hair loss story

Dee’s Hair Loss Story – Hair Replacement Buyer Beware!

by Y on January 29, 2008

Dee's Hair Loss Story - Hair Replacement Buyer Beware I guess I started noticing my hair loss after the birth of my daughter, 21 yrs ago. I have always had fine beautiful naturally golden blonde hair. But, when it started thinning, I resorted to perms. Most of the time I just looked fuzzy..Then I pulled it all back in a pony tail and clipped it up in the back… that seemed to be the last way I remember wearing it. before I made the LEAP..and it was a big one into hair systems. I guess it took me about 8 yrs to get to this point where I felt complete desperation.My hairdresser and long time friend, talked me into going to a salon out of town where she had heard about this guy who did hair weaves. I finally got brave enough to go. After his ‘thourough’ examination of my hair, he told me what I was not prepared to hear. The only thing that I could do at this point in my hair loss was to go to a track and glue hair system. He said it would be no big deal, just cut my hair a little bit in this track around the top of my head, then adhere the piece to it. No biggie…I told him I’d have to think about it for a while. I remember crying and crying over the fact that it was my only option, I had to do something… I felt as if this were some sort of social death sentence.So, I went back to his salon where, by the way, he did his hairpiece business upstairs away from his other clients. This I was happy with. I had had enough stares and rude comments from co-workers and even some family members to last a lifetime. I was ready for the humiliations I had suffered to stop. Well, he begins to cut my hair on top, then without warning begins to shave the entire top of my head. I was in shock and began crying …”what are you doing?” He said this is what he had explained to me the week before. I’m telling you…I don’t remember ever hearing about the shaving the head part. But at that point, it was too late…there was no turning back. He then proceeded to place on my head the most horrible thing I’d ever seen in my entire life…It was ashey grey in color..not even blonde. The hair was so thick you could barely get your hands through it. I sobbed and sobbed in that chair as he tried to thin it out and give me a totally different hair style than I was wearing before. He said “no one will even notice, they’ll think you’ve just got a new hairstyle”. He cut it in a “Florence Henderson” style (from the Brady Bunch)…said it would look more natural that way. Well it looked anything but natural, it looked like a little old ladies wig. I was completely devastated…I did not leave my house the entire weekend. But, I had to return to work on Monday and I dreaded it like nothing I’d ever dreaded before. [click to continue…]

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So Sorry That I Took My Hair For Granted – Amber’s Hair Loss Story

by Y on January 21, 2008

So Sorry That I Took My Hair For Granted - Amber's Hair Loss StoryHello Everyone. I am so happy to know that I am not alone in my hair loss devastation. I am a 28 year old mother of four. I’ve been experiencing heavy hair loss and extreme changes in the texture of my hair since the pregnancy with my daughter 5 years ago. Much to my dismay, my doctors were telling me that I was pulling my hair back too often or that my hormones just needed to get back to normal or that the straightening process I had done had caused the loss. So for five years I have watched my very thick, very curly hair become thin and straight thinking that one day it would magically reappear. It was two weeks ago that I had a scalp biopsy and was diagnosed with andogenetic alopecia. To boot, I am losing it from all over my head, not just the top. My dermatologist is pretty cruel and just chuckled and said “There’s nothing you can really do. Use Rogaine.” I am devastated. My daughter has hair just like mine used to be and I’m actually jealous of her. I’m debating whether to have the fifth child that my husband and I wanted but I don’t want to spark any excess shedding episodes. I have started Rogaine as it is the only FDA approved medication for women but I am feeling very lightheaded and somewhat dizzy so I’ll probably have to stop. I realize like many of you that this has quickly become an obsession. I know that I am not my hair. But let me tell you, after four children, my body is beat. My hair is the only attribute I have left and I’m losing that now too. I’m at an incredible loss. I can’t imagine what it will look like when I’m 40. Please give me any feedback you can and I hope this post helps someone feel not so alone as this site has helped me tremendously.
Thank you,
Amber

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Dear Amber,

You are not alone in your feelings and struggles. I wish I knew why most doctors are so insensitive and callus toward the women who seek out help for their hair loss. I can’t explain why they do it, but it is an unfortunate very common occurrence. Was your dermatologist by any chance a man? They seem to be the least understanding.Just like the birth control pills can somethings kick in the onset of androgenetic alopecia early so can the hormone shift of having children, sometimes there is just no rhyme or reason, but undoubtedly we are never prepared. There are other “treatments” used to treat women’s hair loss such as low androgen index birth control pills and aldactone (spironolactone). All hair loss treatments carry the risk of possibly igniting some extra shedding at first. It’s the whole, “has to get worse better it gets better type thing.” It’s all a very personal decision what a woman chooses to use to treat herself, and she has to fully understand the postives vs. the negatives. Hopefully in time there will be more studies done to figure out what exactly causes women’s hair loss and then with any luck a real solution for women’s hair loss will follow. [click to continue…]

{ 8 comments }

Desire To Be Bald – Gosia’s Hair Loss Story

by Y on January 19, 2008

Desire To Be Bald - Gosia's Hair Loss StoryThe title may seem to be surprising.. but, actually, when analyzed accurately.. it is not. I have been an AGA sufferer for a few years now. and I AM SICK OF THIS SITUACION. What I want now is only “to have this situation solved one way or another. Either grow back or fall out completely. So that I can resolve it and move forward.” Based on my prior experience I know that grow back is impossible. You may say I gave up. Yes, I did. Because there is no point trying to fight with anenemy you don’t understand and one you are blind and deaf against. You will only go through better and worse times, being moody so that people around will not stand you anymore. Curing uncurable puts you in a perpetual state of false hope. You neither have decent hair nor a good replacement; You’re betwixt and between.I have had enough. Finished medical treatment and wait for so little hair to shave it off. Be beautiful for myself when totally bald. I can accept it. And being beautiful to people around who have no idea, when wearing the best available vacuum wig. Just hard times for me when the final hair loss comes. Wish me strength. I hope I manage.”I am literally a shell of my old self and I am quite frightened. Sometimes I just want to shave my head and get a full best quality undetectable wig so I don’t have to see anymore hair in the shower drain, sink, bathroom floor, back of my shirt, etc. I don’t want to have a partial replacement system on a clip, as it is just inconvenient.I don’t want to have a partial replacement system based on adhesives as I would never accept my looks with severe typical men’s baldness. I want to shave my head and become beautiful again. And I will.Nobody can understand me. But I do not care. This is only my life and my best times (I am 24)

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Dear Gosia,

Thank you so much for writing your story. Your thoughts are my thoughts. Your feelings are my feelings. On more occasions than I can count I have wished for there to be some finality to this never ending hair loss nightmare. Some closure…anything. I’ve felt the torture, the decline and slow death of my self esteem tear away minute by minute, day by day and year after year. You reach a point where you throw your hands up in the air and say “if I’m going to be bald then fine let it happen all now and let me get on with my life, because this strand by strand thing is eating me alive.” [click to continue…]

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Cutting My Loses, My Hair Loss So Far – Brenna’s Hair Loss Story

by Y on January 17, 2008

Cutting My Loses - Brenna's Hair Loss StoryAt 41, I gave my hairdresser free reign. She cut off everything but 1 inch of outgrowth in my natural color – grey. Under the lights in the salon, my scalp glowed just as brightly, but the white hair complimented the pink shine much better than the chestnut stained trimmings that covered the floor around the chair. There is no question in my mind that facing my reality – infertile, grey and balding at 41 – saved my mental health, and contributed to the end of my marriage. The disappointment in my husband’s face that day when I returned home from the beauty salon, showed me he could never accept me for who I was now, instead of wishing for the woman he’d met 15 years earlier. I knew that living with the truth was the only way for me, and that I would be doing it alone.

When my hair began to shed at age 31, I had thought nothing of it. It was so thick and wavy, I hardly noticed a difference, and simply passed it off as a slight change. By the time I looked in the bathroom mirror and realized the shiny spot on the top of my head was my scalp, it was too late. The Prempro I had been taking to mitigate the symptoms of premature ovarian failure certainly contributed to the loss, but because of the hormone changes from the POS, likely there would have been hair loss if I had not taken any hormones.

After denying the reality for a decade, mainly with new hairstyles and hair color, I couldn’t live any longer pretending to myself that nothing had changed. With barely an inch of outgrowth, I didn’t care if I looked bald when my stylist was done with me – I just wanted to have myself to look at in the mirror – whatever I actually looked like.

The divorce took 2 years – one year to finally say it, and one year to separate our lives and finances. [click to continue…]

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Hair loss drove me to suicide but now..I’m proud to have ditched my wig

by Y on January 9, 2008

Hair Loss Drove Me To SuicideI found this article that was posted yesterday on the Mirror.co.uk site. It is about a woman whose hair loss nearly killed her. It is a very touching article so I’m reposting it here for all of the readers:

Shoving a handful of pills into my mouth, I washed them down with a big swig of vodka.

I didn’t even know what I’d taken – I’d grabbed whatever was in the medicine cabinet and hoped it would end my pain. Then, I called one of my friends.

“I’ve taken an overdose,” I sobbed into the phone.

My mum Teresa picked up the receiver downstairs and had heard everything.

She piled me into the car and took me to hospital, near our home in Bradford, West Yorkshire.

“Why?”

She kept asking. “My hair!” I cried. “No one knows what it’s like.”

Up until the age of 13, I’d been just like everyone else. Then, suddenly, my long brown hair started to fall out in clumps.

At first, it was just a few places, here and there. But, gradually, more patches began to appear. I tried covering it up, doing my hair in different styles, using hair thickening creams and sprays. But nothing worked. There was no getting away from it – I was going bald.

The doctors diagnosed alopecia. “We don’t know what has caused it,” the specialist said. “It could have been shock.”

One of my grandmothers has passed away and I’d moved house and schools.

But I’d never dreamed it would make me lose my hair.

Going to school became a nightmare. “Hey, baldie!” the kids would shout at me down the corridor. [click to continue…]

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Losing Hair At 27, My Hair Loss Story by Sarah

by Y on January 8, 2008

Losing Hair At 27, My Hair Loss Story By SarahI started to notice a loss of hair density when I was 19 years old. At first, I thought it was because I moved to a dry climate, but after time passed, I realized that this was not the case. I had thick, natural curly, wavy hair when I was young. My hair loss has been very gradual, but I feel as though it has accelerated in the last three years. I don’t notice my part getting bigger I just feel loss of density all over my head. I’ve been to three dermatologists and have taken all the tests. Everything comes back normal except for my iron. (Side note: I was diagnosed with anemia back in 2002 and went on iron supplements back then.) My dermatologist advised me to go on iron supplements and spirnolactone. She said I won’t notice a difference in hair density for at least a year after taking the supplements. So far, it has been almost 4 months since I started taking the iron supplements and I haven’t noticed a difference. I don’t shed as much during the day or while I take a shower. However, I lose a lot of hair when I brush. I’d say 150+ hairs. She said that if the iron doesn’t work, that I probably have androgenetic alopecia and because I’m losing hair all over my head, hair replacement surgery is not an option. I haven’t had a scalp biopsy done. I’d like to, but my dermatologist didn’t think it was necessary.

I feel I should also mention my family history. My mother has a full head of hair and she is 63. My dad is just now at age 62, losing his hair, but it could be due to his thyroid condition. My bother is losing hair and he is 33. My grandmother on my mom’s side has hair, my grandfather, however had hair loss. My grandmother on my dad’s side had thin, fine hair, but my dad said he couldn’t recall seeing her scalp. My other grandfather had a full head of hair. So, hair loss is in my family.

With all this said, I’ve gone through a wave of emotions. [click to continue…]

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After 2 yrs of hair loss, I gratefully found you! – Rachel’s Hair Loss Story

by Y on January 3, 2008

After 2 Years of Hair Loss, I Gratefully Found You - Rachel's Hair Loss StoryHi there. I can’t begin to tell you how grateful I am to find this site. After 2 years of suffering in silence, I found reference to you on web-med. My lucky day! I cried at the compassion and sympathy that I found on the very first page. Thank-you!

My hair loss started after I had some children sleep over that had lice. I didn’t suspect lice until my head had itched for 2-3 months. I thought that I was having a re-action to shampoo or conditioner. Then, I put a fine tooth comb through my hair and big ole honkers fell out. Disgusting! I did not use toxic chemicals to get rid of them or I would have suspected that. I used tea tree oil, lavender oil, etc and left them on my head under a shower cap for a week and I combed out the eggs with a nit comb. At about this time (coincidence?) I started to lose my hair. I went and got a perm to feel better and even more fell out and broke off. I thought that my loss was lice and perm related, but it just kept falling out. I went to a MD and she took ferriten and thyroid test. Ferriten was low and she was convinced that was the cause. I begged her to take aggressive action to get to the bottom of this, but she said no, that any other Doc would think ferriten.

Well, 6 months later ferritin is normal and I am still losing hair. I have lost at least 1/2 of my previously very thick and beautiful hair. My scalp is very visable and I even bought a hair peice. I wear it in a pony at the top of my head, but suspect that won’t go on for long as it is becoming very obvious.

I finally got the MD to give me a blood test(which I have to pay for because my insurence will not pay for alopecia!). The results of the 4 hormones were pretty normal. Prolactin. testestarone, FSH and DHEA. These were the ones that she wrote for me. I wanted others, but she said no. I needed to find another avenue, so I am now going to do an indepth siliva test which will show a comprehensive view of my post menopausal hormone profile, and not through this Doc. I now know that I need to go elsewhere. Next I will probably go to a dermatoligist to get a scalp biopsy and whatever. [click to continue…]

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What a birthday present, sudden hair loss at 27! – Michelle’s hair loss story

by Y on December 24, 2007

What a birthday present, sudden hair loss at 27! Michelle's Hair Loss StoryAbout a month ago I went to the Dr. because I noticed a severe increase in the amount of hair I was losing in the shower and when I brushed my hair. I am an active duty military member and I don’t know about ‘civilian’ Dr.’s but the one’s on base just seem to shrug off any medical condition as stress related these days. She actually said to me “I used to have really thick hair too; sometimes our hair phases get interrupted and it’s nothing to worry about.” I took a blood test to check my thyroid and she said it was ‘normal’, which to me means nothing because I’ve never had a thyroid test before so how does anyone know what my ‘normal is?! I don’t know if the Internet helps my plight as there seems to be almost an over-abundance of information out there and it’s sort of overwhelming me at the moment.

I just want to know what’s going on. I feel so helpless and I am usually such an in-control person that this is killing me. It started about 3 months ago; I lose about 200 hairs everytime I wash my hair and another 100 or so when I brush it. I am not on any medication and am completely healthy otherwise, no birth control, no nothing! I am honestly to the point of being afraid to touch my hair. I have short hair dark hair and it’s really beginning to be noticeable where my part is. I hate wearing a wool coat because I shed all over the back and collar!

I hate being so obsessed with something that has never been an important part of who I am. I never took more then a minute with brushing it and putting some gel in it. Whereas I used to complain about how thick it was, I am wishing I could go back in time. My partner tells me it’s going to be fine and there’s nothing noticeable but I can tell and it’s driving me nuts. I even started seeing a counselor to try and relax a bit and began taking pre-natal vitamins. (A pregnant friend thinks I’m overreacting and that it’s normal. Only problem is I’m not pregnant!) My mother, grandmother and even great-grandmother still have beautiful thick heads of hair so I don’t know what’s going on. If anyone has any advice or anything, I just feel so out-of-control right now. I just finished reading Taylor’s story and compared to her I feel like a real wuss. =(

-Michelle
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Dear Michelle,

Thanks for taking the time to share your story. I feel like there must be something that is causing your hair to shed at an accelerated rate. No birth control and no medications certainly eliminates a big section of the reasons why women’s hair begins to fall out. You didn’t indicate whether or not you’ve recently (over the last 6 months) experienced something traumatic or an extreme stressful event. Stress still is, and can be a possible cause of telogen effluvium (shedding) although I think often times it gets the bulk of the blame when the real cause is something else.

You also hit the nail right on the head when you indicated that your “thyroid” test is normal. What is normal? It’s not like we have been getting our thyroid tested annually since we were born. I’ve had my fair share of issues with thyroid and it’s primary treating medication, synthroid. Doctors frequently dismiss concerns about hair loss since it isn’t something that can “kill” you. I’ve actually been told that. My opinion on that is that it can certainly kill our spirit, and who we are. Sometimes we lose ourselves as we begin to withdraw more and more because of our hair loss. I frequently hope I’m bigger than that, not to let something like hair loss take such control over me and my life. But it already has, now I’m trying to get it back. [click to continue…]

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Women’s Hair Loss Support Group – Need Your Input

by Y on December 21, 2007

Women's Hair Loss Support Group - Need Your InputHi everyone I’ve finally gotten over my sickness, and I want to thank you guys for your well wishings, I really do appreciate it. Being sick stinks, and I think I have a lower immune system than most so I’m more susceptible to all the germs floating amidst us out in the world. But on with my post…

I received an email a little while back from a woman named Lisa who was interested in starting a support group for women with female pattern hair loss. Here is her story:

I’m 29 years old and have dealth with hairloss since around twenty years old. I have AGA and am going through Tefflogen Effluvium for the 2nd time due to a miscarriage. I have gone through all the motions and emotions that women deal with hairloss. I have tried numerous types of treatments and am currently just using the hair laser treatment, AGAIN, at the suggestion of my husband. I said I would try one more time and if it didn’t work I will start looking for hair replacements, he is hesitant for that to happen. My hair loss is diffuse and I just don’t think its going to return to the thickness I once had.

Now, I want to try to help women, as you do, with your website. I am interested in starting a local support group for women with hair loss, specifically , with FPHL, AGA. Do you have any suggestions or someone I could contact to help jump start this project. I just don’t think there’s enough support for women like us and its time we we act locally. Thanks so much for your efforts, its help me greatly in dealing with the ups and downs of our affliction. -Lisa

I don’t have much experience with how to start live support groups since I’ve never been to one or started one either. I think a good place to start is to sort of get a feel for whether or not women with female pattern hair loss would attend. So the question is, if there was a local support group in your area where you could meet with other women with female pattern hair loss would you want to attend? Next would be finding people in different locations that would be willing to be the “host” or, really the go to contact person for that area. Then all that would be left is putting the word out, which I would be more than happy to use the Women’s Hair Loss Project for posting a bulletin of different locations that are offering support groups. Also Craig’s list would be another great place to post the support group listing. Lisa, where do you live? Why don’t we work on your first support group in your area. If anyone else has any ideas or suggestions on how to get this going please leave your comments and suggestions. I think it is a great idea that you are trying to launch this project, you are right, there really isn’t enough support out there for women suffering with female pattern hair loss, so I’ll help anyway I can. You are the same age as me, and have been we’ve have probably been losing our hair for about the same length of time since you indicated you began losing your hair around the age of 20. Is your husband supportive of what you are going through? Would he support you if you decided to wear hair? It is just awful to have to deal with this… 29 isn’t when we should lose our hair, and certainly not at 20, but I try and always look toward the positive and all that I am fortunate to have. I repeat to myself that “I am not my hair” and I need to live for today because tomorrow isn’t promised to any of us. Obviously easier said than done, but I still try. The worst was feeling alone, but we aren’t, there are so many women out there like you and me. I have received countless emails from women, more than I ever imagined I would. I promise to post every story that has been sent, it just takes time to get to them all. Each one is unique and yet so alike. I hope that you will be able to organize this support group in your area and I’ll help in anyway I can.

~Y

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Hair Loss and Medication – Vicky’s Hair Loss Story

by Y on December 11, 2007

Hair Loss And Medication- Vicky's Hair Loss StoryI’ve just discovered your site and I must say that i,m glad that it exists. This is my dilemma, I’m a 39 year old woman who is experiencing hair loss/shedding and thinning for the last year and a half. I’ve always had long thick hair so this hair loss is a BIG adjusment for me and a lot of people have noticed the change in my hair which of course is adding to my stress and my depression. What I would like to know is this, I took aldactone for a little over 2 months and had some side effects, but only really stopped it because I had an infection elsewhere and I had to get onto medication that contained potassium. The infecton has now cleared up and I’m thinking of going on aldactone again as my shedding has increased again and also I’m also having my period and its seems I shed even more during my cycle than any other time (or at least i think i do). Is it worth going on aldactone again? Is the increased shedding due to the stopping of aldactone? I was also prescribed Diane 35 and Androcur- but have read up on them and the side effects scare me. I’m also trying chinese herbs and a regrow lotion for the last 4 months which has slowed my shedding but not stopped it. I would like to keep what I have left and not take medication that in in long run will do more harm than good. Do you know anything about soya products and hair?Thanks, awaiting your reply.

Dear Vicky –

Thanks for writing. I think a huge consideration is exactly what side effects you were having from the Aldactone and that should definitely be discussed with your physician. You were on Aldactone for such a short period of time that I don’t even know if that is long enough for it to have really have had enough effect to cause shedding from getting off it. Please remember I am not a doctor and cannot give medical advice, this is just my opinion, but it makes more sense to me that the shedding at the 2 month mark could have occurred from actually getting on the pill. Most medication used to treat hair loss all have the possibility of causing increased shedding in the beginning, it can get worse before it gets better type thing and it occurs around that time frame.

When it comes to taking any medication side effects can be pretty scary, but all meds have them. For myself I try to weigh out the possibility of one of the potential side effects to the degree of distress the ailment is causing me, in this case hair loss. Hair loss for me 8 years ago was probably the worst thing in the world, no one thinks they are going to lose their hair at 21. So I was very willing to try anything I could to save it, even knowing that some trouble could occur down the line. [click to continue…]

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