thrust me into the gates my home and made me a prisoner for years. I am working on improving that, improving my situation, improving my life. Realizing I am more than my hair and if other people judge me because it, then shame on them.

How do we create more women’s hair loss awareness? It’s hardly ever taken serious by the media, it is frequently not taken serious by doctors. Several of the doctors I visited early on in my hair loss either brushed me off saying that they didn’t see any hair loss or stating that it was probably “just” telogen effluvium that would stop on it’s own. Hello doc, that was 8 years ago. Where has the bedside manner of physicians gone? When they do tell you it’s androgenetic alopecia (female pattern hair loss) they frequently like to allay any of your fears by letting you know “hair loss isn’t going to kill you.” Maybe not, but it has killed a part of me, a part of me I haven’t seen or known for the last 8 years. I have made myself sick over this, and it has caused tremendous feelings of hopelessness and despair.

So I guess that’ll be my universal sign to other women suffering with hair loss, I’ll jump up and down like a crazed lunatic, flailing my hands wildly above my head, at least that would make you smile 🙂

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Helen’s Story

by Y on September 25, 2007

After years of driving myself crazy, using all sorts of products, including polysorbate 80, on my hair, I got a wig. The woman was wonderful, she put me at my ease and came in with styles and wigs that she felt would work. I kept with my natural hair color, very dark brown. It was 1987 and I was 49. Some of my hair showed at the sides of my face and under the back of the wig. That added to the natural look. About five years later, I was fully coloring my hair, my problem was on top, and decided to try a wiglet. I had a beautician cut my hair to fit and she showed me how to use it. Wiglets are lighter than wigs and you feel better because more of your hair is uncovered. The color of my dye and the color of their dye matched perfectly.

Now I am 69 and almost a year ago decided to stop coloring, even tho I knew getting a match would be difficult. After several mistakes, one too dark, one too light, to be put away for the future, I have found something that is fairly close. When I went for a haircut today, the girl did not know I had a wiglet on until I began taking it off. She was nice enough to cut my wiglet to match my haircut. [click to continue…]

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