My Sister Is Losing Her Hair And I Want To Help Her

by Y on October 21, 2007

My Sister Is Losing Her Hair And I Want To Help HerHi all. I don’t know if i’m stepping over the boundaries here and if I am, please let me know. I mean no disrespect. I am a family member of someone who has recently experienced hair loss. she’s my big sister and we live together. this has been an absolutely devastating experience for her. She started to really notice thining about a month or so ago and she has been to a couple of doctors, but hasn’t had too many tests done yet. I’ve been trying to find doctors and information for her, but i don’t know if i’m just making it harder. she is having a hard time so i try to take over the logistical stuff so she doesn’t have to think about it.

I guess i’m posting this just to ask you if there is anything i can do to help her or make this less painful. I know i can’t know what she’s feeling, but thought I would reach out to see if any of you could tell me stories of someone helping you make the situation better. She is a very guarded person and she doesn’t let people in very easily. I know she must feel completely isolated and I just want her to know she isn’t. We have a very close family and everyone is here for her when she needs it.

Again, I apologize if I am making anyone feel violated. I just want to help my sister any way I can. Thanks for listening.

~Brooke

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Dear Brooke –

Thank you so much for writing. I think it is really wonderful that you are trying to take on an active role in helping your sister through this extremely difficult time. Hair loss is devastating for any woman, and your sister is not alone in this. I’m certain your support means more to her than you even realize, and I certainly don’t think you are making anything worse by being there for her. Just a couple questions, how old is your sister? Did she recently start or stop taking birth control pills, nuva ring or the patch or experienced any recent extreme weight loss?

You asked for stories of situations where someone was able to make the situation better for the woman experiencing hair loss. For myself, the biggest help was just having someone there to listen to me. My fiance was there from the beginning and he always listened and understood my emotional pain, sense of confusion and fear for the unknown future. He understood my real loss. Having my feelings validated was extremely important to me, it still is. Having someone who believed my words “I am losing my hair” and fully comprehending the impact that was having on me, was helpful to me. What do I mean by believing? By believing I mean not denying or trivializing my pain by telling me “oh you look fine, you’re not losing your hair.” If a woman is losing her hair, she knows it, end of story. On the flip side, words that helped me was when he told me ” I know you are losing your hair, but to the rest of the world you look like you have a full head of hair, so try and enjoy today.” It was very delicate wording. He validated my situation and then gave the best hair complement a women with hair loss could get 🙂 He wasn’t lying either, it was the truth. When we are engulfed in the early stages of hair loss we struggle with what our former image was…. a full head of hair. As it thins, nothing is good enough and the depression and sadness creeps to an all time high even when no one else can really tell. Now people can tell I’m losing me hair, but I’d say definitely for the first 5 years, my secret was known to only me. That didn’t prevent me from feeling ugly, sad and avoiding social gatherings, but it was something I wish I fully realized back then. Having my fiance tell me it “looked like I had a full head of hair” reminded me what I couldn’t remind myself, I was still OK. [click to continue…]

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Schoolgirl struck by alopecia loses all her hair – in THREE days

by Y on October 20, 2007

Schoolgirl Struck By Alopecia Loses All Her Hair - In Three DaysBy: Liz Hull

A schoolgirl has described how she went bald in three days after developing an extreme form of alopecia.

Jordana Seville, 15, spotted the first bare patch among her thick blonde locks last Wednesday.

The same day further large clumps of hair started falling out. Within 72 hours she had lost nearly all the hair on her head.

“It was really scary when my hair just started coming out for no reason,” she said.

“At first I could cover the front with a bandana, but then the back started falling out too so I had to shave it off.

“People have been really shocked to see me but people have reacted much better to it than I thought.

“Last week I had a full head of hair and now I have none.”

It is not clear why Jordana developed alopecia although it can be triggered in teenage girls by hormonal changes or stress.

Jordana’s mother, Ashley, 43, took her to see their GP who has referred her to a specialist dermatologist.

“I’m a qualified hairdresser so as soon as Jordana showed me the bald patch I knew to take her to a doctor,” said the mother-of-three from Poulton-le-Fylde in Lancashire.

“At this stage we don’t know whether or not her hair will grow back, but I have to say I’m very proud of the way she has coped.

“I actually think her new look is quite striking. Many people have commented that it looks nice.”

Jordana, who has been off school since her hair loss began, said: “I’m a bit worried about going back. A lot of my friends have long hair like I had, so I’m not sure what people will say.

“I wanted to speak out because alopecia is more common than people think and often occurs in teenage girls.

“It isn’t all that bad, the doctor has been brilliant and I have looked into the possibility of wigs.” [click to continue…]

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Is Shaving The Head Necessary For Bonded Toppers – Anyone Know About Reprieve Hair ?

by Y on October 18, 2007

I am actually going for a consultation for Reprieve hair on Monday. I have also been to 2 other consultations for hair replacements. I am sooooo lost right now. I am currently using provillus (5% minoxidyl) and Toppik. I am not too thrilled with shaving my head for bonded toppers, but I am done with not having hair. Any advice for me??? Does anyone know if you have to be shaved for the Reprieve system – just curious since I haven’t had my consultation yet.~Alicia

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Hi Alicia,

Unfortunately I have so little information about wearing hair because I haven’t thoroughly researched it for myself yet. I am glad you are taking the initiative to have consultations and educating yourself so that you can possibly wear hair in the future. I know Julie has worn Reprieve Hair (here are her pictures) and absolutely loved it. She probably could answer your questions best about that system. I am going to email her to let her know this question is on the blog. But based on the little information I have read about the system I don’t think you have to shave your head for it. How did your two other consultations go? I am interested in learning about the different processes myself since that my be an option in the near future.

If anyone has experience with wearing hair, bonded toppers etc, please let us know your thoughts. Alicia, please keep us updated with how your consult goes with Reprieve and what you learn.

~Y

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Treatment of Female Pattern Hair Loss Case Report – Spironolactone and Minoxidil

by Y on October 17, 2007

Treatment of Female Pattern Hair Loss With A Combination of Spironolactone and Minoxidil I want to thank Kate for emailing me this Case Report about the use of spironolactone and minoxidil in treating female pattern hair loss. The Case Report appeared in the Australasian Journal of Dermatology Volume 48 Issue 1 Page 43-45, February 2007

CASE REPORT

Treatment of female pattern hair loss with a combination of spironolactone and minoxidil

Carlijn Hoedemaker, Sylvia van Egmond and Rodney Sinclair

Department of Dermatology, St Vincent’s Hospital, University of Melbourne, and Department of Medicine and Skin and Cancer Foundation, Melbourne, Victoria, Australia

Summary

A 53-year-old woman with clinical evidence of female pattern hair loss and histological evidence of androgenetic alopecia was initially treated with the oral antiandrogen spironolactone 200 mg daily. Serial scalp photography documented hair regrowth at 12 months; however, the hair regrowth plateaued, and at 24 months there had been no further improvement in hair density. Twice daily therapy with topical minoxidil 5% solution was then introduced and further regrowth documented, confirming the additive effect of combination therapy.

Introduction

Female pattern hair loss is a common, psychologically distressing, age-related, androgen-mediated condition that presents with increased hair shedding and reduction in hair volume over the mid-frontal scalp.1

Binding of dihydrotestosterone to cellular androgen receptors induces susceptible scalp hairs to undergo a progressive and orderly transition from terminal to vellus hairs to produce patterned baldness. Antiandrogen therapy with either spironolactone or cyproterone acetate is commonly used to treat FPHL, as is topical minoxidil.2 The mechanism of action of minoxidil is unknown, but does not involve androgen pathways.3 The use of topical minoxidil together with an oral antiandrogen might have an additive effect; however, combination therapy has not been previously reported. [click to continue…]

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Hair Loss Has Won Today

by Y on October 16, 2007

Hair Loss Has Won TodayIn the ever constant battle I have with my hair loss I strive to be victorious and triumph over all that it has seemed to take away from me. Some days I feel I am a clear winner and remain productive, pushing the obsessive hair loss thoughts aside, tying what’s left of my hair back, and walking out the door to get on with my life. Other days I feel like I got kicked in the head by godzilla’s foot. Obviously since I’m writing this today, it is clear that today is one of those kicked to the head days and my hair loss has got the best of me… for this moment anyways.

What frustrates me is that I try so hard to move on, but I’m constantly reminded that I have so little hair on my head. I just got done doing a pretty decent session of cardio. I ran on the treadmill for 60 minutes, hoping the run would clear my mind and help me to be more positive today. But… it’s hard to enjoy the run when the sweat rolls straight down my head and I can feel it all over, itching every part of my scalp. When I had all my hair this wasn’t a problem, the hair would just absorb the sweat. In the absence of my former tresses I now am confronted with pools of sweat soaking what’s left of my hair and rolling down into my eyes, into my ears…. everywhere. I manage to get through all of that, constantly patting my face and head with a towel. I then go to my room to change, and there in the mirror I see the reflection of disaster staring back. My soaked head has a million streaked gaps of bald scalp showing threw my very fine hair. It was just awful.

Sometimes it feels like no matter what I do, I end up getting pulled back down and receive a forceful reminder that I’m losing my hair and things will never be the same.

I’ve had these emotional ups and downs long enough to know that there will be better days ahead, I will not give up. I will continue to fight to reclaim myself because…

I am not my hair
I am not my hair
I am not my hair
I am not my hair

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Talking’ Bout Bald Girls – Article In Star Magazine

by Y on October 15, 2007

Talking' Bout Bald Girls - Article in Star MagazineI was at the grocery store yesterday when a magazine caught my eye. It is this month’s Star Magazine. It has a big title sprawled across the cover, “Hollywood Stylists Tell All!” and beneath it with a nice pink asterisk, it says “Who’s really bald.” Obviously I wasn’t going to make it out of the grocery store without this new item in tow, nor could I wait to paw through the pages until I came across the section it made reference to on the cover. It said “Talking’ Bout Bald Girls” and has 3 images of the heads of celebrities, Nichole Richie, Kate Beckinsale, and Lindsay Lohan.

I have to say that image of Kate Beckinsale isn’t new, I saw it a long time ago online. What the magazine is touting as “bald girls” is hardly the truth. Nichole Ritche may have some slight thinning on the hairline from the extensions, but even with a magnifying glass I couldn’t find the “noticeable bald spot” that the article stated existed and even had pointed to with a white arrow. Obviously I don’t know her and maybe there is truth to it, but you can’t tell from this image. Kate Beckinsale has a tiny little thin round area, very slight, very mild and again doesn’t warrant the title of “bald girl.” Lindsay Lohan got caught with her extensions showing, that’s how her head got landed on this page. An insider talked to Star and stated that she “is hiding her overprocessed hair” and that “the beautiful, shiny hair you see is not her own. It’s definitely extensions.”

On a different page there is an image of Jennifer Lopez with arrows pointing to different parts of her body. The one I found interesting is the arrow to the hair. I never knew that Jennifer Lopez wore hair, I just thought she was really lucky to be blessed with such gorgeous locks. The title is “Her Hair Does Cost A Thing.” It says “Don’t be fooled by the hair that she’s got! The source says that J.Lo sometimes wears wigs and that her actual hair barely touches her shoulders. And those big buns she wears? They’re add-ons!”

News to me. And yes, I’m guilty of buying Star magazine 🙂

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Jeni’s Hair Loss Story

by Y on October 14, 2007

Jeni runs a great blog on beauty and skincare called “Savvy Skin” and has contributed several comments on The Women’s Hair Loss Project. Now she is sharing her story. Here it is:

I’m 28, and I used to have really thick curly hair up until recently, and now I have probably half as much hair as before. I first started noticing that my part was really thinning back in September and I freaked out. After doing research, I first assumed that it was from the pill (ortho tri-cyclen) and I stopped taking it shortly after. I had been off and on it for over 10 years, but never really noticed any hair thinning before, or even the few times I went off it. I always lose a ton of hair (people always comment about my hair falling out all over the place), and I guess my hair has decreased over the years, but I never saw any baldness before Sept. My dad’s hair is thin on top, and my mom’s hair is thin now (but she has diabetes, is hypothyroid, takes a lot of medications, and eats terribly, so I don’t know if hers is AGA).

I first went to a dermatologist who said it could be AGA but couldn’t tell, and he just recommended Nizoral since he saw dandruff. Then I went to a general doctor who had no idea about anything, but she determined I was depressed, and suggested anti-depressants. I actually was really depressed (even before the hair loss), so I started taking anti-depressants, even though I was afraid it could make my hair worse. She claimed my hair loss was probably just because I was depressed and that it would grow back. I asked for all the various blood tests, and everything appeared normal. I started using Nioxin shampoo, Nizoral weekly, started taking a better multi-vitamin, attempted to eat better, including more iron and protein. For several months I‚ve also been taking Evening Primrose Oil, Vitamin C, Vitamin E, Iron, & Flaxseed on my food.

Things not getting better, I saw Dermatologist Dr. Richard Strick at UCLA in Los Angeles because he supposedly specializes in hair loss. He looked at my scalp and said I definitely have TE (telogen effluvium) and that things should just get better eventually. He said I could use Rogaine to speed up the regrowth, or just wait it out. He seemed pretty sure of himself and didn’t suggest anything else. The cause of the TE remained elusive.

A few months had passed and it was time for a visit to the endocrinologist because now I was sure I had a low thyroid [click to continue…]

{ 54 comments }

Just Noticed Hair Loss, Could It Be Nuva Ring Birth Control?

by Y on October 13, 2007

Hair Loss From Nuva RingI have noticed thinning of my hair around the crown over the past couple of months. I think I understand some or all of the contributing factors, but now I don’t know what to do to try and stop it. I had been on OrthoEvra (the patch birth control) for a few months, stopped it because it was giving me horrible anxiety, went on the Nuva Ring for the past three months, and finally decided today that the anxiety has returned as well as headaches, sleeplessness, and now hair loss. I didn’t know until I read things on this site that stopping the birth control might result in the hair loss getting worse, but I really don’t think I can continue on it because of the emotional/mood swing effects it has on me. I’m 30, and have had one child
(5+ years ago). I wonder if I can wait out the next 6 mos. while the birth control leaves my system and my hormones return to normal. I wonder if I should try Rogaine NOW, before it gets any worse (it’s really minor, but it’s starting to be noticeable enough that I try to style my hair over the thinning area or pull it back). I wonder if I should go back on birth control but I really shouldn’t do that. I wonder if this is permanent. HELP!

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Hi, thanks for writing. I always say this at the beginning of my responses to emails so that there is no misunderstanding. I am not a doctor and cannot give medical advice, this is just my thoughts and opinions.

I did some searches in Google for “Nuva Ring and hair loss” and there are several cases of women who are experiencing the same thing as you. Since it is birth control, it does alter your own hormones, and anything that does that can cause hair loss. But you should realize everyone responds differently to the effects of the pill. For some women going on the pill can cause hair loss, which seems to be your case, and for others the hair loss begins when they discontinue the use. It sounds like you already made the choice to get off the pill and are currently not taking it due to the many unpleasant side effects you were experiencing. In my opinion that was definitely a good decision.

I think it is too early to tell whether or not your hair loss will simply be a temporary shedding or the onset of androgenetic alopecia. It would probably be a good idea to consult a knowledgeable physician in this matter. Experienced doctors can tell whether or not the hair follicle is miniturizing which is usually an indication of female pattern baldness. But it is very possible this will just be a temporary shedding (telogen effluvium) similar to the hair loss many women experience after having a baby. As mentioned in my response to Sarah’s story, I actually met a woman who had hair loss from going on the pill, she stopped taking it an told me eventually all her hair grew back. It all depends on the individual. [click to continue…]

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Purchased A Few Wigs On Ebay – What A Disaster!

by Y on October 12, 2007

Purchased A Few Wigs On Ebay - What A Disaster!So a few weeks back I purchased two wigs (synthetic) on ebay. A week after that I purchased another one (supposedly human hair). I was hesitant to make online purchases of wigs for obvious reasons. One, I didn’t have the ability to see the quality of hair or thickness of the cap, and Two, I wasn’t able to try the hair on first. But I went ahead anyways with eyes wide open, knowing that I may end up getting a bag or rocks in the mail… or worst nothing, or worse what I got in the mail… Horrible wigs. I should mention the wigs are quite photogenic and take a much better picture than they actually look like in person. I couldn’t help myself, I had to throw it on my dog and take a picture. He looks much better in it than I did.

My first set of wigs arrived promptly and I anxiously ran out the door to pick up the package like a little girl on Christmas morning…tearing at the box to get to the inside. I open it and was shocked at what stared back at me, it looked like rubber hair. I have no idea what the wigs were treated with, perhaps a preservative or maybe it was the dye used, but I was horribly allergic to it and instantly started sneezing, the watery eyes followed suit. There I was, standing with rubber hair on my head, a cap so thick it felt like 3 baseball caps and an allergy attack. What a disappointment! I would have preferred the bag of rocks. 🙂 My fiance was very sweet and didn’t make any initial reaction to my rubber hair cap, he was just silent. As soon as I screamed in horror after seeing my reflection in the mirror he was quick to jump in and casually mention that they weren’t very good quality. Not being good quality is an understatement. My childhood cabbage patch doll had better hair.

The next wig (human hair.. yeah right) arrived the following week. At least I wasn’t allergic to it, but still poorly made, so now I have 3 wigs that cannot be worn and will never see the light of day. Thank goodness for that. I am not discouraged though, it was a big step for me to order them and to try at least start thinking about wigs as a possibility. After this experience, I definitely think wigs are something that have to be seen and tried on in person. Very important. There are several large wig retailers in my area so perhaps I’ll get up the courage to visit one soon. I’ll keep you guys updated.

{ 22 comments }

Hair Loss at The Age of 20 – Veronica’s Hair Loss Story

by Y on October 11, 2007

Hair Loss At The Age Of 20 - Veronica's Hair Loss StoryWow, I’m so happy I just found this site…I’m 20 years old, have had been genetic hair loss for four years now. About 2 years ago I had a biopsy done and my derm told me it was probably genetic, he put me on Rogaine, Spiro and Yasmin. I was on those meds for about a year… and they did absolutely nothing. Last year in the fall my hair loss was getting really bad and I was getting so desperate for something, so I spent over $1000 on getting Invisible Hair extensions. I was assured by so many people that they would be safe, and definitely the perfect solution. The extensions were great! I loved having so much hair and planned on having the extensions put back in. Well when I got them removed for the first time I was SO devastated, more than half of my already thin hair was gone.

Its been since January now since I’ve had them out and I feel like I’ve hit the bottom. I’m in college and can’t concentrate on anything. I’m always way too focused on everyone else’s hair and I feel like I’ll never feel normal again…I haven’t been able to wear my hair down since I got the extensions taken out. My poor hair is
still falling out like crazy… it’s so thin I can’t even wear it in a ponytail, I feel like I will be bald soon.

I’m so scared, nobody seems to understand. My best friend and my family just tells me to cope with it like its no big deal. I feel like I have no where to turn. That’s why I was so glad I found this forum…I really sometimes feel like I’m the only one experiencing this and it’s comforting to hear everyone’s story. I’m not sure what to do with myself, I hate going out, even going to school because I just feel so ashamed…I don’t even know where to start looking for a wig around here (I’m from Portland, OR). And I feel like seeing another doctor would also be pointless. Anyways, Thanks a lot for listening to my story.

~Veronica

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Dear Veronica,

Thank you for writing and sharing your story, I’m so sorry you are having to go through this. It probably is of mild comfort, but know you definitely are not alone and there are A LOT of women who start to lose their hair at young age. Who knew? I definitely didn’t until I started going through it. Here comes my usual disclaimer I provide on every question I respond to. I am not a doctor and cannot provide medical advice or treatment, this is just my opinion. Ok…

After reading your story I have so many questions. Did your dermatologist put you on Rogaine, Spiro and Yasmin all at the same time? You said you are 20 and have been experiencing hair loss for 4 years, so you started losing your hair at 16 and saw your doctor at 18. Did he provide any explanation as to what might have trigged your hair loss at such a young age? You stated that after a year the medications did nothing, but you didn’t say whether or not you stayed on them or took yourself off. I’m curious because if you took yourself off after a year and the following year noticed a rapid decline in your hair, then perhaps the drugs were doing more than you thought. Sometimes all the drugs can do is slow the hair loss process down and help you maintain the hair you have,. Not all women experience a phenomenal regrowth after treatment. Even after I started treatment, I never regained the hair I had and was pretty convinced the treatments weren’t working so I eventually took myself off of aldactone around 2003… I think. The dates get fuzzy. Anyways, my hair loss increased dramatically. That could have just been from getting off the drug and it may have re-stablized eventually, but that scared me enough to get back on. Not only did I get back on aldactone, but when I got back on, I had my dose increased from 100mg to 200mg a day.

If you would have asked me then about my hair, I would have complained about the hair I once had and that it was so thin and continuing to fall out. But looking back it was doing fairly well after the 200mg increase. [click to continue…]

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