I received this email from an amazing gal named Joanne, and I asked her if I could post it for all of you. I have always felt that it is so healing and helpful to hear the words of another going through the same thing we all have been going through. To relate, to understand, to learn… anyway you slice it or dice, sharing is healing.
Here is Joanne’s Email
I’ve stepped into a little bit of heaven finding you and this website. I commented to you on Facebook, that you are an amazing and beautiful woman and I wished you lived next door to me! Ha, ha. Yeah, how nice it would be to commiserate and get a Starbucks with someone who understands. It’s so easy to feel isolated with this hair loss crappy lot in life, but your website has opened a door for all of us closet sufferers. I thank you for that, from my heart, along with all the rest of the women on your blog.
Ok, here’s my story: I once had pretty, silky, blonde hilited hair. I once felt pretty. I once liked being in pictures with my two blonde sisters. Then, After being diagnosed with autoimmune disease – I noticed my hair shedding beginning. The drain in the shower, the drain in the sink while blow-drying, my hairbrush… What the heck was happening? I talked to every medical person I could find, a Rheumatologist, a Naturopath, my regular MD, a Dermatologist, my Hairdresser, anyone who might know the answer. I wanted someone to save my hair for me. PLEASE! I so desperately wanted a “diagnosis” that could be corrected by just taking something or doing something. My thyroid levels were normal, my blood work, normal, except for my abnormal ANA, but I was told that alone, shouldn’t be the cause. Biopsy of my scalp, normal. Everyone had an idea, of what to try, but none of them worked.
No matter, my hair kept shedding. I tried every holistic and dietary thing I could that held out even a vague promise. Some periods of shedding seemed to slow but then others were worse. It seemed there was no going back.. my hair would never rebound.
It was excruciating to see myself in the mirror and even more so to see myself next to my two sisters with their beautiful thick blonde hair. I felt like the ugly duckling sister and never wanted to take family pictures after that. Sometimes, my family would tell me I was being “silly”, oh really? Let’s switch heads for the picture then. I was told I was “still” pretty, get in the picture. I often thought, if they were me, they would NOT want to have their picture taken next to two thick blonde heads! Easy for them to say! My husband would tell me I was “pretty” too. My hair was “pretty”, I shouldn’t worry so much. They were all trying to be nice, trying to make me feel better, but they didn’t know how this was consuming me, ruining my life, making me refuse parties, events, anything where I couldn’t somehow hide my hair. [click to continue…]