From the category archives:

female pattern hair loss

Oh Baby… A Hair Wearing Adventure

by Cara on October 28, 2011

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Most of you know me as “KatKat” or even the “resident topper expert” as I frequently give advice on toppers and how to wear them. I developed diffuse alopecia and chronic telogen effluvim four years ago and started wearing hair in my previous career as a pharmaceutical representative where I was judged by my appearance on a regular basis. I have worn hair through dating adventures and then under a veil on my wedding day. My topper and I have been through airports and dental surgeries, in wind storms and downpours, and on a cruise. But of all of the adventures I have ever had in my “hair,” none could prepare me for the events of my life this year.

On March 7, 2011, I gave birth to my wonderful son. After nine long months, I was so excited to meet my baby! Yes, my hair grew fuller while I was pregnant. However, what grew was just more bad, miniaturized hair — not “usable” hair. I discovered that I was so comfortable in supplemental hair that I would rather continue to wear it than resort to trying to fix my old, flyaway hair. I won’t lie, it was nice to see more hair when I took my topper off each night but that was the extent of celebrating seeing my hair come back.

Throughout my pregnancy I wondered about the day my son would be born. Would I have my topper secure enough? Should I just tell my nurses about my hair since we would be up close and personal? Would I have time to wash it when I went into labor? Should I wear a headband or a ponytail? So many scenarios played through my head. Deep down I longed not to care about any of it; but I did. [click to continue...]

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I’ve seen enough fabulous hair pieces and wigs to know that it remains a very realistic, viable option for women who deal with hair loss. But the question always remains, where do you go? I know I’d definitely want to go somewhere that was caring, compassionate, patient, and a place that wasn’t pushy and truly had my best interest at heart. After all we aren’t buying iphones, we are buying something so intimately personal, I think a little TLC and hand holding is in order.

There is no question in my mind that a lot of women close the door to wearing hair because their first attempt turned out to be an awful and traumatizing experience, or the product was subpar, and from that they probably figured there was no point in continuing to try. Unfortunately, wearing hair isn’t really SO common that you can just turn to your girlfriend and say, “Love your hair, where’d you get it?” It’s also a completely different experience when you are buying hair because you NEED it, as opposed to buying it because you just think it would look neat with an outfit. One situation has deep rooted emotions and the other is really more of an optional accessory. For that reason, it is crucial to find a place that actually deals with women losing their hair and understands the devastation and feelings that encompasses it.

I think finding a good hair replacement salon is probably tantamount to finding a needle in a haystack, so I wanted to share the names of two shops that seem to truly be helping women.

I have heard several positive stories about:

Lee Anthony
1001 W. 17th Street, Suite H
Costa Mesa, CA 92627
949-515-0631
leeanthony.com

One WHLP member stated that Lee actually told her that it was too soon for her to need to wear something, which I think definitely shows honesty and integrity.

The place I most recently heard about is:

Wigs Today
6338 W. 3rd St.
Los Angeles, CA 9006
323-954-8809

If you make a visit here, make sure it’s the address I listed above. I did find another place in Los Angeles by the same name, which had horrible reviews, but I’m pretty certain this isn’t the same place. According to the listing I found on Yahoo: http://local.yahoo.com/info-20415634-wigs-today-los-angeles#overview this place was only recently established in 2009.

I am super cautious about ever recommending a product or service provider, but I feel confident that the experiences I have heard about regarding these salons are from real women who have been a part of the site for quite sometime with no ulterior motives.

As a final note, I’d also run (not walk) from any place that asked you to sign a contract, gave you a hard sell or made you feel uncomfortable in any way whatsoever.

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I’ve always been a private person, definitely more of an introverted personality. I find happiness and solace just being all by myself, never really feeling the need to have to be out and about and socializing. Well, hair loss added to that in a negative way. What once felt like a personal preference now seemed like a prerequisite to my life… solitude and isolation.

There were two monumental, emotionally catastrophic times caused by my hair loss. One was when this began in 1999, and the other crash came in 2007. I was losing my hair the whole time and having bouts of depression the whole way through, but those points mark times where I just sat constantly feeling helpless and completely without any motivation to live life. It’s definitely no coincidence that I created this site in 2007, it was an extremely sad time for me, and if you read my earlier posts you will likely feel the sadness and pain I was going through. I was withdrawn, I submerged myself into the comfort of my keyboard and I began to pour my heart out onto electronic paper. The more I typed, the more I shared, the more I started to feel better. Sharing is incredibly healing; I say it all the time.

During this time, I started to avoid my friends; I was ashamed of how much worse my hair was starting to look. It was thin before, but after having experienced a nonstop massive shedding from the 2 years prior, it was now a complete hopeless mess, and seemingly progressing each day. I didn’t want anyone to see me this way. I hid. In every sense of the word. I hid. I started avoiding phone calls, text messages and even started to skip the “reply” part of an email I would receive. It was just easier to push that part away (socializing) and focus on communicating and writing to women I met online, women who I knew understood what I was going through, that felt a whole lot safer.

As time passed I started to feel guilty for abandoning the friendships, and I started to feel empty.  I was saddened that I had pushed everyone away just so I wouldn’t have to share my secret and have them see me a way that I didn’t even want to see myself.

I wanted to reconnect, but how? So much time has passed. What do you say? Where do you pick up? “Hi, how are you… I’ve been balding for over a decade and it’s made me miserably depressed, sorry I didn’t call you back,” that just didn’t have the flow or direction I was hoping for.

I wrote emails, apologizing and explaining what has transpired in my life, or more appropriately put… what took over my life. I went out to lunch with someone else, and burst into tears over my jambalaya. I was scared, I felt vulnerable, but I was received with such love and understanding. I wasn’t judged. All that I had built up in my head of how no one would understand, was really just in my head. I also think when you share such a deeply personal part of your life with others; it can deepen and grow your friendship.

Make no mistake, this is still very much a secret of my life, but I told a few people I very much care about, and I don’t regret it. I know in writing with lots of women on this site, that others have also lost touch with their friends, and in some cases family, and I want to tell you… Your friends, your REAL friends, are still there, waiting for you to reach out. If you want to reconnect, make the choice, and decide how you feel most comfortable – phone, in person, email, telegram :) and do it.

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It’s been quite some time since I’ve written a blog post. Now all at once I have several things I want to write about, but I’ll separate them into different posts, and play catch up that way.

Something I find myself confronted with from time to time, is balancing the things and activities in my life that I deem to be normal, with the reality of how my hair loss colors almost every situation.

Examples

A Run Is Not Just a Run

Running… turns out I love to run! Over the last few months as my asthma was improving I took to the streets with my running shoes and started pounding the pavement (quite literally) and realized, hog diggity dog, I LOVE RUNNING. I’m a slow runner, and I do have asthma, but I love it just the same. What I don’t love is being outdoors with sweat pouring out of my head highlighting how thin my hair really CAN look. So my solution is wearing a nike running headband, which is excellent at absorbing sweat and hiding the hairline and top of head. I also use a wide array of different sporty adidas and nike caps. I guess hair loss has caused me to be a tad bit more stylish out of necessity. :) I’d love to run sans anything on my head from time to time, but I wouldn’t be feeling the wind blowing through my hair, it would be more of a draft penetrating my scalp. So, no thanks.

Dinner Is Not Just Dinner

I’ve danced around tables at restaurants, playing musical chairs, grabbing the one that has the least overhead lighting. I’ve nearly knocked over waiters diving for the chosen one, the one that will least likely show to others that I’m losing my hair. I’ve enlisted my fiancé in this process as well, so he’s on the hunt for picking me a good one too, always asking me if I’m okay with the seat. I’ve changed tables at restaurants several times over, looking like a nut, because each table seemingly had more overhead light than the one prior. It’s dinner, it should be dark… really dark, like I want someone to put a flashlight to my menu. Ha ha.

Buying Clothes Is An Exercise In Visual Discipline

I’ve perfected the art of trying on clothes in dressing rooms without actually looking at my face. Neck down only. Unless it’s the Gap, god bless the Gap, whoever designed their dressing rooms definitely has hair loss.
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The list can go on and on, but I suppose my point is, in time we learn to adapt. In an effort to maintain our sanity, our minds adjust to a new “normal.” We have to adapt and learn to work with the hand we have been dealt. I know in time my hair loss cards will include glue, tape, a hair piece, and possibly a razor, but I’m not there just yet. When I am, it will take time to adjust, as every step always has, but history has taught me that we are so much stronger than we give ourselves credit for, and I’ll be okay. Make no mistake, I still get sad, I still have my down days, I shed more today than I have been lately, and it all does affect me… but the length of time it affects me is so much shorter, my turn over period is much quicker. Thank Goodness!

Several things have happened since I last wrote, including a 3rd trip to see Dr. Greco for PRP therapy, I’ll be writing about all that soon.

I wish you all a wonderful and beautiful Sunday! Get out there and live your life, don’t let your hair loss rob you of that. Make adjustments as necessary, there will always be those for sure, but after pretty much losing out on my entire 20’s I want to encourage others to not make that same mistake. Those years, I’ll never get back.

Cheers to moving forward ( I have my glass of wine, do you have yours?)

XOXO

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Hello Everyone!

Recently I ventured back to Florida to have another PRP (platelet rich plasma) hair loss treatment with Dr. Joseph Greco. I went back at the 4 month mark, which is before the time usually recommended to patients. I did so because I was quite pleased with the results I saw, and I wanted to make sure I kept my hair in that happy state it seems to be in. After 10 years of hair loss, when you find something that helps, you pretty much jump all over it… or at least I do.

So round two begins….ding ding.

I arrived at the hotel the day before my appointment, ready, excited and pumped with anticipation to have this treatment done again. I had a lot less apprehension because I pretty much knew what to except. As some of you will recall, a big point of anxiety for me during the last trip, was exactly how much pain was involved in this process. Well thankfully that anxiety didn’t exist because I had already experienced the process and knew it was not that big a deal.

I slept like a baby, no nerves whatsoever, part of that may be attributed to the wine I drank that evening. Gotta love wine! I awoke the following morning and stepped outside on the balcony with my cup of coffee and was just in awe of how beautiful it was. It was an incredibly gorgeous day so I just soaked it all in.

An hour before I was to depart, I dialed the front desk to ask for a cab to pick me up. Before I knew it I was being whisked away by some crazy driver who seriously needs to re-evaluate her profession. I’ve never in my life had a cab ride quite like that before. I found myself bracing at every turn and frantically clutching on to the seat for dear life. And to make matters worse, she didn’t take credit cards! Every cab pretty much takes credit cards nowadays, but her machine was getting serviced (uh huh). So now I had to rummage through my purse (something resembling a black hole) to pull out dollars and quarters. Shockingly I had the cash. Yay for spare change!

I walk into the office and am warmly greeted by the receptionist. I re-sign some forms and take my place in the waiting room chair. Not much waiting time before Dr. Greco appears and welcomes me back. I say my hellos to Val, his awesome assistant, and shortly after I’m in the chair getting my blood drawn. Like I mentioned in my first post, Val is a pro at drawing blood and there was no real discomfort there at all. [click to continue...]

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Finding Peace, Strength and Friendship

by admin on January 24, 2010

As most everyone who frequents this network knows, I started this site in 2007 during one of my darkest and loneliest times. At that point, I had already been dealing with hair loss for 8 years, but things had taken a drastic downward turn and down I fell into the hole of isolation.

That was then.

Since that time I have had the chance to interact with so many women that have touched my life in such profound ways. I have discovered just how strong women really are, and I have learned so much.

By being able to unite women with hair loss, and helping them to find support and understanding, I have found just that for myself… understanding and support, and I no longer feel alone.  I have met a few women from the network, in California and New York, and each time it has been a truly wonderful and amazing experience.

I just wanted to say Thank You to Everyone. Thank you for helping me to find some inner peace, a strength I never thought existed, and friendship that is pure and true.

You have changed my life.

It’s a new dawn, it’s a new day, it’s a new life.. and I’m feeling good
~Nina Simone

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My PRP (Platelet Rich Plasma) Therapy Experience

by admin on November 12, 2009

It has been quite a long time since a treatment has come along that I would entertain trying. That was until I started to hear more about PRP therapy. In my post titled “Is PRP Therapy a Viable Treatment For Women’s Hair Loss” I wrote that I was more of a “wait and see person,” but I thought… “What the heck?” I mean I really could not find a downside to trying it, and I have been reading really positive things about this treatment. I of course had concerns:  Will it hurt? Will it make my hair fall out more? Will it hurt? Will it hurt? Will it hurt? :)  I think the least of my concerns was that it would do nothing at all.  I felt it was definitely worth trying, and that the payoff would potentially greatly improve the quality of my hair and decrease the shedding. At this point of my hair loss life, that is really my goal - just to keep what I have. Early on in my hair loss, probably for the first 5 years, I prayed constantly for ALL my hair to come back. Now I think I could be happy with the hair I have left, if I knew it was going to stick around for awhile.

So the PRP Journey begins. I flew to Tampa, Florida to have this done with Dr. Joseph Greco. The night before my treatment I went out and had a few drinks, not sure that is proper night-before-treatment protocol, but hey, I needed to relax!

The morning of the treatment I awoke quite early and simply couldn’t get back to sleep. I had PRP jitters. All my nerves really centered around “pain.” How MUCH pain would be involved?

I took a cab over to the doctor’s office and waved the driver goodbye, thinking… “wait come back!” I still was having my concerns about whether or not I could go through with it. I scan the office numbers on the glass window doors of the building complex and finally happen upon 113. I walk in and am welcomed by a bubbly blond hair receptionist, soon enough I’m filling out the patient forms. It isn’t long before the doctor walks out to greet me. We go into his office where he explains what will be happening, and also how PRP works. For all I know he was explaining the rise and fall of the roman empire. I must admit I felt a little bit like one of the students in Charlie Brown listening to the teacher, and all they can hear is “Wah wah wah wah.” I was too anxious to be in a learning mode. I expressed my concerns about PAIN and he reassures me that it really wouldn’t be bad at all. I still had my doubts. But, by that time I am fully committed to having this treatment done.

I am taken into the room where the treatment will be done and introduced to Dr. Greco’s assistant Valerie. Fist step of this process is to have my blood drawn. Now THAT I knew I could deal with. I’ve had my blood drawn a zillion times. No problemo. Valerie happens to be really good at it, and finds the vein the first try, no pain. I’ve had people draw my blood where they seem to use me as a pin cushion. But Valerie is no doubt a pro at this.  The blood is drawn, and they then take it into another room where they then spin the heck out of it in a centrifuge to obtain the platelet rich plasma. I sit in the reclined dentist like chair, thinking about, you guessed it… Pain… is this going to hurt?

I’m not sure how long the spinning process took, perhaps 15 minutes. Now the numbing process begins. My head is numbed using small injections of lidocane around the perimeter of where the treatment will take place. I forgot to mention that while my hair loss is diffuse all over, the doctor only treated the top portion of my scalp because he stated that there is platelet migration downward. [click to continue...]

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I am constantly inspired by the women who have taken the bull by the horns and made the choice to move forward in their hair loss journey. Whether it is making the bold and beautiful choice of shaving their heads, or choosing to wear toppers, integrated hair, or full lace wigs — they remind me that there is life after hair loss, we are beautiful as we are, with hair or without. I think often sometimes when we are confronted with hair loss we begin to feel that life is over, on the contrary, it has only begun.

I put together a video showcasing some of the women from the network who are either wearing hair or wearing nothing at all (on their heads that is). In this video, “Hair Never Looked So Good” each woman either has a full wig, an addition, topper, or is showing her beauty sans hair. The only exception is Kendalkins friend in one of the photos, I simply had to include it because she looks stunning.

Thank you to all the ladies who agreed to be in the video. You inspire me, and I know you will do the same for others. XOXO

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Hair Pieces Demystified - Q & A with Cara

by Cara on September 28, 2009

Many of you have expressed interest in hairpiece options and many have posed the same questions so bear with me as I attempt to provide some answers.

How Do I Know If a Topper or Full Wig Is Right For Me? What Are The Estimated Costs For Hair Replacement?

A topper will work if your remaining hair is in good condition on the sides and in the back. If you have diffuse thinning you should consider a full piece.  The costs of toppers will range anywhere from $450 to $1,500 and a full piece can fit into that range as well. The average cost of tapes or glue will be about fifteen dollars a month . There are so many materials these pieces can be made of. The advantage of a lace piece is that once it is pressed into tape or glue it will disappear into the skin providing a natural look that is ideal for those who do not want to wear bangs at all.

Can I Shower or Swim In a Bonded Hair Piece?

Yes, you can shower and swim in a bonded hairpiece. Most medical grade tapes and glues hold up just fine. If you know you will be swimming certain adhesives will hold up better than others and I’m happy to fill you in on all that if you are planning on doing so. As for showering…not a problem. It is a different feeling/experience when you first start showering in a hairpiece but you get used to it. Once you are out of the shower, it is very difficult to tell your hair isn’t real.  You style it just as you would your own. If you have hair underneath it may take a little extra time to dry it but that’s really as complicated as it gets.

Daily bonding with tape should take very little time  (5 minutes). For longer periods of bonding you will take more time of course, but the longest it should take is 45 minutes. It does take practice though.

What About The Bedroom?

As for the “mattress mambo” (sorry, but many of you asked)…yes it’s all good. Even on the wildest nights you should be fine:) if your hair is bonded. Again, it may take a bit to adjust to the feel of the hair, but trust me, you will feel one thousand times sexier with hair than how you do with thinning hair in my opinion. For those of you who rock the bald look, now that can be just as sexy though! Okay…enough of this subject, hope I didn’t offend anyone:)

Wearing a bonded piece to bed is a small adjustment as well, you will be aware that it’s there but you’ll get used to it quickly.

Waking up in the morning to a full head of hair is a great way to start your day!

Sleeping with it in a low ponytail is sometimes preferred. Sleeping on a satin or silk pillowcase will help reduce damage while sleeping also. [click to continue...]

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So the hot buzz on the hair loss street is that there seems to be great potential in treating hair loss with a new treatment being offered called PRP therapy. Well PRP therapy itself isn’t new, but the usage in treating hair loss is.

So what is PRP therapy anyways? If you are like me, you probably thought it sounded like the latest hot stone massage technique being offered at the spa. “I’ll have the mani/pedi and the PRP Therapy.” :) Well not quite.

So If That Isn’t It, What The Heck is PRP Therapy?

PRP stands for “Platelet Rich Plasma,” and it has been used by hospitals and during various surgical applications since the 1970s. In more recent times it has been used in sports medicine and orthopedics to assist and accelerate the recovery from injury.

How Does It Do That?

When concentrated platelets of a person’s blood, which contain proteins and other particles are injected into the injury site, it helps to trigger the body’s ability to grow new soft tissue or bone cells to repair muscle.

Ok, Great, So How Is That Gonna Help My Hair Loss?

According to North Carolina hair restoration surgeon, Dr. Jerry Cooley “PRP involves the application/injection of plasma that has about 5X the amount of platelets as in circulating blood. The platelets secrete numerous growth factors, including PDGF and VEGF, both of which have been shown to have positive effects on hair growth. So it is reasonable to think that PRP would not only help wound healing but also hair growth.”

While several doctors are beginning to treat their hair loss patients with this new treatment, the credit goes to Florida doctor, Jospeh Greco Ph.D as being the first to use PRP therapy in the treatment of hair loss in an attempt to reverse the effects of thinning hair.

What Is PDGF and VEGF?

PDGF stands for “Platelet Derived Growth Factor“  PDGF is one of the numerous growth factors, or proteins that regulate cell growth and division. In particular, it plays a significant role in blood vessel formation (angiogenesis), the growth of blood vessels from already existing blood vessel tissue.

VEGF stands for “Vascular Endothelial Growth Factor.” VEGF is a chemical signal produced by cells that stimulates the growth of new blood vessels. It is part of the system that restores the oxygen supply to tissues when blood circulation is inadequate. [click to continue...]

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