Endocrinologist or Dermatologist – Which Doctor Should I See For My Hair Loss

by admin on September 30, 2007

Endocrinologist or Dermatologist - Which doctor whould I see for my hair loss?I must first clarify and make it known that I am NOT a doctor and cannot provide medical advice, the following post is merely my opinion based on my own experiences.

In answer to which doctor should I see for my hair loss, my opinion is that you should probably see both. Most doctors don’t know enough about hair loss as it is, so seeing doctors in different specialties may actually help you get a better, more accurate diagnosis. I am sure there are various conditions of hair loss that might be better served by seeing one more than the other. Perhaps a dermatologist would be better suited in determining if the cause was an infectious skin condition such as ringworm or scaring alopecia, and an endocrinologist may be better at diagnosing hormone related hair loss. The truth is, any doctor whether it is an endocrinologist, dermatologist, or general practitioner with a strong interest and knowledge in hair loss can make a proper diagnosis and work with you on the the treatment they think will produce the best results. The operative words here are “interest and knowledge.”

Try and find a doctor that seems to care about women’s hair loss, and understands the emotional devastation it causes. I don’t want my doctor to dismiss my hair loss, and I don’t want him/her to tell me it’s no big deal. It is a big deal and if your doctor makes you feel uncomfortable in any way, they he/she is not for you. If possible try and speak with the doctor by phone (believe it or not some doctors will talk to you on the phone first) and if the rules of the office don’t permit this then try and ask as many questions to the receptionist, such as, does Dr. X see a lot of women for hair loss? Does he order blood work? What does he usually prescribe for treatment? The reality of that last question is that their is no “usual treatment” every woman is different and hopefully the receptionist tells you something to that effect. I don’t want to see a doctor that prescribes Rogaine as his/her first line of defense even before making a proper diagnosis with blood work or any other necessary tests. I firmly believe you should not be walking out with a bottle of Rogaine the first day of your appointment. Sure the doctor can probably be able to tell if your hair is experiencing miniaturization, but what about the blood work to determine the causes? Rogaine may be the right treatment for you, but I’d like to know why.

Trying to figure out exactly what is causing your hair loss is going to require a little detective work on the part of your physician. Several lab tests are going to need to be done. I’ll make sure to make another post this week about the standard lab tests that should be ordered to start the process. Hopefully you don’t have to bring the list to the doctors office, he/she should know already. I get concerned when women have to bring a list of tests that should be ordered to their doctor. My feeling is that if they don’t know what to order then how are they going to be able to accurately read the results. But… a good doctor is a good doctor, and if you have one that really cares and takes a strong interest in your hair loss with a willingness to work with you in finding the cause then great.

So what exactly is the difference between an endocrinologist and dermatologist?

Endocrinologist: The clinical specialty of endocrinology focuses primarily on the endocrine organs, meaning the organs whose primary function is hormone secretion. These organs include pituitary, thyroid, adrenals, ovaries, testes and pancreas. An endocrinologist is a doctor who specializes in treating disorders of the endocrine system and who is trained to diagnose and treat hormone problems by helping to restore the normal balance of hormones to your system. Endocrinologists treat many conditions, including:

  • diabetes
  • thyroid diseases
  • metabolic disorders
  • over or under production of hormones
  • menopause
  • osteoporosis
  • hypertension
  • cholesterol (lipid) disorders
  • infertility
  • lack of growth (short stature)
  • cancers of the endocrine glands

Dermatologist: The short answer is a doctor who specializes in the diagnosis and treatment of problems related to the skin, its structure, functions, and diseases, as well as its appendages (nails, hair, sweat glands). The longer definition (as defined by wikipedia) Dermatologists are physicians (Medical Doctors, M.D.) or Doctors of Osteopathy (D.O.) specializing in the diagnosis and treatment of diseases and tumors of the skin and its appendages. There are medical and surgical sides to the specialty. Dermatologic surgeons practice skin cancer surgery (including Mohs’ micrographic surgery), laser surgery, photodynamic therapy (PDT) and cosmetic procedures using botulinum toxin (‘Botox’), soft tissue fillers, sclerotherapy and liposuction. Dermatopathologists interpret tissue under the microscope (histopathology). Pediatric dermatologists specialize in the diagnoses and treatment of skin disease in children. Immunodermatologists specialize in the diagnosis and management of skin diseases driven by an altered immune system including blistering (bullous) diseases like pemphigus. In addition, there is a wide range of congenital syndromes managed by dermatologists.

For my hair loss I’ve seen four dermatologists, two endocrinologists and have spoken about it with my gynecologist, and general practitioner as well as have also seen someone who “specialized” in thyroid problems. All that’s missing is a partridge in a pear tree :) These are the total numbers I can recall over the last 8 years. Since my hair loss is hormone related I think that the endocrinologists were probably the most knowledgeable and most helpful about my situation. That’s me though, everyone’s hair loss and causes are different.

So in closing, I echo my initial sentiments that I would always suggest seeing more than one doctor if possible. Look for one that is not only knowledgeable but one that also cares. Hair loss is not the same thing has having a blackhead removed from your back and requires more sensitivity and emotional understanding on the part of the physician. Ask a lot of questions and do your own research, even after receiving your “diagnosis.” Doctors are people and make mistakes too, this is your body and you have to be comfortable with the treatment.

I would be curious to know what type of doctors other women have found the most success with, Endocrinologist? Dermatologist? General Practitioner? Leave a comment below and let us know.

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{ 192 comments… read them below or add one }

jeni October 2, 2007 at 1:02 am

I’ve been to one Endocrinologist, probably 5 Dermatologists, and a Trichologist for my hair loss. I agree that you will probably need more than one doctor to get to the bottom of the cause of your hair loss. I wasn’t really happy with any of the doctors I saw (which is why I kept finding new Dermatologists). I even went to a Dermatologist “specialist” in hair loss at UCLA, and he just said I had TE and told me I could try Rogaine to jump-start my re-growth, but otherwise he had no suggestions. I think the most valuable visit I had was to a Trichologist, because he was the most caring and had the greatest knowledge about hair loss. He, along with some of the Derms, told me I had TE, and no miniaturization.

Anyway, I’m kicking myself now for not writing down all of the info about my doctor visits, because this was all a few years back, and I got so frustrated that I just stopped researching hair loss since it never got worse (or better). I’m going to start writing about all my hair loss stuff soon on my site.

jeni October 2, 2007 at 1:10 am

I forgot to mention I’ve probably been to 4-5 different OB/GYNs also! Plus one or two General Practitioners! The crazy thing is that I don’t have good health insurance, or I would have been to way more doctors! I just wanted to find ONE that was really knowledgeable about hair loss!

Shelleo October 10, 2007 at 10:54 pm

I have seen 2-4 dermatologists over the past 20 years for hair loss.
They always told me there was nothing that could be done.
After searching the internet constantly, I found the website
of Dr. Geoffrey Redmond. He is a endocrinologist who specializes
in women’s hair loss
http://www.hormonehelpny.com

I bought his book and decided to fork out the money to travel to
NYC to see Dr. Redmond. He put me on Spironolactone and within
a month, I notice little hairs growing on my head, and my hair was
alot less oily and my acne started going away.

My recommendation is arm yourself with info and find
a sympathetic endocrinologist. Dr. Redmond’s book was so
helpful to me. I bought a used copy on Amazon for only
$7.00. Don’t give up!! If nothing else save your money
and take a trip to NYC to see Dr. Redmond. It was money
well spent plus I got to see NYC for the first time.

Susan October 17, 2007 at 7:06 pm

I’ve been to five doctors. Two of them made fun of me. Only one doctor was remotely interested in my hair loss. He prescribed propecia, mens Rogain, and told me to take 2600 ml of biotin a day. My hair is still falling out. I am almost bald. None would give me any tests to determine the cause (other than thyroid, which has been done twice). The doctors tell me it is hereditary. If they could see my family, they would know that is not true. No one that I know of in my blood line has lost their hair. I am beside myself. I barely leave the house anymore. I wish I could find some help somewhere.

admin October 20, 2007 at 10:28 am

Susan – I am horrified to read that two of your doctors actually made fun of you… oh my gosh that is awful! I’m so sorry you had to go through that. I am also surprised that your doctors wouldn’t do any bloodwork other than thyroid. What City/ State do you live in? Maybe someone can recommend a doctor in your area that would be more helpful. While many times bloodwork results end up coming back normal there is that possibility that your results would point to something that may be the cause of your hair loss, especially since you say you have no genetic hereditary hair loss in your family. I know you stated your hair is still falling out, but do you see any results from the propecia and mens rogaine? When did your hair loss start?

I understand how you feel, I really do. I’ve spent so much time crying that I’m certain all my tears could have filled up an olympic size swimming pool by now. You must not give up hope, even when it seems there is none. It is so important. Without that I don’t know how I would get by. Once you say what city/state you are in, I really hope someone can recommend a good doctor. I think that is part of your despair, that you haven’t really been heard out by a physician and received the bloodwork you want and are entitled to.

You are among a lot of women who understand what you are going through, you are not alone.

Mi April 7, 2008 at 6:37 am

Dear All;

I want to really thank you for your posts. I’m at the beginning of my hair loss solution journey. I’m in my 20′s and it’s becoming increasingly hard for me to want to leave the house with my hair like this.

Susan, I feel for you and hear your pain. I’m scared that I too will encounter a similar reaction, people are not sympathetic and my experience with doctors in recent years for other things has been less then helpful.

Thank you, Shello as well, I will look into this Dr. and thank you to the Admin, and this community, I am quite literally terrified of this and have heard bad things about Rogaine and other hair loss products.

Has anyone used Phyto. It’s a company that uses a lot of plant products, oils… in their brand and they say it helps with hair regrowth.

Also I’d love to hear if anyone has used alternative methods for hair regrowth with success?

Fran April 18, 2008 at 5:59 am

I’m new here. I’m losing my hair fast, and it seems no one cares, so I was really glad when I came on this group! I’ve been reading your stories, and you have really helped. I need a dermatologist and can’t find one!

I live in Cocoa, Brevard County, Florida. Both my internist and endocrinologist say I need to see a dermotologist, but neither knows one! I’m on my own to find someone and have had no luck. It seems dermatologists here in this area do not treat “hair disorders”!

I am willing to travel to Orlando or anywhere there is a good doctor. Can anyone recommend a dermatologist who can help me?

jann April 23, 2008 at 6:16 pm

I live in Orlando. I understand your panic. How old are you? Are you in menopause or peri or is it purely hair loss not horome related? I have been to a dermatologist I traveled 2 hours to another city. I’m like you, desperate and going from doctor to doctor. It’s a nightmare and I’m losing more hair all the time. Where are you losing your hair? on top? Is it diffuse? I feel like I’ve wasted so much time. I felt in November it was menopause related. I went in Menopause early 40s. wasted months on HRT since January and hair worse on top. I felt like I was in a nightmare and nobody understands. You truly don’t want to leave the house. I went to derm specializing in hair loss. He did biopsies. Female pattern hair loss on top. Folicullitis in back. I had even had hair fall out around nape of neck. But he just basically said nothing. I was waiting for biopsy to come back and more blood work and I said can’t I take something. He said you’re not going to lose any in two weeks. I’m like are you kidding me? every week is another nightmare. Anyway he says take spiro 50 mgs, use Rogaine. Even I know from these blogs you need to take 100 to 200 for female hair loss. Basically I go back and he says hair transplant. Did I mention he does hair transplants. So he does nothing beyond diagnosis except offer hair transplant. I’m like My hair is falling out all over. I need to get it stabilized first. sorry I’m rambling. I’m using rogaine foam. It makes me feel good to use it as if I’m doing something. Been on a month almost. Now just went on finasteride, but jury is out if that will help. But even that I asked for from him and his dose was lower than on these sites. So I asked for higher. I wish I could take spiro, but it upsets my stomach horribly. So I’m going to Redmond. I should have gone in January. I can’t believe this is happening to me. I’m sorry I’m rambling.

Dee May 3, 2008 at 9:26 pm

I guess misery does love company…..thanks for all of the posts. I have just noticed that I don’t have hair growing anywhere, but my dermatologist ( a female) at first was quite interested, but that interest has dimmed. I think that it is because she doesn’t know what to do.

serena May 6, 2008 at 11:59 am

I am feeling horribly. I experience hair loss too and my DHEAS level is high but no one can explain the cause.

Deb May 15, 2008 at 6:29 pm

Thank-you all for sharing. I’m so relieved to learn others have experienced the same thing as I have and feel the same desperation. Just knowing there are other women out there eases the stress.

serena May 16, 2008 at 4:12 pm

I’ve just been diagnosed with PCOS, which can cause hair thinning and hair loss due to excess androgens. My doctor prescribed Yasmin and referred me to see an endocrinologist for further testing.

Geneva June 18, 2008 at 6:47 am

Hi, I am heading to doctor soon and will be asking for tests to be run. Could you please post the “standard lab tests that should be ordered to start the process”? Thanks! :)

kimberlyn June 25, 2008 at 10:41 am

Hi everyone,

I have been losing my hair over this past year but within the last 6 months it has changed texture and still falling out! Now my hair is very coarse and kinky! For 42 years I had long straight-as-a-board hair and now I look like a poodle! Every time I comb or brush my hair handfuls of hair comes out! My hairdresser, gyno, GP and 3 dermatologists have told me it was normal to lose this amount of hair! Many contribute it aging but I find that hard to believe. Finally, my most recent derm said I was low in iron and said that might be a factor. Now, I’m going in to see if I might be anemic. My gyno ran the same tests and said all seemed normal! It’s the most frustrating and stressful event, especially when everyone tells you things are “normal”! Has anyone experienced their hair texture changing over a short period of time? Thanks-

lin July 9, 2008 at 4:52 pm

to Shelleo- thanks for sharing that..i am deciding to see Dr. Redmond..how much did you spend on seeing Dr. Redmond,,did you experience any side affect being onspironolactone

i’ve tried Phyto..didn’t work for me.i don’t recommend it.

Toni July 14, 2008 at 12:44 pm

Hi,

I am a 33yr old woman who has been losing hair for the past few years. I have spent so much money on bad doctors, vitamins that I just did not know what to do? I just had an appointment with Dr. Redmond (NYC) – he prescribed kariva (birth control – low estrogen) and 200 mg of spiro. He told me it will take 2-4months for the shedding to stop and to see some regrowth. I am hopeful. Before him, I went to see Dr. Berkowitz, he put me on a natural steroid pregnolone that REALLy made my hair fall out and created a bald spot. Has any one tried Kariva/mircette?
Thanks toni

Mimi July 21, 2008 at 1:33 pm

Hello everyone. I am a 14 yr old girl that is loosing my hair. I know that may seem young, but I knew it was coming. My father and I have the same hair and it runs in his family to have hair loss at an early age. I have been loosing my hair since I was ten. It hasn’t been chunks, but if you add the hair together, that is alot of hair loss. So I was wondering if anyone had any information they could help me out with, other than seeing a doctor. My mom is taking me, even though we don’t know what to expect. I mean, this is genetic so I’m praying there is a cure somehow to either stop my hair from falling or adding hair on my head. Please help! If anyone has any advice please let me know immediately. I thank you for your time.

Jan July 29, 2008 at 6:56 pm

Well, after breaking down and crying in the beauty salon today I came home to try to find why my hair is falling out so rapidly. I am currently seeing an endocrinologist in Houston for hypothyroidism and he wants to put me on Aldactone (Spiro) but I tried it for one week and got dizzy and am afraid to try it again. I am also fearful to get on medication and have to live on it the rest of my life. From what I’ve read, once you get on something and stop you lose the hair all over again. Has anyone ever been on Aldactone (Spiro), regained hair and got off with no problems? Does anyone know of anyone in the Houston area that treats hair loss? I’m almost certain mine is due to thyroid issues as I can’t seem to get stabilized but I’ve been shedding for almost a year and now it’s falling out in handfuls. My hair dresser, shampooer and the rest of the salon staff tried to comfort me today but I filled their sink with hair when they washed it. I don’t know what to do! I’ve been to 2 dermatologist who suggest Rogaine, this endocrinologist who suggests Aldactone…what to do? Anyone have any ideas? Thanks!

Kathy July 29, 2008 at 9:33 pm

If a pill would make my hair regrow, I wouldn’t hesitate to stay on it for life. I guess it comes down to choices and that would be my choice.

sami August 22, 2008 at 10:30 pm

Hi everyone, I am a 19 years old girl that is loosing my hair. I started to lose my hair since I was 14. once 18 I decided to go for a hair transplant surgery. I wanted to feel as any another girl and be confident. I went to bosley may 2007 and did the surgery. They told me it will take 6 to 8 months for my new hair to grow few inches. I went there after 6 and after 8 months but unfortunatly we havent seen any growing hair yet. The doctor told me that it depends from one person to another and it might take me from 12 to 15 months. I went to see him yesterday and by then it was almost 15 months… he walked in looked at my hair didnt say any word for a while and then told me: “I am going to give you your money back” I cried right away for a while I couldnt take it. I haddreams and hope. I imagined my life differently after the surgery. Anyways all that to tell you guys if you wanna go for a hair restoration AVOID BOSLEY. I live in boston nd went to the bosley place in the newbury street. I believed them because of all their advertising. Now i dont even know what to do. School is almost starting and i dont feel like going. I wanna look nice and feel relaxed. I feel the pain every morning before going to school. I cry every night when I get home. I need to find a solution. i thought about extensions but cant go for them cuz i am scared to lose more hair. My God help us!

hope August 31, 2008 at 4:08 am

Hi everyone. I too am suffering with hair loss. I first noticed it 2 years ago, but really took notice this past summer. I am in my early 30s and single which has made things worse. it is hard to date and meet someone when you yourself are not very confident. I do have hope. Aside from strong prayer, I have gotten hope from Dr. Geoffrey Redmond. I am also a physician, so after reading his book which I thought was logical and truthful, I decided to go see him. I have spent countless hours online researching into what would be right for me. Here is some of my insights.

I have used Rogaine (5% – the real risk is if your pregnant, or trying to get pregnant. I didn’t think there was a point to taking “women” rogaine which is a 2% solution). You can buy this in sam’s club with no prescription. I think it may have caused some stabilization but it was hard for me to use it because it would make my hair oily and the thinning would appear worse. So I use it randomly and not twice a day as it should be used.

My visit to Dr. Redmond (endocrinologist) was very informative. First, he confirmed that I was not going crazy. I am sure many of you have heard that from loved ones. It is true that was is noticeable to you and your eyes is not noticeable to everyone else. I do try and live each day to the fullest right now and not let what the future might hold (worse hair loss) bother me, but it is tough. After alot of normal tests, Dr. Redmond confirmed my suspicion that I am suffering from androgenic alopecia (AA or women pattern baldness). He has put me on sprironolactone 200mg in the morning and Yasmin (birth control) in the evening). I just started on this regimen so I will keep you posted. Here are the tests that he wanted to me to get done:

-total testosterone, free testosterone, DHEA-S, Blood Count, Iron Levels, TSH, Estradiol,
Prolactin, FSH, chem., 17-OH progesterone

It is expensive ($700) to see him. He does give you a bill which you can submit to your insurance company (max reimbursement $150-$200). He will send you a lab slip once you sign up for the appt so you don’t have to go through any other doctor to get the labs done. I have regular insurance through work and didn’t get charged at the lab. If you do go to see him, I highly recommend reading his book first so you know what to expect. He spends alot of time with you (initial consultation is 1 hour and 30 minutes) but you don’t want to waste any of that time on questions that he answered in his book). In my opinion, he is a very learned and specialized physician. he has had excellent training and has taken a personal self interest in this. He is the only physician I have seen. I have not yet tried a dermatologist.

In his book he mentions some hair tips:
Hair Health: wash hair everyday or every other day to keep oil off
Don’t pull it harshly in a ponytail
For oily scalp use Neutrogena T-gel, Regular strength
-antiseborrheic shampoo.
-wash in gently, leave in for 5 minutes, rinse and repeat. Don’t have to leave in for a whole 5
minutes the second time. Any conditioner Is fine. Few times a week.
Use only a loose comb in hair. Do not brush as that pulls out hair.
Use low heat when drying. Air dry as much as possible
AVOID FLAT IRON

Finally, I wanted to ask has anyone tried Hair essentials? http://www.naturalwellbeing.com
You can buy this vitamin which contains saw palmetto and other chinese herbs from the above website. I have my periods of profound depression where I want to try everything at once. I am sure this is not a good idea because then you won’t know what worked but it makes me feel better that I am trying all avenues.

I really hope that this helps. I share in all of your saddness about hair loss. God bless.

Lisa September 1, 2008 at 1:17 pm

Hi. I have been experiencing hair loss for about 5 months now. At first, I thought it was related to hypothyroidism, but now after having my levels checked every 2 months for the past 6 months, my thyroid hormones are WNL, so that has been ruled out. What appeared at first to be an overall thinning has changed (noticeable to me just this weekend for the first time) to be an obvious thinning on the top, like men get. I am completely freaked out. I am 34. I went to the store and bought Rogaine today, although it said not to use if you’re female and that it only works on the crown. Does anyone now any good doctors in the Phoenix Arizona area? I want to try to stop this A.S.A.P.

Diana September 1, 2008 at 2:20 pm

Hi,this is really tough for me and I don’t know what to say. I have always lost a lot of hair but I had a ton of hair. However,my mom commented that she noticed that it has thinned out more than usual and it has. And today, I just took picture of the top of my head and see a spot. Like you Lisa, I am completely freaked out, I am two weeks away from my 34th birthday. Sorry, Lisa I don’t know of any doctors except for my dermatologist that I am calling tomorrow and I found an endocrinologist through United Healthcare that I will call. I’m so upset that the crying just won’t stop. What worries me is that I’ve been on aladactone for about a year for acne (but was only at 50 mg) BUT she did up the dosage about 5 months ago (but only consistently take at the 200 mg for 3 months). But my fear is that the aladactone didn’t help prevent it for me. But the thinning out has been noticeable since about May/June of this year so maybe there is hope. Now, I have to put in there I went through a very stressful period from March until now. And had a rapid weight loss of 35 pounds (went from 168 to 133) and I’ve been doing a lot of running. But my concern is my sister has female pattern balding and so does my mom so I am very worried. My sister said the doctor said to up her protein and get super b-12 complex which I started two weeks ago, my sister said she has seen some regrowth. Today, I went and got biotin, magnesium and iron. And bought Nioxin shampoo as i heard it help give the appearance of more hair. I am calling the doctors tomorrow in hopes that it really was just my rapid weight loss, I have to admit I was under a lot of stress and barely eating, I’m eating better now though but again it runs in my family and I am completely freaked out. Lisa if I have any success I will let you know who my doctors were. Know that I too, live in Phoenix and am going through the same thing. It is hard, now I am afraid my boyfriend will leave me. Keep faith.

Diana September 2, 2008 at 6:24 pm

Lisa, don’t know if you are out there and reading this but I called my dermatology office today. I have worked with them since about 2003/2004 when I had severe cystic acne (it is about as bad as hair loss in dealing with it) and together the nurse and I were successful. I have hope, I got in to see her tomorrow and I’m taking all the meds/vitamins I am taking. Call Arizona Skin & Cancer Institute, they are in Chandler AZ right by Chandler Regional. I’ve been in tears all day because a clump came out. I thank God for my beautiful children who were there for me through the acne and my mom. You just listen to me talk about what I am going through. Getting through work was hard today. Anyway, Lisa call them and try to get in. I don’t know if I will have success but I’ve done a lot a research and I know what to ask. I did look up symptoms of protein deficiency – strange I had great hair in October 07 and my nails were really hard and now they are brittle and breaking and my hair is falling, I also went through a couple of weeks of this werid swelling of my arms, legs, feet, hands in April. And have been constipated, and my running isn’t giving me the usual firm legs, all signs of not enough protein. Maybe I’m grasping at straws but anyway…hope you are doing ok.

Lisa September 2, 2008 at 7:07 pm

Thank you Diana. If you find out any more information, I would appreciate it. I have a dermatologist across the street from the Skin and Cancer Institute. I’m still not sure who to start with, the dermatologist or an endocronologist. I left a message for my PCP today to see if she is comfortable working with female hair loss or if not if she could refer me to someone who specializes in it. I will let you know what I hear back. In the meantime, thanks for your support. Take care.

Diana September 3, 2008 at 5:59 pm

Hi Lisa, hope you were able to speak with your doctor. I also talked at length with my mom and sister and feel a little better. My mom has hair but it is very thin but I forget she has had surgeries and takes a lot of meds for various conditions and she knows this has caused her hair loss. My sister has PCOS and that has made her hair thin out. I had a good appt with my dermatology nurse. She sat and talked with me and listened and was very interested and caring. I cried for about half the visit. She examined my head and does see the thinning but it isn’t consistent for androgentic alopecia and there aren’t any just out of nowhere hairloss in the family (she seemed more concerned with females than male relatives). What I haven’t stated is that I don’t handle stress well, the last time I underwent major stress was with the acne and she thinks it has taken on another form. To be as brief as I can besides taking two night classes, working full time, single mom no help from their dad ( a teen daughter and preteen son!), major stress at work, separated/divorced, financial stress, found out my dad’s prostate cancer came back, aging parents (they can’t take care of things like they used to and I’m living with them and it’s on me now), and just found my ex husband (not my kids’ dad) has lung/brain cancer and we aren’t on speaking terms and we work for the same company, oh yeah and I have new boyfriend. The last of this list happened all this month. I know I haven’t been eating well, and with the constipation if I’m severely stressed it runs right through me, then I know its bad. So she and I decided to go with biotin & a multivitamin, see my PCP she really wants me back on anti anxiety pills, I will still see him but I want to talk to him more at length because it can cause hairloss, we are continuing my 200 mg of aladactone, my orthotricyclen, eat better, I do have regrowth in my bangs. She is very concerned about my mental health (my BFF says to me “how is my ball of nerves today?” that’s how bad I am!). I know I just need to manage it better and talking to her was the first step because she too went through a stress shedding period (I do remember it, it was a year ago) and her hair is coming back in. She said it will come back for me. But for my own psychological health she said for me to get the rogaine foam for men and use it, just so I can see regrowth faster. She said they say not to use if for women because of the pregnancy issue and that isn’t a factor for me. I also had burning and itching but with the use of Nioxin it is better. She also said only wash my hair once a day (I usually do twice), and use low heat for my hair. She is going to see me in three weeks.

At this point it is stress and nutrients for me. At least that is what I am hoping. It’s a vicious cycle because you lose hair, you freak, you worry, and you lose more!

I know your issues may be different but that’s my story…Lisa, let me know how you are doing…

Take care.

Denise September 3, 2008 at 6:36 pm

About 2 years ago I lost approximately 50% of my hair and the quality went from thick, strong, straight, healthy hair to thin, weak, frizzy, kinky dry hair that not only sheds but breaks and flakes off pieces at my ends. My skin has become very dry and my nails have become weak also. I went to an endocronologist that put me on 125mg spironolactone which had been increased slowly over a period of a year. He also decided he wanted to give me a layered approach by adding on 2 other medications over a year, one was Glumetza ER 500mg twice a day and Actos 15mg once a day. He said my DHEA was a little high and that these drugs used for off label treatment would help grow my hair back. My hair stopped falling out and a little grew back but the quality of my hair was still very sickly almost like someone on a chemo drug. I was concerned about my liver and stopped taking the drugs, unfortunately my hair started shedding again.

Pam Zoellner September 6, 2008 at 12:51 pm

Hi ,
I need help. I have been taking Elavil for sleeping for years just reccently I have noticed alot of hair loss and I am so worried. I also take synthroid. and just got off of cytomel because that also causes hair loss.I found out by going on line that taking Elavil and synthroid together it can cause hair loss and heart rhythm disorders. I have been having lots of heart plapations too. Does anyone know if you stop taking Elavil will the hair come back or if you chance snythroid to another drug? let me know we need to stick together on this.
Thanks Pam

serena September 11, 2008 at 3:01 am

Diffuse female hair thinning and hair loss during premenopausal age is usually not heredity. It is usually caused by hormonal imbalances seeing in PCOS or thyroid disorder, nutritional deficiency (low iron), and stress. Women with PCOS produce high levels of androgens such as testosterones and DHEAS. The ratio of LH and FSH is also more than 2. Make sure you get your sex hormones check if you notice your hair thinning.

vicki montoya September 29, 2008 at 2:35 pm

i was diagnosed with sjogrens about ten years ago and was told that it affected my kidneys ,skin and i started with thinnig hair i have tried rogaine
it seem to help .but now my hair is very thin on the crown and back of my head.is there any medecine or treatment that is available I would like some help or a docter that can treat it,i feel so ackward even discussing this problem i’m in my seventys but always had alot of hair .PLEASE HELP IF YOU CAN WITH ADVISE. THANK YOU FOR THIS WEB SITE

BARBARA ALLEN October 3, 2008 at 2:35 am

HI, I ALSO HAVE SORGENS SNYDROME AND HAVE THINNING HAIR.MY DR. TOLD ME THAT UNLESS THE SORGENS IS ACTIVE IT WILL NOT CAUSE THINNING. I HAVE MY SEDRATE TESTED TO MAKE SURE I AM NOT IN AN ACTIVE STATE.SO FAR SO GOOD BUT STILL HAVE HAIR FALLOUT. ALL MY BLOOD WORK IS NORMAL. PX. IROGAINE BUT I AM SO SCARED TO USE ANY THING AT THIS POINT.

Ali G October 7, 2008 at 2:05 pm

I am 20 and have been losing hair since I was 17. It is such a confidence killer. I really do miss my beautiful thick and black hair. Now my hair is thin and a bit gray as well. I only think of it sometimes…but I used to be so depressed i can barely get out of bed. Whenever I am talking to someone, I always wonder if they are looking at my hair. I am currently using Rogaine for Women…it worked one summer when I was following the regimen religiously. However, I am so bad with routines, so now I try to remember to put it on my scalp morning and night. I recently also started to take Shen Min Hir Nutrients…not sure if it works yet. Does anyone have any advice? I really want to get a hair biopsy but I don’t know how. The places I called offered scalp analysis to prepare for hair transplants…which is not something that I am considering. I also saw 2 derms, one didn’t know what was wrong and only offered Rogaine as a solution, and the other said it is androgenic alopecia. I think I might have hormonal problems, but really not that sure. My scalp is always oily and so is my skin. Before my hairloss, I had really itchy scalp. Now it’s still oily but I wash it every other day. I also dye my hair to hide the gray. Sometimes I just feel so ugly and depressed in thinking about my hair. Beautiful hair is the only thing that I want back.

Tish October 21, 2008 at 2:19 am

I stumbled on this website accidentally and am amazed at all your stories. I think it’s so wonderful that you all support each other in this way. I’m so sorry that you’re all missing your beautiful hair that you previously had. I am 51 and don’t really know what it would be like to have beautiful hair. I’ve always had what my mother calls “Peter Pan” hair. It never grew up. When I was three years old, I finally started to grow some hair. It got to be the way some other very young childrens’ hair was–very soft, thin, and fine. There just wasn’t a whole lot of it to begin with. You could easily see my scalp in a lot of places on my head. Well, over the course of the next 48 years, the only change in my hair is that I’ve been steadily losing what little there was to start with. I’ve never been able to put it in a pony tail or pig tails because it looked ridiculous and the scrunchy or rubber bands wouldn’t stay in anyway. There just wasn’t enough hair. I’d have to twist the rubber bands around like 20 times to try to get them to stay in–unsuccessfully. I started to notice the diffuse thinning around the age of 30. Now, at 51, people are always asking me if I’m on chemo. I’ve seen a doctor for the depression and anxiety after my separation from my husband 10 years ago and the resulting loss of my 7-year old son, but not for the loss of my hair as I thought (and was told by my internist) that nothing could be done for me. I was very ill with the depression for years, and even now can only work PRN at my hospital; but on the days I’m not working, I don’t leave the house, I don’t eat, I don’t even get out of bed. I don’t think my hair loss is due to the Effexor XR that I take for the depression, but I’m wondering if it could be from the poor nutrition and the fact that I take no supplemental vitamins. Should I go to a doctor even at this late date? The thinning has gotten so severe on my temples, crown, and above my ears that I wonder if improved nutrition would even help. What kind of doctor would I see even if I thought it would help? I’m very embarrassed by the way I look, and very lonely since I can’t date because men want nothing to do with me and most women seem embarrassed to be seen with me. I’ve tried to live a happy life despite the way I look, but I think it would be wonderful if there were actually some way I could be helped to look like a normal woman. Does anyone have any advice? Thank you for taking the time.

Charlene October 21, 2008 at 1:34 pm

Can anyone recommend a good endocrinologist and hair loss specialist in the Phoenix area?

Chris October 22, 2008 at 5:01 pm

I am so so grateful and want to thank everyone who has contributed to this forum. I am 52 years old, and in June of this year my Obgyn said it was time for me to get off Birth control pills , as I was getting too old and the estrogen levels would be dangerous at this time. I had been on BCP since the age of 18 with a break from the age of 35-38, and always been under the impression that BC pills might cause hair loss, but was totally unaware that when you came off them that the real deal happened. He just casually said, don’t take them and we will see if you are in menopause. Well I did and 2 months later (mid Aug..) I went straight into menopause, hot flashes all day, night sweats, etc., Then came the shedding, TE, as I am to understand. By mid-September the texture of my hair felt strange and the hair on the right side/back of my hair thinned out considerably, and I was developing a bald patch. Having always had very thin hair that I was always self conscious about (I had to wear a wig as a child, as I had monilethrix an inherited hair disease, which went into remission, but the hair loss caused terrible self esteem issues throughout my teenage years.), I cried my eyes out, then went on a quest to find out who to see. Derm, another ObGyn or endocrinologist? From everything that I had read, everyone went to countless doctors to find a cure. Having dealt with my HMO over the years to get a quality specialist in different areas, I knew I would be bald by the time I found the right doctor. Then I came across this forum, like Hope in Aug, I have spent countless hours on the internet in search of a solution. Thanks to her post and Toni on 7/14/08 and Shelleo, I found my answer. I called Dr. Redmond, in New York, and prayed that I could get an appointment right away. My prayers were answered, and I have an appointment this coming Monday 10/28!! I will be getting his book I the next day or so, as recommended, and truly feel, from what I have read, if anyone can help me, he is the one. Thank you for sharing your stories. I will make sure to check back, so I can, too, possibly help someone else.

hope November 1, 2008 at 6:07 am

Hello. Chris, I am so happy that you made an appt to see Dr. Redmond. How did it go? I really hope it helped. i have been on treatment now for almost 3 months. Dr. Redmond told me to be patient, that things could take a year to improve, but I do feel mostly that things have stabilized. In my work (i am a physician) I have seen alot of sad cases in the last few weeks. Young patients with major illnesses, some possibly incurable and fatal. It has made me really sad. It has also made me realize that regardless of what is happening to my hair, I have to try and be happy. I have to be thankful that I am healthy and have wonderful family and friends. Not that it is a consolation, but for us, our illness is on the surface and not life threatening…unless we make it by the psychological part. Thank you for everyone who has contributed to this website so that I can deal with the psychological part better. I am doing research into wigs now and will let all of you know when I have more info. Supposedly there is a soap opera star who was bald at 14 and has been wearing wigs for a long time. She has made a line of wig’s I think called Amy’s presence. It seems that she has led a happy life despite her hairloss. Once I found out more, I will let you know. I know its not a cure, but at least it is a remedy. One day at a time, I know we can all get through this. Be well.

Angela November 5, 2008 at 5:02 am

Hi Chris and Hope,
I would like to encourage you to join the Network if you have not already. There are so many wonderful women in this beloved Network that would love to hear your stories. The emotional toll that hair loss can have on women can be devestating and knowing that we are not alone helps to set us on a firmer foundation as we walk this journey called “hairloss.”
I look forward to seeing you both there. There are quite a few ladies that have experiences with different wigs and head coverings, including a really wonderful stylist that works with women who are losing their hair. She can also be of great help for those looking into different wig or hair system options. Her name is Mystique and here is her page:
http://community.womenshairlossproject.com/mystique

Chris November 18, 2008 at 5:20 pm

Hi Hope,.
I’m so glad you saw my post, and wrote back. Thank you again for writing about your experience. At the time I read it, I knew that was the path I had to go. I have a treatment plan, and intend on it being a successful one (I’m so trying to go from being a negative person to being positive, it really makes a difference). I have joined the network, and hope you do as well,. Angela, is right, there is so much caring, understanding and sharing of knowledge here, that so help with the emotional part of this thing called hairloss.
All the best, Chris

Lea December 6, 2008 at 11:30 am

Hello all. First, I would like to say that this site is absolutely amazing. I have never felt so touched in my life. I too suffer from hair loss. I cannot really say what the cause is because I have never been properly diagnosed–still searching for answers. I have been to many doctors and have had many blood tests only to get back normal results (which I guess is good) but how can this be? What really amazes me is when I discuss may hair loss with my doctor, whom ever it may be that day –Endo., Derm., GP., they never seem to really want to help or maybe they just don’t know. I have spent so much money on so many different doctors and it is as if they all go by the same book. Where does one go to seek answers? It really is a sad situation. I believe that all the doctors that I go to must be going through the same type of training and education. Maybe I need to go to a doctor that just got out of med school and hope and pray that he/she learned something new instead of the norm–Purchase Men’s Rogaine….Jeez.

Okay, on the latter side if things, I would like all to know that with or without hair you are all beautiful. I don’t know you but I know what I have read about you and you all seem so courageous. I know how much it hurts to see so much of our hair falling out or gone but we have to be strong and realize that it is not the hair that is going to make us but our hearts. Diana, please stop stressing so much. Stress is the number one killer. My father always tells me that I worry so much but he constantly reminds me that if I was to leave this world who will be here to take care of my babies? Find happiness and comfort in God. Seek answers by praying. My prayers will and have been answered and they keep continuously getting answered…because without my prayers I would not have come across this website.

Good luck to all in your journey to finding a solution to our problems. If I find something that really works, I will be sure to post. For now, I will continue to experiment.

Kristine January 6, 2009 at 8:08 pm

HI, I am 31 years old and suffering from rapid hair loss on the crown of my head. . I too have had normal blood results and told that there is no answer to my balding . . . I am waiting for biospy results from my scalp but currently have intense burning/inflammation right where I am balding. Anyone else experience this ? It hurts to have my hair blow in the wind, or move it, or comb it ? ? Thanks for all the support.

Kari January 8, 2009 at 7:59 am

Kristine-

I have a burning, sore scalp too. I mentioned it to my Derm. and he said “Yeah, that happens” but didn’t offer up an explanation why. I guess it’s just inflammation?

I noticed yesterday that my scalp was fine until I went and worked out. I don’t know if sweat/oils has anything to do with it, but it started burning after that. Then this morning I seemed to quite a bit of hair – more than yesterday morning. I’m trying to get my weight down, hoping that will help the hair loss, but if I just lose more after exercising what am I supposed to do?!

TL January 14, 2009 at 11:08 pm

hi all! I am thrilled to have come across this site. I feel more positive about my hair loss than I have in months. Already got some good ideas to try.
My hair started falling out in 2007. I had a great deal of big bushy hair to start with, so I wasnt really sure at first if I was losing it or not. I started noticing it on the floors and in the shower. Now I have noticeable bald patches at the crown and thinning everywhere else.
First Dr.I saw was my regular dermatologist. He basically said I should “try not to stress so much” and it would grow back. My neurologist wasnt happy with that answer either so he sent me to another derm., she checked my iron and put me on Chromagen?. 6 months later, no new growth Then she said male pattern baldness, use men’s rogaine and that was it.
Well, I have OCD, and I just can’t do the Rogaine. I just cant seem to get past the disgusting scent and the way it makes my hair and head feel so gross. I’ve never been able to even stand hairspray in my hair for the same reason. After I use it I have such an overpowering need to wash it out,(and I have to) so I dont think Rogaine is for me.
I am 44 and in menopause too. Woohoo! I also have neurological problems and have taken some serious drugs for long periods of time, including
Depakote, Topamax,Neurontin, Bextra, Elavil, Carbidopa/Levidopa,Lyrica, Klonopin, Provigil Zonegran and so many more I cant even remember now.
I had Melanoma a few years ago, a wide-excision surgery and lymph node(s) removal. I also had sleep apnea and then surgery for that. Also had a hysterectomy 10 years ago for excessive bleeding,I’ve had the clotting factor tests w/normal results though even though even having my blood taken will cause me to bleed alot and bruise.Each time I’ve had surgery, I’ve had to stay in Recovery a looong time because of the bleeding.(hence the clotting tests) Have been anemic most of my adult life too.I am under a lot of stress(have always been) I mention all this in case it rings a bell w/anyone else.
Sorry for such a long post. I actually feel a little better! I am going to make an appt w/an endocrinologist tomorrow. Thanks for listening.

Justamom February 12, 2009 at 10:28 pm

Dear Group;

I am a mom with a daughter who is 18 years old. In December 08, her hair dresser commented that she had a bald spot at the back of her head. I have urged her to see a physician and finally today she went. I received a phone call from her crying so hard I struggled to understand her. The physician, not a specialist, in a 3 min visit told her she had alopecia and that she was going to go bald. She was told there is nothing she can do to treat this illness.

She arrived home to collapse in my arms. She is emotionally devastated. I know little of this illness except what I have just read on the internet. I am feeling really angry with this physician and his inappropriate bed manner.

Interestly enough before today, I had even thought to myself that her hair was looking thinish. Tonight, we had a look together through her tears. Her 1 spot is now 2, the hairline on her forehead has receaded huge, and in the last month her face has broken out in acne. Is this related??

Is it possible my daughter will be one of the more unfortunate to be completely bald?? Just how bad is this going to get???

A girl 18, in college, gorgeous (and not because I’m her mom). Her life is school and looking good.

I told her to focus on finding a dermatologist and getting information, try not to think about what might happen. Oh ya right!!

Are there specific qualifications you would look for in a dermatologist? Is there a physician that you know of who has been professionally recognized in this specialized area?

Your experience and direction is most appreciated

liz March 3, 2009 at 2:58 pm

I too have problem with hair loss. I had seen a dermatologist that charged me $85 just to pull my hair and told me nothing wrong with me. I told her my hair normally fall off a lot when I wash me hair, but she insisted that my hair is healthy. She spent approximately 5 minutes with me. From that experience, I don’t go see anybody else about my hair, bad experience. That was 10 years ago. I am not 43 years old. I just don’t trust the doctors any more. I still have problem with my hair so if any of you know a recommend/good caring doctor(s) in Houston Texas, please let me know. Thank you.

Bea March 24, 2009 at 3:58 pm

To All,

Ive had it all with Doctors, rude with no bedside manners. Do your own research and check out a Holistic Dr., which I will try after seen all the others.

Tanya March 24, 2009 at 8:15 pm

Hi Just a mom,

Sorry to hear about her incident. Unfortuantely, I had issues around her age. Doctors often will say that there are no issues or nothing can be done, but that’s not true. There’s a few things she can do and the sooner she does it, the better. Regrowth may not occur, but maintance may. She should go see a dermatologist that specializes in this area (or at least has some knowledge about it). One way to do this is to check out the American Academy of Dermatology website. If you check out their annual meeting, you can find out who is doing research in this area and/or giving talks. It would be really important to find out why she is losing her hair. It may be alopecia, but there might also be other reasons she’s losing her hair. Her PCP might be able to gear you in the right direction and/or do some blood work to eliminate the “usual” suspects as to why she may be losing her hair.

If it is really alopecia (again, check with your doctor to make sure there’s not other reasons she may be losing her hair), then rogaine may be an option.

Here are a few areas to start or to research. I hope this helps. Please note, I am not a physician, so this just my opinion. My views and comments on the subject should not be taken as medical advice. Seek the advice of a medical professional when cosidering medical and surgical treatment.

Rin April 3, 2009 at 12:07 pm

I’m 26 and started losing my hair (in the course of about a month) one year ago. I’ve seen three doctors about it. The General practitioner just pulled my hair and said it looks like my hairloss had already righted itself. Well, I didn’t believe her. So I went to a derm and he said he saw little regrowth hairs so it was just temporary hairloss and if, for some reason, I haven’t regrown my hair in to a noticable length in a year to come back to him for more bloodwork. (I had gotten my thyroid checked in my yearly physical and they said it was just slightly elevated . However, they told me this was not enough to put me on medication that they would check it again in one year) It has been one year and I think my hair is actually getting thinner. I’m just panicking. I’ve always had thick, straight as a board hair like another woman on this post had said, and now it is very thin, breaks easily and is ‘kinky’. I don’t understand why its kinky, why would my really long hairs that took years to grow now start to be damaged and kink when they fall out? I never got split ends, I never had short hairs fall out and when my hair did fall out in its normal pattern it would always fall out in one long, straight, thick strand. Does this mean I have a miniaturization of my follicles that has been going on for years? That maybe my hair strands are growing back thinner? I agree with another girl on this site that said she feels like there is no hope now. I was assured by my derm that my hair loss would not get worse. This helped me to cope a bit because instead of looking like someone with thick hair, I just had to look like someone with thin, wispy hair. I thought maybe I could deal with that, as long as I didn’t have to go bald. Well as much as this site has encouraged me in that ‘misery loves compay’ I now see that there are very few solutions and left untreated it can make us bald! I might also mention that I was never on birth control, and have no idea why I just suddenly started losing my hair. However, I have always had PMS and heavy periods. I guess I just want to know, is this for sure a problem with my hormones? Is it because my thyroid is slightly elevated? Should I even bother going to a doctor anymore? How can women as young as 18-30 be getting this problem? I guess I just am in that panic mode, where I really just want some reassurance that the odds of this getting better are good. I’ve past that one year mark of when I’m supposed to know if it was temporary or not and so now that sense of panic is renewed. Is this just going to keep getting worse? What do I do!? I hope some of you have some comments that could help me out. Thanks for listening to me rant.

Vicki April 11, 2009 at 1:11 pm

Wow, I just started doing some research on this because I have been having problems with my hair thinning on the top of my head for several years, along with some sensitivity. I went to my internal medicine Doctor and he didn’t say much, which struck me as odd… he referred me to my women’s doctor who was slightly more sypathetic but offered no suggestions other than to see a dermatologist. I have been putting it off because I feel like I am getting the run-around. I see that I am not alone!
I have also tried to put this in perspective and remember that there are alot of worse things that I could experience. It has really made me self conscious.It is very scary to think that it might get worse . Does anyone know of a good dermatologist and endocrinoloist near Tampa, Florida?
Thanks

Dana April 15, 2009 at 3:09 pm

I too have been having bad hair loss. I am 25 years old and since the birth of my second child 2 1/2 years ago, it has not stopped. It is normal for it to fall out for a few months after child birth so I wasn’t too worried at first. After about 6 months it started to slow down then all of a sudden started up again. And has been falling out ever since. I am really thin in the front and around the temples and just recently, has become really unhealthy. It breaks and is very course. I have been to 3 derms. and 2 PCP’s. All my lab work has always come back normal. And they just tell me to use Rogain. The past 6 months I have been trying to get pregnant again and haven’t been able to. I got pregnant with my last 2 very easy and feel that my hair loss and not being able to get pregnant are intertwined. I also have gained about 15 pounds. I don’t want to use the Rogain because I am trying to get pregnant and don’t know the effects it will have if I did get pregnant. I don’t know what to do next. I am in the Phoenix area so if anyone know of any good docs around here please let me know.

Ariz April 16, 2009 at 4:44 am

I too visited the infamous-overpriced Dr Redmond from NYC. I’m on spiro and all the meds for 7 months, going on 8. Forget regrowth, forget halting of shedding, the rate of hair shedding refuses to slow. (I’m also certain its PCOS and not lupus that causing my hairloss, thoroughly medically investigated my hairloss. ) At the start of my treatment, I cut my hair to bout 5 inch lenght, so I’d easily be able to tell thinning versus halt versus regrowth. And all I can say is, I have less hair than I started with. Unfortunately even a physicians intervention is incapable of helping me. To all those out there, atleast this approach before scratching it off your list, its the least you can do.

Julia June 26, 2009 at 12:38 am

A holistic M.D. was most helpful to me. Dr. Dole in St. Louis Park, MN was very good. He was very thorough, respectful, genuinely inquisitive about health problems, and will order the tests necessary to figure out what’s wrong with you, even though he doesn’t have any particular specialization in hair or skin issues.

The dermatologist I saw was an absolute waste of time.

Shelby July 9, 2009 at 12:58 pm

I am 18 years old and about a month ago i noticed my hair falling out increasingly fast. It has scared me to death. I’ve gone to see my general practitioner and he said that hair goes through shedding stages and that it is normal. It is definitely not normal for me. I insisted that he check my thyroid and my results came back normal. My family just repeatedly tells me that I’m crazy and have no reason to worry. I have just purchased an apartment with my friends and will start college in the fall. I am terrified to begin my new life with a hair loss problem. My hair has always been my best feature. It has always been thick, healthy, beautifully wavy, and I have always received compliments on it. I am emotionally devastated to watch my hair fall out in large amounts just from taking a shower or brushing my hair. It is nice to know that I’m not crazy, or alone. Thank You All!

Carli July 14, 2009 at 12:52 pm

Finally people who understands what I am going through …I am in a desperate search for doctors in the Miami/Boca Raton, Florida area. Can anyone help? I dont know yet what has been causing my hair loss…I had been loosing some hair throighout the years, and sometimes it gets lees severe but lately has just gotten worse and there is no stopping it seems. I had mt Tyroid checked by PCP a coulpe months ago and my iron level also looked normal …getting desperate. Would appreciate some help.

Thanks!

Maria July 16, 2009 at 4:58 pm

Hi, I am now 25, I have been losing my hair for the past 6 years. I did find an excellent Dermatologist in Orlando, FL Dr. Crotty who helped me alot in this whole process. He started me on a regimen of 3,000 mmg of Biotin daily. I also did Kenalog shots (which is a steroid). He did localized injections in the scalp and also in the hip. I also was prescribed Olux E Complex foam to put in my hair twice daily. I had to stop using the Kenalog b/c I thought I was getting headaches from it ( IT WAS NOT THE KENALOG – (TMJ/Migraines). This three regimen combo produce amazing results for me, within months. Unfortunately, my hair has now started coming out in the front and on the right side but I changed my insurance and cannot find a in network doctor that will treat the Alopecia. I am very tempted to just Pay OOP for Dr. C. So anyone living in the Orlando area suffering from this condition please contact his office. They are the most caring individuals ever also. I love them!!!!!

Depressed Girl July 18, 2009 at 1:30 pm

I know that Planned Parenthood offers thyroid screening, should I try there to get mine checked to see if this is why my hair is thinning? I have no health insurance, I’m unemployed, and between feeling depressed and just incredibly tired, I don’t know how I can get a job and wait until benefits kick in to actually see a doctor. It’s so depressing. I always had fine hair, but a lot of it. It was shiny, mostly straight with a little wave, but now it’s just, what I consider to be, disgusting. I hate how my hair looks and it’s gotten to the point that I’m so stressed out I don’t even want to eat anymore. Which sounds awful, but I eat and I feel entirely not hungry and almost nauseated. I think it’s the tremendous stress. I’m afraid to call Planned Parenthood because part of me doesn’t want to know if there’s nothing that can be done, but do you think they can test for PCOS as well? My periods were always normal. I got it when I was 12, about 3 months before I turned 13, and they were like clockwork. Then when I was about 15/16, my grandparents died and that was a major shock and I got a few grey/white hairs, still not thinning/balding. Then when I was 17, I dyed my hair almost black because I was depressed, but hated it, tried to remove the color with over the counter stuff, and my hair turned into straw and was brassy orange. I ended up perming it at 18 because it was so frizzy and a friend convinced me that it’d be easier to just wear it curly than to keep blow drying it straight only to have it fuzz up/frizz up. This is probably tmi, and I’m sorry, but I need to vent. I was raped at 18 (a virgin) by 3 boys. I started eating a bunch of junk and withdrawing. I was always what I consider a chunky girl, but my weight has ballooned up since then. I have so much stress and the stress of this is exascerbating my hair loss I think, but I also fear I might have either hypothyroidism or PCOS, or potentially both. I’m even fearful I could have Cushings. The problem is that I don’t have health insurance anymore and any job I get will take about 3 months to kick in as far as benefits go. I just feel like it’s so unfair. Of course life isn’t fair, but still, it’s like this never ending circle for me. I can’t get to the doctor and get help without a job, but I don’t feel I can actually function without going to the doctor because I feel lousy. Oh, and my periods are all out of whack. I bleed monthly, but it’s like ceaseless. It’s so depressing knowing something is wrong, and having no hope to fix it. Thanks for listening.

Beth July 23, 2009 at 5:09 pm

Depressed Girl–I feel so sad for you because I feel the same anxiety as you do—just not knowing what’s up with your own body is scary, especially when your hair is at stake. I’ve mentioned it in other threads on this site, but I think you should look at stopthethyroidmadness.com for some info about hypothyroid and adrenal issues. There is sooooo much info on there, and you will learn a lot. Once you can advocate for yourself, a lot can be done in terms of doctors (once you do have insurance). In terms of no health insurance, the site I mentioned above will direct you to companies that sell saliva test kits to test your adrenal and thyroid hormones–you don’t need health coverage to order them, but they are a bit pricey, but worth every single penny if you start to get answers…

Good luck,
BETH

Dee July 30, 2009 at 7:21 pm

Thank you all for sharing your stories. I have various health issues including arthritis of the spine, GI problem and Poly ovarian cyst syndrom… I had exetremely thick and full hair all my life 5yrs ago my hair started falling out in huge clumps all day long so much so that I leave huge hair balls under my desk at work… I also have sjordren syn. When I first went to my family doctor he told me it was because of my high stress job… I said that I did research on the internet and that all my conditions were supposed to be linked to hairloss he was mad and said why did I come to him if I had all the answers… I have been to 2 dermos who said its nothing. I went to the only endocrinologist in a 100 plus mile radius of my home who was taking new patients who said that there is nothing wrong with me and that if I cared about my health as much as my hair loss I would loss weight ( I know I not skinny but…) he did not even LOOK at my tests when he came in he said we didnt get your urine samples results back. I said that I went 3 weeks ago. He then said oh here they are… but did not even look at them before his fat comment… since I do not want to swear on here I will just say “jerk”. I cried the whole way home. I went back to my family doc and saw the PA because it seems he is sick of me. Again among other sympt. my hairloss is getting worse… the PA’s answer “yea that’s pretty bad.” (wow I’m paying for this advice ) She brought me back samples and said this should help. it was an anti depressant….I said I am not depressed I am upset that everyone can acknowledge my sympt. but no one seems to be able to help my. My arthritis doctor ran tests only to shut me up and said my folate levels were fine so it had to be stress… not their problem. I came from my 3rd gyno today who said now since my cysts were gone and my test. levels were normal that I can’t have children anyhow then I shouldn’t worry about hairloss… no advice whatsoever about the diease less than 5 mins. $400.00 40 mile trip another day of work gone. This doc. did even think I should be concerned that I cannot get preg. or my pain (so it does not surprise me about the hairloss) I said is there anything else that can cause my hair to fall out besides test. levels he said not gyno related…. He said if you like we can test you again in three more months. I would give up but I know it is not something just in my head or even just a cosmetic problem…. I feel sometimes they just want to milk my insurance dry my running the wrong test so they can keep charge you for the expensive stuff instead of working on a cure for you. The worst maybe is that my family and friends are also sick of me and think I just like attention. From your post I looks like a lot of have similar health and experiences. Although I am very upset I am glad be able to vent to people who also my have be treated like hypocons… and armed me will more info.
Thank you for “listening”.
Good luck all of you.
D.

Chrissy August 4, 2009 at 2:22 pm

Hi, I cannot afford to go to see Dr. Redmond even though I live in NY (he’s just too pricy, I have no insurance, etc…) but I’m going to see the ob/gyn towards then end of the month to get help because I’m convinced I have PCOS (literally all the symptoms) and I was wondering, what birth control is best for hair? I’ve read Dr. Redmond’s site before and I could have sworn that Yaz or Yasmin kept popping up in the faqs section or somewhere on that site as good bcp for hair loss. I realize some people experienced hair loss after going off those pills, but if you have hair loss prior to bcp, I could have sworn Dr. Redmond listed those as good at helping hair loss and I thought some women claimed (elsewhere, not on his site) that they’ve regrown some hair after going on Yasmin. Sorry if I’m rambling, but does anyone know? Thanks. If I have PCOS, which I’m sure I do, I’m pushing for Spironolactone because I’ve read of a bunch of women who’ve had great success at regrowing hair with it, and one story on this site about a woman named “Jen” had great results. I think it took her 2 years, and she allegedly grew back 90-95% of her hair (also taking Metformin, dieting and exercising, and using Nizoral shampoo) so I’m trying to remain optimistic. It’s not just being 27 & single that makes me horrified at losing hair, though it doesn’t help, I’d still be freaking out if I was 57. If I could regrow even 30% to 50% I’d be elated. Because ultimately, I’m holding out hope for stem cells to be all of our “saviors.” Lol. There are 3 companies working on adult stem cell therapies for hair loss (from what I’ve seen here and elsewhere, they are Histogen, Follica, and Aderans) not to mention a Cairo Dermatologist who has successfully helped children with alopecia areata/totalis regrow significant amounts of hair, though only in one study and the results are only preliminary. Who knows. But still, fingers crossed that I can get these stupid hormones under control and stop my daily horror at washing my hair and seeing my once beautiful hair fall away. I always took my hair for granted and often complained about it, but I’d give anything for my thick long hair back. I had fine hair always, but tons of it and I always wore it long. Now I wear it pulled back in a bun to hide as best I can all that scalp showing through. Thanks for this site, it’s keeping me from going off the deep end.

ThereIsHope August 13, 2009 at 8:05 am

I had an amazing dermatologist who cured me of my acne b/c she sent me to an endocrynologitst who did agree w/ her that I had PCOS, but when the Aldactone didn’t work, the dermatologist told me “well tha’s that, you have male pattern balding.” She said it like you have two arms and two legs – just a matter of fact, no big deal, but it landed like she sent a single young woman a death sentence. I never went back to her and have not seen a dermatologist since then b/c right after her I went to Dr. Strick at UCLA same kind of stuff (mentioned it in other comment) and am now working w/ my endocrinologist and internal medicine doctors. I agree, you must go to more than one b/c doctors do not know everything and some don’t even know what they are supposed to know for their own field and specialty – they are human too and are good at some things and lacking in othters. Just keep looking until you get someone who cares that this is an upsetting matter for you and will help you find solutions that actually work for you individually instead of a bottle of Rogaine like it’s an apple or 2 aspirins and then call them in the morning.

Christyne September 28, 2009 at 12:03 pm

Kimberlyn’s story sounds a lot like mine….I used to have straight fine silky but thin hair…Then suddenly it turned into coarser, squiggly textured hair, and was falling out…I would hate to wash my hair because so much more would come out in the comb after washing. I had hair on my pillow, in my bed sheets, I would find hair just hanging out of my other hair, just waiting to fall out so I would grab it, and 4-5 strands would fall out…then comb with widest tooth pick I could find, and more came out..Hair would be on my arms during the day, just falling at will from my head…Now my used to be thin hair anyway is totally thinning, crown, all over thinning, hairline, nape of neck…I am so over it. My reg Dr said stress…I have OCD and do stress a lot, but I don’t feel it is due to stress as I have been this type of person all my life…and didn’t lose hair like this..I asked gyn, no response. I felt it was my thyroid, as I am in a high normal range, and really don’t like that, but don’t know what else to do as DR feels it is OK. I don’t have insurance so cannot afford to go to 10 different Drs. and still get nothing for a definative answer or solution. I take vitamins always, biotin, zinc, and have just started with Nioxin, just to make my scalp maybe healthier . I know it doesn’t “grow” hair, but maybe I can keep what I have left. I am 59 so lots of symptoms are same for thyroid, post-menopause, and just don’t know what the answer is. I have been researching wigs endlessly in case that is the only hope I will have. I live in Florida and wear a baseball cap everywhere I go…how can one dress up and feel good about themselves, and have to put a baseball cap on to cover the hair loss and protect against the sun on my scalp??? I am at a loss…No one seems to have any answers for me….

Jessica October 5, 2009 at 11:15 am

Hi, I’m 25 years old, and started having hair loss at 15. It started and has continued to thin around my hairline only on one side, to the point that one side is receded and extremely thin. About a year and a half ago, my overall scalp started thinning as well. It’s been about a year since I’ve dyed my hair and I rarely ever put hairspray or any other chemical in my hair. I try to just wash it and let it air dry in fear that anything I do will make more hair fall out. I haven’t been to a doctor at all so far because I’ve never had health insurance. I’m about to have insurance next month and will be looking for a doctor to go to ASAP. I’ve been trying to look online and see what information I can find about what’s happening with me, but I dont’ see anything about a similar case to mine. I used to have long, thick hair and could do anything with it, and now it’s short and thin, and I can never style it at all, and my receding hairline on my right side has me so self conscious. I live in Baton Rouge, Louisiana, does anyone have any suggestions to my situation or a reputable doctor in this area?

Haley November 2, 2009 at 3:57 pm

Jessica- I suggest you call Dr. Nicole Rogers in Metairie, LA. She specializes in hair loss. Hope this helps!

Silvia M November 15, 2009 at 2:29 pm

Hi everyone, I’m so encouraged by reading all of the stories and different ideas. I too am suffering from thinning hair, it has been going on for years, but it’s very noticeable now. I guess I’ve been trying to ignore the problem hoping that it goes away, but of course it hasn’t. I have several things that could attribute the hair loss; I take a high blood pressure medication call Diovan, I’m starting to get hot flashes, so I’m pre menopause, I’ve had two years of terrible stress and divorce and subsequent finance problems. My father is 84 and only has hair on the side of his head, my Mom is 81 and has thinning hair (though takes many medications for different ailments). My hair has always been thick and I’m had to use relaxers most of my life (which I stopped about 1 yr ago). So it could be a number of these things causing the loss and thinning of hair. I’m stress most of time now, when I stand in front of a mirror, when I run my fingers through my hair, or simply see people’s eyes look at the top of my head as they are talking to me. I live in Fort Lauderdale Florida and work in Miami if anyone can refer a Dermatologist or maybe an Endocrinologist I would greatly appreciate it.

I have not heard anyone talk about the “HairClub” use to be a center called the “Hair Club for Men” but now seems to also be catering to women. I had a consultation last week and the consultant looked at my scalp with an instrument that showed my scalp on a screen, she performed a microscopic hair and scalp analysis. Of course I really needed to see my scalp magnified a trillion times and seeing both thick and thin hair and of course all the empty spots where hairs use to be. She was very informative and showed me the cycle of healthy hair and also the ones that are not and how they thin and eventually fall out and the hair follicle closing. Their pamphlet show women with different stages of hair lost, from patches to almost bald. She explained that there was hope and that with a yearlong regiment of going once a month and having my scalp treated with their products and some sort of scalp stimulation I can get my hair back. Of course this comes at a price, almost 3k for the year. She did say that the monthly regiment will include hair styling as well. woohooo. Anyways I want to know if anyone has been to one of these Hair club facilities and if they have had any success with the personalized program without having to resort to surgery. My prayers go out to all of you.

Salima November 27, 2009 at 9:41 am

Great place, lots of support.

I have beautiful, long, and thick jet black hair.

I also have PCOS. And now my already noticeably big forehead is receding rapidly. It looks like male pattern baldness. My crown and foerehead is just receding at a very rapid rate.

I am using Jason Shampoo and conditioner to make my hair look volumnous. It helps.

I am camoflouging my forehead by pulling my long hair to the front. I look beautiful with a head full of hair. It looks like a nightmare when I pull all my hair back.

Taking Biosil, 5 drops everyday is keeping my hair soft. I do not know if it will help it grow, but it seems to help with hair smoothness. Even my skin feels smooth. Eating wild salmon helps my skin feels soft, and my hair seems to be softer.

I am going to up my dosage of saw palmetto and pygeum. I am also going to invest in FoTi herb. Taking MSM and glucosamine has definitely helped my hair. I have doubled my Vit. E and recently started taking Vitamin D, 2000mg. I am also taking Biotin, Reishi mushroom, Milkthistle, Coq 10, and ALA supplements. I also added Evening primrose oil.

I look atleast 7 years younger than my calendar age, 31.

I am going to add excercise and mediatation to stop stressing over my enormous forehead. I am going to visit an Endocrinologist first and then a Dermatologist.

I will keep you all posted on what is happening.

How to boost your confidence:

1) Relax!! There is nothing much achieved by worrying than lose more hair.

2) Make your eyes come out with life with appropriate make up. Focus on your face, lips and cheeks. That will draw attention away from your hair. This trick of mine, a perfectly well made face, has always kept me confident.

3) Use the right hair care products to make your hair, no matter how less or thin it is, to look volumnous. Grow your hair longer if you can, I almost have waist length hair. All that volume to otherwise thin hair makes me look attractive, like as if I have no hair problem at all.

4) Take all the right supplements. Vitamin B, complete mutivitamins, and herbs. I am going to start taking MACA Root seriously. About a 1/4th teaspoon and see how it works.

5) I try to focus on all my strengths and highlight them while effectively work hard when trying to mask my several defects: short stature, enormous forehead, body hair all over, crooked teeth…. it is endless…oh..and did I even mention the size of my nose and horrible body and face acne???

6) I wear high heels, use proper make up, just look so confident that people who are pretty harsh with their honesty have commented that I look very young and attractive, and that they are even jealous of me… and they wish that they had my looks and hair.

It’s true!!! I can create such an illusion while fighting the evils of PCOS.

7) The one main thing I want to tell all is watch your weight. It will keep a lot of other unwanted health risks at bay. I work relentlessly just to keep my weight in check.

My love to you all… we’ll do better. We are all sisters in this who are united, and who will draw strenth from each other.

emel November 29, 2009 at 9:43 pm

Hi: I am 61 yrs old. ( Although my hair has been thinning gradually I am all of a sudden shocked about how much of it is gone. I don’t loose a lot–between 10-15 a day probably but I see small areas without any hair grow where I usede have hair sa. I am sure that I am not growing any hair anymore. I have not seen any doctors about it yet but from reading about it I know my hair loss/thinning is due to many medications I have been using that I need to use; antidepressant/tyroid/cholesterol but most mportantly glaucoma medication which my doctor has increased the dosage due to the aggresive nature of it. Of course I am gong to talk to him as well as my family physician. But readign what ting has been very helpful. I will post my findings when I know more. Thanks everyone

Christine November 29, 2009 at 10:23 pm

I’m glad to have found this site, but my problem isn’t hair loss (yet).
I am 31; as a child I had beautiful brown smooth hair with a hint of a wave. As soon as I hit puberty at 13 (1st period on my 13th b-day), my hair turned wavier. Same year, I remember looking down on my legs horrified at the hair I had developed. Only 1 thought came to me: “NOT NORMAL!” Body hair on women is a tricky subject, though, with media heavily influencing what’s considered ‘normal’. My mom, similarly hairy, just told me it’s genetic and normal.

I also developed acne. Again, being told it’s “normal” for a teenager.
At 18 my gyno told me my testosterone is high (thank God I remember this) and prescribed Diane-35. I regret having taken the pill for 3.5 years; I eventually quit it due to the horrible side-effects. My skin cleared up initially, then my acne returned, so I quit for that reason, too.

One day in my mid 20s I got feed up with my at that point frizzy hair. I took a close look at individual hairs. I almost had a heart attack. Again this thought:”NOT NORMAL!!” I had tons of KINKY, ROUGH, even ZEBRA-STRIPED hair!! Much resembling pubic hair. The striped hairs were few, but they were literally striped in the darkest shade of brown I have & white!
This started my 7 year quest of solving this puzzle. Went to see doctors, many of whom told me to use a good conditioner. Infuriating! I am a nutritionist and have mentioned my strange hair symptoms to so many colleagues (incl. Naturopathic Doctors) – nobody ever had a clue what it could be!!!!
I never died my hair after my teens, only using natural products since age 20, no blow-drying…

2 years after this, I literally collapsed at school with extreme pelvic pain. Diagnosis: benign ovarian cyst. “Nothing to worry about” was all the doctor had to say. And I believe him.

I searched the terms ‘kinky, rough hair’ online 1 million times, in vain. Then about 6 weeks ago, for some strange reason I came across a PCOS site. Suddenly, all pieces fit. I cried. Since my early teens, I knew I’m not normal health-wise…all these doctors’ visits only to figure it out myself!

I wrote down the tests to be done for PCOS, showed it to an MD (who seemed like he was happy not to have to do any work himself), he ordered a blood test & ultrasound.

My blood test shows low iron (since my teens!) & abnormally high insulin levels, but my Glucose Tolerance Test shows as normal (controversial test). Interesting to me, since I knew that my acne was triggered by high glycemic index foods.
BUT – normal androgen levels! HUH!?
I’m still awaiting the results for my ultrasound.

I use chastetree/berry / Vitex, saw palmetto and some other herbs in tincture form. Plus Borage oil (for GLA), AOR OrthoAdapt, AOR Ortho-B, vitamin A, C, D, B6, NAC, flax oil, iron, and some other things sometimes. I try to avoid gluten as well (STRONG LINK BETWEEN LOW IRON & CELIAC!!).

I cut my hair many times, even buzzed it off several times, and I’m close to doing it again. It stresses me out so much that I developed an OCD by cutting off entire strands at the back and top of the head to see the current condition of my hair. Then I get obsessed and cut away until I can control it again for a few weeks/months.

I am scared to find out whether I have PCOS…I was hoping to find out about my insulin as I sensed a major blood sugar problem for years, but I took the news surprisingly poorly. I’m more stressed than before and am terribly depressed. The doctor, by the way, had zero to say about it all. Nothing. His words “Ask your gynocologist, I am just a lowly MD.” [gasp]
Thanks for listening, it feels so good to be understood.

Isa December 16, 2009 at 4:59 pm

Can anyone recommend a good endocrinologist and dermatologist in the Washington DC area or on the East Coast. I have been so dissatisfied with the ones I have seen. Many thanks!!

lisa December 30, 2009 at 5:00 pm

Thank you so much ladies, I am grateful I was able to find this website. Can anyone suggest a Doctor in the South Florida Area ( West Palm Beach, Ft. Lauderdale, Hollywood or Miami)? I have seem countless of Doctors in the past 20 years; felt like none really cared or took an honest interest. The last Doctor I visited didn’t even bother to see me in person, she just called me on the phone and told me nothing can be done, use Rogaine if you want, she said. Needless to say my condition is serious. After this I am at the point of giving up but if I could find a Doctor that really cares I am willing to try again. Any advise is welcome. Thanks again.

June January 19, 2010 at 1:52 am

Can anyone recommend a good Endocrinologist and Dermatologist in the Harrisburg, PA area or nearby (within 70 miles). Thanks Much!

Kelly January 19, 2010 at 2:10 am

Hello everyone,

This blog is great in all the support and understanding it provides, but I had a pretty hard time finding any suggestions for treatments that have actually helped anyone. I’m 22 and my hair has been rapidly shedding over the past 5 months. It’s also gotten thin and brittle. After 2 blood screenings, a dermatologist visit, and a visit to my general practitioner, nothing has improved. The doctor’s told me to wait it out, and that sometimes this “just happens”. They tested my hairs and saw that most of them were in the “resting” telogen phase, and decided I had Telogen Effluvium (TE) for undetermined causes.
At this point, I have 1/6 of my hair left, and am desperately hopeless. I can’t wear it down and even a ponytail is beginning to look silly. I can see my scalp through my hair no matter what hairstyle I attempt.
Does anyone have ANY SUGGESTIONS for something that HAS IMPROVED their situation???

Thanks!

Guin January 23, 2010 at 8:59 pm

First,
I want to say that all of you are very courageous and sharing. I appreciate everything I have read here. Thankfully, I am starting out in a slightly better position – I still have a fair amount of hair left. I started with a HUGE amount of hair. For the last 6 – 12 months, I have been losing handfulls of hair in the shower every morning, then some more when I comb it out, then a bit more when I put styling product in it, then just a bit more during the day. The shower is the huge hit, though. I’m 37 and on a ton of medication – synthroid, neurontin (an amitryptiline derivative), anti-depressants, and a host of pain medications for a degenerative back problem. I brought my hair loss up to a doc around the time it started, since I was already on synthroid, he re-tested my levels, and said everything was fine. My hair structure has always been on the thin side, but there was just so damn much it didn’t matter – now there is a lot less. What used to take upwards of 20 minutes to dry with a dryer, now takes 5. I’ve been worried about it for quite a while, and didn’t know what to do. I started my on-line research today with hair extensions and stumbled on this site. I am encouraged that I’m starting my search for an answer relatively early in my hair loss journey. I have some great advice and questions to go in to see my doc about. If anyone has any recommendations for the Boise, ID area for a dermatologist and endocrinologist, I would really appreciate it.
Tomorrow I start a new day – and a search for a doctor who cares.
Thank you,
Guin

Mayra January 27, 2010 at 10:57 pm

Hello,

I am relieved to find out that I am not the only female going through this problem. Don’t get me wrong. I am sorry that you are all going through this, but I was beginning to think I was the only female with this problem. I am 22 years old and I have been experiencing hair loss for the last two years. At first, it didn’t really bother me and I imagined it wouldn’t last. Then, it progressively got worse and has continued for the last two years. I have seen my PCP, GYN as well as various Endocrinologists and ENT’s to try and get to the source of my hair loss. They have all laughed at me and told me not to worry about it. I feel like they’ve all blown me off because I’m so young; However, no one understands how emotionally and physically destructive this is! I used to have tons of hair! I was even named “Best Hair” my senior year in high school and now I am ashamed to go out in public or even look at myself. I have very little hair left and it’s ruining my life, my relationship with my boyfriend, and my ability to maintain other relationships. I am now suffering from a lot of anxiety, depression and low self esteem. I’m all out of ideas and hope! My mother suggested that I go see a dermatologist, but I wouldn’t even know who to trust with this issue. The last thing I need is another doctor looking at me like I’m crazy and thinking that because I’m so young I should just ignore it. I can’t ignore it! It has been going on for far too long and all I want is someone who will listen to me and try to help me. I live in Arizona. Do any of you know of a good dermatologist that I can go see? I hate that this is happening to me and the negative impact it has been having and will continue to have on my life. I’m afraid that it’s only going to get worse and I will wake up one day completely bald! If any of you have advice or suggestions, I would be glad to hear them!

Thank you,
Mayra

amee January 29, 2010 at 7:52 am

Thanks for the infor. I am starting to loose my hair in the back and on the front side. I very depress about it. It has been a year know. I cut all my hair hoping it would all grow back together. However, that never happen. I making an appointment with a specialist today.

Talia February 9, 2010 at 12:24 am

I’m a 32 year old woman suffering from extreme shedding, can anyone recommend a good Dermatologist or Endocrinologist in the Chicago area?

tracie February 9, 2010 at 6:41 am

Interesting. After reading these posts, I called a dermatologist in the Houston, TX area asking for an appt. and whether he prescribes medication for hair loss in women. I mentioned Spironolactone. He told the nurse that he does not, and that it can actually cause hair loss. This is exactly the frustration we all experience. You hear a different opinion from each Dr. and don’t know what the right answer is. If anyone knows of a good endocrinologist in Houston, please let me know. I’ve been losing hair for about 5 yrs (now 39 yrs) and have to use hair-loc extensions just to feel confidence when in public. I did not see much about Propecia in these posts. Have any women taken it w/ much success?

Helen March 3, 2010 at 10:11 pm

Hi Everyone I thought I was the only person with major hairloss because everywhere I look all I see is beautiful heads of hair. I am 34 years old and my hair started thinning 7 months ago at first I thought it was just my ponytail getting thinner but my hair became horrible with split ends and dryness too (I have always had extremely healthy hair and never had split ends) – I thought I had burnt my hair using a straightener and that’s why it was thinning. However it has gotten worse and worse and I finally visited a doctor. I have had full blood tests for thyroid issues, hormone levels, cholesterol etc etc all were perfectly normal, I had a thyroid antibody test which was at the high end of normal but still within normal range, I had a thyroid function test which was within normal limits however he thought I did have some slight inflammation ie thyroiditis. My doctor said this isn’t causing the hair loss either. I have loads of energy, don’t get tired, eat well am normal weight range the only other thing I have noticed is my eyelashes seem stunted in growth (not thinned out though) and my eyebrows have thinned on the outer edges. My last two nails on both hands have a dark (looks like they have lifted slight) strip just below the white nail part. I am booked to have a stress test, pelvic ultrasound and to see an endocrinologist also to rule out all other possible reasons for hairloss. I am now getting to the point of embarrassment to go out it is soooo thin on top particularly on one side of temple and majorly down the centre where I used to part my hair. HELPPPPPP!!!!!

Helen March 3, 2010 at 10:13 pm

Oops forgot to mention also went to Dermatologist who said it is probably just stress related but I really don’t stress ever. I am going back for a scalp biopsy just to be sure nothing going on there. I did lose 12 kg over a 15 week period last year (ending about May – hair loss started in July) but it was done properly eating well and just increasing my exercise level so not sure if this is related other than that I am totally lost as to why I am BALD.

Hope March 6, 2010 at 8:08 pm

Hi guys,

It’s really great reading this website. No one in my life truly understands what hair loss does to a woman emotionally. I completely thought I was blowing it out of proportion when I first became obsessed with my hair loss when I was 19. I am 24 now and have lost a little bit more hair but it is not immediately noticeable. I also appreciate that people share my sentiments about how unwilling doctors are to help us with this problem- they do not care about helping us solve the problem- only throw solutions at us for us to figure it out on our own–mostly to figure out they don’t work! I am going to try to see an endocrinologist and hope he/she can help. Although I have lost a lot of hair, I still have enough to cover my scalp left so I may not be able to talk, but I think what we think people see and what they actually see is completely different. I know we’re all beautiful women and I just try to think of hair loss as preparing me for getting old! (at which time I’m sure to have a crisis as well). Well, I will continue reading this site for hope and support. Thank you!

Looking for DR March 11, 2010 at 6:42 am

Can anyone recommend a good doctor or specialist in Atlanta, GA? I have had so many bad experiences with doctors dismissing my hair loss, telling me there is nothing I can do. I don’t want to give up but don’t want to keep going to bad doctors. If anyone has a recommendation, please share.

Carrie March 18, 2010 at 9:37 pm

I know how upsetting it is to start to notice thinning hair. Mine has been thinning for the last two yrs. I am not longer able to style my hair at all because of lack of thickness. I know in my case its memopause, plus some meds I am on. I do take biotin, and would appriciate any advice on shampoos that might help make the hair look thicker. I No loner put bleach in my hair, but do you a color with no bleach. I have gotten my self a little hair peice that clips on, and going to have it colored, trimed for me, and use that when going out.. Some hair pices a are very, very, nice. I would suggest you look into them untill some cure comes about. My Partner in Life brought it for me because he knows how upset I have been about my Hair.. Nice guy for sure. Good luck to all.. This is a place that I hope every woman finds who is having this problem.
Carrie

Stephanie April 14, 2010 at 6:15 pm

I am 34 yrs old and trying to get pregnant, with no luck. I knew since I was 26 that I had multiple cysts on both ovaries so I remained on birth control. Around the second month after I stopped my BCP I noticed my hair thinning. As my periods started to get worse and come about every 2 wks or less my hair loss increased. Within 2 wks I lost 50% of my hair. My scalp is very sore and sensitive and burns. I have seen 3 drs, 2 have told me its normal, 1 dr told me I had lice, then had to go to another dr to find out I didn’t have lice. Is the sore scalp part of the hair loss? If this is related to my hormone levels or the cysts will my hair come back once they are under control? I have so many questions, and there is not a single dr out there who will answer them!

Kaci April 15, 2010 at 1:34 pm

Stephanie,
I have PCOS too and stopped BCP almost a year ago.
8 months after stopping, my hair came out in clumps.
I used to blame the pill for my problems but the truth of it is that with PCOS, we cannot independently manage our hormonal system (beyond exercise and a low-carb diet). So going on the pill will of course help, but going off it will force the body to restore balance which it simply cannot do.

For the first time in my life also, I have been experiencing a lot of scalp pain. I think it is because this time, it is not slow and diffuse like it was in my teenage years, at the onset of PCOS. Quitting the pill after 5 years of dependency meant a major hormonal shock to the system which provoked both a mix of both Telogen Effluvium (shock loss), and Androgenic Alopecia (the testosterone from the PCOS back in full form, killing hair follicles).

The scalp pain has not gone away. I have tried 100 things prescribed by 100 doctors. Dermatologists have told me to add zinc supplements to my diet, use a cream with “clobetasol propionate” on my scalp, improve the quality of my scalp by getting rid of any flakiness – hundreds of options. Trichodynia – pain of the scalp – is a poorly understood subject. I don’t know if it is hormonally related, and exacerbated by the stress (of losing so much hair) – I cannot answer you.

But given that for both of us, it seems to be accompanied with extreme hair shedding, I do believe that if regrowth or stabilization were to occur, the pain would subside as well.

skin doctor April 19, 2010 at 3:58 am

Hi,
I’m a dermatologist and am more interested in telogen effluvium these days because I have it bad–and this time it’s not because I just had a baby. I’m learning more about the gut-skin-hair connection and am suspicious that it has to do with the bacterial flora in your gut. You can learn more about changing your gut flora at BodyEcology.com. Her book is intense but I’ve decided to give it a try after recommending it and seeing it work so well with acne patients.

I also suspect, as you suggest, that the trichodynia is a result of rapid hair loss. I share your frustrations with how very little we dermatologists know on the subject. The only observational study on Trichodynia and chronic telogen effluvium involved only 8 patients. Only one of those eight went on to have androgenetic, permanent hair loss. The numbers followed is pathetic!

I’m interested in what took place 4 months before the onset of your hair loss (and others with telogen effluvium). For me, it has always been either a baby born or a course of antibiotics. Oral birth control can also cause a sudden change in the gut flora–as can pretty much any medication. Staph infections are another connection I think should be pursued. Some women don’t know they’re colonized with Staph but they constantly have dry, cracked (mild or severe) sores in their noses.

Ashley April 22, 2010 at 10:18 am

To Skin doctor: Is there any hairloss treatments you can use while you are pregnant? Thank you

Sade May 4, 2010 at 7:24 am

I think another option for women’s hair loss is seeking out a trichologist, which is a hair specialist.

Georgia May 14, 2010 at 5:04 pm

Ah, Ladies…
How many of us are out there… feeling alone and pretending to not be ashamed. As a child, I had so much hair that my mother used a thinning shears on my locks. In high school I had a glorious mane, cut into a ‘Gypsy’… what great pictures. By my mid-20′s I had to cut my hair short because it was so thin that it wouldn’t hold a style. Was diagnosed with PCOS and told that this syndrome, combined with heredity, caused my hair loss.

I’ve lost count of the types and number of doctors that I have seen over the years, and the amount of time and money that has gone down the drain along with my hair. Used Rogain and only got the little fluffy hair that fell out when topical was stopped. Eight years ago I paid $5k for a transplant… and the transplanted hairs slid right out (NOW I know that it’s not recommended to transplant in summer because perspiration and vasodilation squeezes the transplanted hair out of the scalp).

Happily divorced in 2006. Coming up to my 52nd birthday, my hair is thin and fine, my hairdresser just shakes her head. In pictures all you see is scalp with a faint nimbus that is what’s left of my hair. Lost my job in December. When I interview, no one looks me in the eyes… they talk to my nearly naked scalp. So here I am, wanting to date and find work, and feel constantly judged because of an outward manifestation of something that’s happening inside of (what appears to be) a healthy body. It looks like I’m on chemo, or at the affect of some kind of some huge illness or medication… and shunned. How much of my self-image is subliminally dictated by my lack of hair… working on that with my therapist. LOL!!

CURRENT REGIMEN: 6 weeks ago I purchased Hair Essentials… and am seeing some fine hair growth. Weight loss & exercise can also heighten follicular dormancy. (Have lost 90 lbs. in the last year.) Important to maintain 50-60mg/daily protein levels, as well as routine multi-vitamin, higher levels of B-Complex, D and Calcium levels while dieting… heavily impacts hair, nails & skin. Am researching possible relationship between gastrointestinal health and hair loss.

My hopes and prayers are for all of us… that somewhere a doctor, an organic chemist, SOMEONE… ANYONE… will care enough to actually research this. Thank you, all of you, for your tears, suggestions and sharing. I WILL NOT WEAR A WIG… WHAT LIES BEHIND US, WHAT LIES AHEAD OF US, PALES IN COMPARISON TO WHAT IS INSIDE OF US. WE ARE STRONG, VIBRANT… WE WILL PREVAIL.

JP May 27, 2010 at 9:50 am

ANY ONE HERE LOOKED INTO HAIR ESSENTIALS?? THEY HAVE AWESOME ‘TOO GOOD TO BE TRUE’ REVIEWS! HECK DOESN’T HURT TO CHECK IT OUT….

arkansas July 7, 2010 at 1:34 pm

Does anyone know of a hair loss specialist in Northwest Arkansas or anywhere in Arkansas for that matter? I was diagnosed w/ Androgenetic Alopecia and am extremely depressed and need someone to help w/ this asap.

Autumn07 July 8, 2010 at 3:59 pm

Hi arkansas, I’m not sure about in Arkansas but there is a Dr. King in Nashville that I may go see. He is supposed to be a hair specialist/dermatologist at Vanderbilt and was recommended by my doc. I understand how you feel! Don’t give up hope

Brody July 11, 2010 at 7:44 pm

Just when I thought I was all alone!!

I’m 38 going through ivf treatment and have experienced incredible hair loss. I would love to chalk it up to the ivf, but the truth is that I noticed it happening in 2002. I remember a random guy coming up to me when I was 19ish telling me I had a bald spot on the back of my head!!!

I’m at the point where I wake up in the middle of the night feeling my scalp. I can’t fall back asleep. I am riddled with guilt and fear. My boyfriend is 31 and not only can’t I give him a child, I’m going bald. WTF??

I haven’t been to any doctors yet…..not only am I very skeptical, but I’m trying to get pregnant. I don’t understand why I can’t have one mega-problem at a time!! Obviously getting pregnant is my priority.

One thing that has been a lifesaver for me is Toppik. It really helps to hide the thinning—definitely check it out!! I LOVE it!

I can’t wait to check back in on this thread to see if any of you have had any success. Good luck girls.

paule August 27, 2010 at 8:15 pm

I”m sitting here reading all your letters hoping that you’ve helped someone and hoping that you can help me, too. I’m 48 and all my life I’ve been told how beautiful my hair was. I now live in S Florida and within the last couple of years I stopped styling my hair because of the heat and the humidity. I usually wear it in a ponytail (never tight – I’m sure that’s not the problem). About a year ago I noticed athat a lot of hair was on the back of my car seat.I mean A LOT.When I went home to NY I tried to style my hair like I used to and it didn’t work. It just layed there.The more I looked I noticed how thin it was. I came back to Fl and went to a dermatologist who barely looked at me and told me to try rogaine.

I’m sure it must be hormonal because when I was 25 I had an ovarian cyst and had it removed with my right ovary. Five years later I didn’t get my period and was told I had ovarian failure. I went through menopause at 30 with the usual symptoms and that was it. Now, almost 20 years later I’m having this problem with my hair.

I know that I have to see a another dermatologist or an endocrinologist but I have NO idea where to go. At first I thought maybe I had an iron deficiency but now I think I might have PCOS.

If I were to get into the feelings of depression I go through because of this I could really lose it.

Does anyone know of a doctor in S Florida that can help?

Shell September 10, 2010 at 6:22 am

Hi I need help I am not sure what doctor I need to see, one day I started to have lots of back pain and my lower left side real bad I went to bed and when i shower lots of my hari started to fall off, I mean I loose my hair but not as much and I just wanted to cry when I saw lots and lots coming out. My hair is so thin now and you can see the bald spots im ony 35 and Im not sure if its my hormones or not. Can someone help me and let me know which doctor is best to see for hair loss

Thank You
Shell

jldiz September 22, 2010 at 9:41 am

Hello all,

I am 1.25 years into treatment with DR. REDMOND and have had amazing results. I have been told by many doctors, including Dr. Redmond, that I have female pattern baldness. The difference is that most everyone -except for Dr. Redmond- told me there was nothing we can do about it.

Starting in my very early 20s i noticed the beginnings of my hair loss and started asking doctors about it with no hope/no answers until my 27.5 year. A local dermatologist “heard” something about the spironolactone/yaz combo and was willing to try it out -along with biotin, rogaine and omegas. I believe she helped the quality of my skin and hair, but did not help the fact that my hair continued to disappear.

I heard about DR. REDMOND from a couple support sites, but thought his prices were outrageous…until I had the breakdown and confronted the truth of my many bald spots and the way it had controlled my self-esteem/psyche for so long. I went. I continue to go. It is THE BEST investment for yourself. As females, we equivocate taking care of ourselves with selfishness. This is simply not true. THINK ABOUT IT. if your mother/daughter/best friend/lover/sister had this problem, would you call her selfish if she wanted to fix it?!?!?! INVEST in YOURSELF. Please, go to DR. REDMOND. He CAN HELP!!!!

my bald spots are more/less gone and I actually have a hairline now. my hair is growing past my chin! I can color it and it doesn’t fall out! i still have moments when my hands go up to my head to check if it’s still there, and it’s definitely not as plentiful as a “normal” head of hair, but it ‘s there! and even I think it’s normal looking.

go see him.

if anyone knows of another doctor who has had results like Dr. Redmond, please post. I feel like there should be more “out there” and take offense as a woman that there is only one. let’s communicate the positive!

Ashley September 22, 2010 at 12:24 pm

What treatment are you on?

jldiz September 22, 2010 at 9:51 pm

I hesitate to say my exact treatment because everyone will have their own combination.

Here’s what I am taking-
spironolactone, finesteride (propecia), & yaz (generic)

If you absolutely cannot see Dr. Redmond, try talking to your local dr. about the treatment out there. Many women are on the spironolactone/yaz combination for female pattern baldness.

Ashley September 23, 2010 at 5:08 am

I’m on the same treatment. It worked great for a year and a half, but now I’m shedding quite a bit. Not sure what to think.

Ashley September 23, 2010 at 5:32 am

I’m 28 and I’m on 200 mg spiro, Yasmin and 5mg propecia. I’m going to dr. Redmond in the spring. How was your visit with him?

Paula October 7, 2010 at 11:43 am

Let me give a background of my health issues. I am 54 years old and I was diagnosed with Hashimoto’s (hypothyroid) disease AND going through menopause about 6 years ago. I have a great ob/gyn that will treat both using compounded bio-identical hormones. I have bloodwork at least twice a year, more if I’m not feeling 100%. My testosterone levels were usually on the low side, but still WNL.
In May I was diagnosed with rhuematoid arthritis and was put on arava, which is known to cause hair loss. After four months I noticed I was losing a bit more hair than normal so the rhuematologist added Enbrel, which I inject once a week. After a month on both my hair really started to fall out and thin. The nurse practitioner (who thinks she’s an MD) told me to stop the Arava and not to stress about it. Yeah, right! I went back to my gyne who ran lab work and found my testosterone level to be 235, way high! I had an MRI of my adrenal glands and my ovaries since these two produce testosterone. I also had an ultrasound of my ovaries. All exams were normal.
I know my hair loss has got to be due to a hormone imbalance. I’ve been having horrible, horrible hot flashes (which I’ve never had before), night sweats (which I had before I started taking HRT) and hair loss. My ob/gyn is talking about a total hysterectomy and I’m thinking about a wig.
What I hate most is how I feel about myself. As others have shared, I don’t want to wash or fix my hair any more than I have to for fear of lossing even more hair, thus I don’t want to leave the house. I also don’t like that most health care professionals give you a standard excuse for the hair loss: you’re getting older, hair thins; it’s hereditary; or the worst one..it’s due to stress! I wasn’t stressed until I pick a clump of hair from the shower drain or my hairbrush daily!
Now I know what the saying “Misery loves company” is all about. It’s sad that we all have this issue, but it’s comforting that there are other sympathetic women here that understand what I’m going thru.

Babs October 20, 2010 at 4:09 am

Hi all

Topical solution to hair loss problem!

Hi I have found a topical solution to my hair loss problem, however will give you some back ground to my story.
I too have suffered from hair loss, more noticebly over the past 2 year, although it first started 10 years ago. I am 39 female and always had a full head of hair. Now, my hair has gone dry, dull and and has lost it volume. I have been to my Dr and have had test done, however everything has come back ok. i.e. my hair los was not found to be down to any internal deficiencies hormones, nutrient levels, diseases etc , so now my Dr is referring me to a dermatoligst to see if the problem is due to the skin on my scalp. However it maybe advisable if you havent already, to visit a licesend Trichologist, this is someone who specifically deals with the scientific study of the health of hair and scalp, and would have a more thorough knowledge about your hair than any GP and by conducting a hair analysis, can identify your hair loss problem. I intially visited, and it was he who suggested I go along to my GP and ask for specific types of tests. However, he also informed me for some cases there are conditions that can be cured, but with other, it could simply be that hair loss pattern is heriditary which can occur in both male and female ( this does not necessarily need to come from your parents or grandparent, it could come from family gene from generations back, that so happened to show up in you generations later!). In this case, the frank truth is little can be done. However there are different topical treatments, and people do not have to go to the extreme of hair surgery or even having to wear undignified wigs. Below is a link to a product called Toppik which I have used. Basically it small fibre which are made from the same fibres as natrual hair, which use sprink onto your hair to cover bald and thinning areas. It adds body, volume, and makes your hair ‘magically’ appear full regardless of the lenghth of your hair. Its not expensive, and also come with conditoner and shampoo to give your hair that added volume, even to the most thinnest of hair. I hope this will provide some solution and even comfort to those experiencing hair loss. The link is below – Good luck

http://www.toppik.com/keratin-protein-hair-building-fibers-product-toppik.asp

Hilda Serrano October 22, 2010 at 11:44 pm

Hello,

Has anyone heard of PRP hair therapy????

Thanks!

Donna Gordon October 25, 2010 at 2:39 pm

I would just like to spare anyone else In Los Angeles thinking about going to see the dermatologist who supposedly specializes in hair lossat UCLA (Dr Strick or something like that I think is his name) He is the most insensitive and uncaring Dr. I have ever met. After waiting close to 2 hours after my scheduled appt to see him. He gave me some xeroxed copy of an article on T E that was out of Glamour or Cosmopolitan or some Fashion magazine like that. He asked no questions. I wasnt even there for 10minutes but when I showed him a big bag of hair which I saved, that had fallen out in the past several weeks. He just very insensitively told me it was T E and it would grow back-basically like just get over it, then he gave me the bums rush out the door.
Save your time and money. Any Doctor would be better than this one.

Janie-Ann November 2, 2010 at 4:56 pm

Wow! This is a great post. Very helpful, thank you.
My first dermatologist visit in NYC was very disappointing — I came home depressed and no more informed than before I went. He was so matter-of-fact and lacking in compassion. “Female pattern baldness.” “Have you tried rogaine?” “Nope, nothing else you can do.”
First thing I did when I got home was start googling hair loss specialists in NYC and one name kept coming up as THE expert, a “Hair Loss Expert,” affiliated with one of the best teaching hospitals, who wrote and spoke often about how devastating hair loss can be for women, blah blah blah.
Well, it turns out he was my same doctor! He talked a good talk in his papers and webcasts but in real life was a total dud… soul-less and totally uncaring.
That’s when I started wig shopping!
Honestly, for female pattern baldness (what I have) I don’t think there really is any effective treatment — the only hope is learning to cope psychologically. (Just my humble opinion) So I don’t totally “hate” him for not being able to help me medically regarding the hair — but he was such a let down. I really expected more. (he’s an excellent dermatologist, for skin things at least)
Halperin, Peter S, Md, if we’re allowed to name names.
Best wishes to all… J

Leslie November 9, 2010 at 3:47 am

My name is Leslie and IO was recently diagnosed with pcos. My hair has been falling out for about two years! I am African American and I have always had thick healthy hair now you can see my scalp. I started using a product called regrow and my bald spots are filling in but my hair is still thinning! I was fortunate enought to have a child in 2003 I have been trying to have another child for 3 years with no luck can somebody help me with my thinnig hair and infertility……..I don’t even feel like a woman anymore.

Gretchen November 23, 2010 at 1:29 pm

Hello all, it feels so good to know that I am not alone in this hair battle. I started noticing hair thinning at around 16 (I had ‘horse hair’ before (thick and strong) as my mom would call it). I chalked it up to the crash diet I did at 15 where I lost about 30lbs in about 2 months…since then my hair has gotten thinner and weaker over the years. I just turned 26 and this had been the worst year for my hair. I got married in Aug and some would say it could be the stress from that event but I say NO to that. I’ve had extensive blood work done…iron, testosterone, etc etc blah blah blah…EVERYTHING came back NORMAL! It seems as if nothing can help me! This last derm I saw today just told me to stick to rogaine, and when I asked about Provillus (these pills I heard about) he said he never heard of it and to try it and let him know! I have cried so much this year! I can’t even part my hair in the middle anymore because it’s so thin..and washing it? omg that’s an emotional rollercoaster on it’s own…my scalp is always so oily and the rogain is making it worst! and so ITCHY! AND FLAKY! What can I do now? who should I see? What makes this even more bizzare is that my acne now is worst than it ever was! I was skinny with lots of hair and clear skin in HS and now? It seems I can’t lose the 15lbs I’ve packed on and this acne stuff isn’t making it better! My husband isn’t much help because he doesn’t get it..I don’t know what else to do, someone please help me.
I’m in the Orlando area and go to UCF which for some reason I feel that everyone is so good looking and here I am withering away in self pity and thinning hair!! :(

Pam November 27, 2010 at 1:52 pm

I’m hoping that Fran from Cocoa, FL is still checking this website. I live in the area (Titusville). Have you had any success?

BN November 28, 2010 at 9:46 pm

Hi,
I just began reading this post this evening. My hair loss began when I was 18, currently 29. No bald spots, but it just keeps getting thinner and thinner and thinner. I have been to many doctors as well. Every PCP and family doctor have been of no help. After four dermatologists I have given up on that as well. I went to Hans Wiemann (in the St. Louis area) that offers laser treatments and hair transplants. The whole appointment was such a sales pitch that I was so aggravated and felt worse by the time I left. I have also tried an herbalist, chinese medicine, and a nutritionist/chiropractor. I try not to think about it, I really do, but let’s face it, that’s about impossible. I know my problem is NOT genetic, everyone in my family has a full head of hair. I’m healthy in terms of exercise and diet, I don’t take any medications, smoke, or drink. None of the doctors have ever found anything with blood work or urine samples. If anyone can suggest a doctor, specialist, anyone that can help in the St. Louis or Chicago area, PLEASE do let me know.
Thank You

Danielle November 30, 2010 at 11:42 am

Hi Ladies. I live in Fort Lauderdale and I am looking for a Doctor, whether it is an Endo or Derm, that can help me with my hair loss problem. Any referrals would be greatly appreciated!

Susie December 2, 2010 at 11:57 am

I am 46 and starting menopause, according to my bloodwork. I didn’t have any tradtional menopause symptoms. My only health issue was burning scalp and hairloss–a lot. (I do not use any chemicals on my hair and don’t even blow dry it.) After losing almost half of my hair in 3 months I went off the pill (mircette which is low estrogen) and withing 48 hours the burning decreased by about 50%. Then I started using progesterone cream. Within 3 days the hairloss slowed from losing 65+ hairs in the morning to just 15-20. By the 6th day the burning is 95% gone. I can wear my hair in a ponytail with a soft scrunchie today! Maybe I have estrogen dominence, which is talked about in Dr. Lee’s book “What Your Doctor May Not Tell You About Menopause: The Breakthrough Book on Natural Progesterone”. I hope that I continue to improve and I hope each one of you finds the solution to your hairloss. By the way, my doctor ( GP) told me to stay on the pill and that nothing could be done for my hairloss. It was the owner of a family-owned pharmacy that suggested the progesterone cream and to stop the pill.

Pam December 6, 2010 at 12:57 am

Danielle, I live in Brevard County, FL and contacted the Cicatricaial Alopecia Research Foundation. They gave me two referrals in Florida, one in Jax Beach but the other is in Miami.

Antonella Tosti, MD
University of Miami Hospital
1295 NW 14th St, South Bldg, Suites K, L & M
Miami, FL 33136
305-243-6704

Good luck. My appointment with the Jax Beach doctor is today.

janet December 6, 2010 at 12:33 pm

Pam, Please give me the name of the doctor in Jax Beach you are seeing. What did you think of him/her ? I am desperate for a decent doctor in the Jax area. Thank you so much and good luck to you.

ash December 7, 2010 at 8:47 am

Hello ladies, I’m 32 yrs old and suffering from hair thinning. My hair just seems to have stopped growing. It’s now half of what it used to be 2 years ago! GP did some extensive tests, nothing came out. Might be birth control (on Quasense for 2 years – hair thinning started after that) but can’t stop it (it’s the only BC that’s worked for my very horrible cramps). Anyway, any suggestions for doctors (dermatologists/endo/any other) in San Francisco Bay Area or somewhere in California?
Thanks and good luck to everyone… hang in there.
Ashmi

Chrissy December 10, 2010 at 6:31 am

Hello Everyone,

I just want to say that reading all of your stories has brought tears to my eyes remembering when I started to lose my hair. You all have great courage and talking about it makes it better, so keep talking!

I have had alopecia universalis for 12 years now. It was very difficult in the beginning when my hair began to fall out. I was in college and devastated because I thought my life was over. I have now grown to accept myself and the way I look now. I know I would not be who I am today without this having happened, and I really like me! It does get better, but it is a process. A good support system and love from family and friends gets you through. Good luck to you all on your journey.

Ann December 27, 2010 at 3:05 am

Hello,
I have been trying to deal with thinning hair for the past several years. I am 37 yrs and used to have very thick, lock, curly hair. I am not an arrogant person, but I did love my hair and I thought it was a beautiful feature. My attempts to cover up the hair loss by using Toppik has been somewhat favorable, but it has not been a solution by any means. I tried Rogaine and as a result, I ended up looking like a warewolf with hair growth on my cheeks. (I had to laugh at that sight!) I have been to a dermatologist who recommended Rogaine and ordered expensive labs that my insurance would not cover (I did not follow through with the labs b/c I do not have the money and I did not return to him because I was disappointed in his suggestion for Rogaine with the initial visit.) My endocrinologist (I have hypothyroidism) shrugged off my report of hair loss by saying “it’s not that noticable.” I’ve been to two different nutritionalists and spent hundreds (if not close to a thousand) on supplements. I have new insurance and I’m looking for a new endocrinologist and dermatologist. I was recently diagnosed with fibromyalgia, so I am trying to control my stress level to decrease the pain. At times I feel guilty for being consumed by my insecurities and by the lack of results for my hair regrowth. So many others have much more serious conditions, and I remind myself that the situation could be much worse. I continue with the Toppik applications and I have ordered a topper in case my hair loss worsens. I am afraid that I will embarrass my son and that my boyfriend will not see me as attractive any more. But, I do continue to have faith that the Lord will see us through any trial, and in the end, we will come out stronger. Sometimes I need to vent and get things off my chest, and I don’t have anyone who can relate so this forum is very helpful for me. I thank you all for your stories and I hope that we all find peace and that we do not allow this burden to overcome us. Be encouraged and Be Blessed!

Mina January 5, 2011 at 1:08 pm

My hair started thining out this past year. I notice my hair falling out when i got pregnant with my son. I got diabetes with my pregnancy. my scalp itches and it hurts. It feels like i had my hair tied up so tight and let it go. it hurts to move my hair. i saw a dermatologist and said it was due to the stress of child birth. it has been over a year and is still falling out. has anyone heard of this and what i can do. My Pcp check my hormone levels and said everything is fine. I need help.

Mina January 5, 2011 at 1:10 pm

I live in Phoenix, AZ. Can anyone recomend a good doctor to see. I dont think my Pcp knows what to do to help me. Thank you so much for your stories it does help to know i am not the only one.

Swetha February 4, 2011 at 10:57 pm

I am so glad this site exsists. Thank you ladies for sharing your experiences and making this whole hair loss crisis feel less lonely. I’ve been having soo much hair loss over the past 8 months that now there’s a visibly bald spot at the top of my head and I have to wear a headband to hide it! Most days I contemplate shaving my head and walking around with a bandana so I don’t have to deal with the daily shedding (which literally causes me neck tension!). I’ve gone to my primary doctor twice and both times she’s drawn blood to test my thyroid levels. The first time the results showed my levels were normal but she still put me on levothyroxin to see if it would make a difference with the breakage. It didn’t. I just went back a second time and she took blood again to do a second test on my thyroid levels and also to see if I have lupus. I’m waiting for those results. I just want to know why this is happening now. I’m only in my early 30′s. I am so grateful that there are others of you out there dealing with this too, atleast we’re not by ourselves in this process.

Debra March 8, 2011 at 10:48 am

My scalp keeps feeling like it is tingling /numb. I have been on thyroid 50meq x 2 weeeks and I hate the way it makes me feel. I am relly sheeding now.

dd .. March 29, 2011 at 6:42 am

Does anyone know a hair doc near King of Prussia (PA)

Kimberly April 3, 2011 at 12:04 pm

Hi, my name is Kim, but I guess you already figured that. My story begins when I was a child, but it started getting bad when I was ten. When I was little my mom would notice that I had little bald spots. The doctors just said “she’s not getting enough iron” and they would send me home. My mom would take me home and increase my iron intake and my hair would grow back within two weeks. When I was 10, my hair loss started happening on the back of my head just above my neckline, and we tried increasing my iron, yet nothing. We tried for three months, but it only got worse. Then, my once beautiful locks of hair started coming out more and more all over my head. It was embarrassing because I could not wear pony tails like other girls, I couldn’t curl it, I couldn’t go swimming without a swim cap, and mostly, I couldn’t be a kid. When I turned 11, my mom took me to a dermatologist who couldn’t diagnose it clearly, but he said I had alopecia. He also said that we didn’t catch it in time and that it was all doomed to fall out. He prescribed me Olux and sent me home. I tried it but it caused my scalp to turn red back there where it had all come out, and on different spots on my head. Mind you I was still a little kid and still had to go to school, only to be mocked by the shame and horror that I had to endure as a young girl. Kids are mean, and they too will find every way in their power to ridicule you given the chance. I hated middle school because it was a very bad experience for me. I couldn’t do anything the other kids could physically, and I felt very out of place. My mom found another dermatologist that we went to, and he said that if we had not used the Olux, my hair could have been saved and fully regrown. But by the time we did get to this doctor, I barely had any hair left on my head. My 12th birthday was the day that he prescribed me to take 1200 mg of biotin twice daily, and to take four pills of prednisone a day. Within two months, we noticed little hairs growing from my scalp, a miracle! But we also noticed that my appetite was dangerously increased. I went from being a size 2 in women’s pants to a size 15 in those two months as well. I was so puffed out from the swelling that the prednisone caused that I couldn’t wear shoes that I had to put my feet in. I went from 120 lbs to 170 lbs as a 12 year old. I was only fortunate that my school allowed me to wear a hat to cover my “progress in distress”to allow myself and others to pay attention to the teachers in class, not my lack of hair. By the time summer came around my grandma took me to a wig store and bought me my first real hair wig. When I got back to school that next august, my peers thought that my hair had grown back, well, at least some of them did. Some of them had conspiracies that I was an alien trying to blend in, while others tried to plot to snatch it away from me. I knew people were planning to do this because I saw the way they watched me, looking at my every move, waiting for the chance to intercept. I stayed paranoid that they would do this.
I am now 16, still have no hair, and and alot of my swelling has gone down. I am left with a body with stretch marks because after I stopped taking the prednisone (steroid) pills, my body started losing weight, and it had no idea what to do with the skin, so there it just lives causing me to have to live with it.
I am mostly afraid that my boyfriend will leave me now, because he found out last night, and he said he doesn’t mind it. He told me that his great grandma had the same thing. He loves me, or so he says, and acts like he does anyway, but I don’t want to lose him. I know I have had a hard time living with this, and since a friend of mine told him before I was ready to tell him, I’m afraid he thinks I’m keeping secrets, but I’m not keeping them. That’s my only one. I was just wondering if anyone else had this same thing happen to them and how they dealt with it. I am aware that this is not a relationship site, but the problem is the hair loss may scare him away. It is not something that can just be ignored, and I just wanted to know if anyone else out there knows how I feel.

Graccey May 1, 2011 at 12:39 pm

I wanted to say I have been to both a GYN here and a hair loss dermatogist here in Lake Mary FL, with no results, so I am still looking for another derm that knows something about hair dye allergys. I have had my hormones tested, the dr said that my estro was high, but she expected that since their is no period. I am only 45 , I used to have very thick coarse hair. Had a bad eposide of itching, then hair lost last year. I told the derm that I suspected the hair color. They did not seem intested, said that hair loss comes with age. I have now had another spell, of bad rashing. It is the hair dye. From my reseach it can have PPD, in it almost all do. Check the web for PPD allergy. As you color you can become more and more subseptable to it. My hair stylist always commented on the hair loss. I think that hormones changing can effect it also. You can become allergic to this chemical at any time. It is hard to connect the dots. Dr.’s don’t seem interested. Natualist, I tried accupunture and non homotherphy, no noticable difference.. I have tried Jason hair shampoo, not much luck with that either. BUT look for PPD/free hair colors…and test before using, that will save some hair from falling. So far I have found a Wella, Yo Colors, Reflex, Nauture Pat It usually happens a week later, not right after coloring FYI…What does work is Botin…..

Paige May 4, 2011 at 11:36 am

I’m 42 and I noticed my front top and sides thinning about a year ago – a lot coming out when brushing after washing. I went to the doctor who happened to be African-American (I’m caucasion) and she actually asked me if I wore “corn rows” a lot! Needless to say, she was worthless and just prescribed me something for dandruff, which I do not have! I went to an endocrinologist to see if my thyroid or menopause was the problem – tests turned out honky dorie! Now I can see through the top of my head when the sun shines on it (scar-y) and I’m having to cover over the temple areas with sweeps of hair from the other side (interesting, the right side is much thinner). I will say that I’ve gone through hell and back with a mentally ill young adult but if it was stress, wouldn’t it have come out quicker than just in the last year (I’ve been dealing with his illness for 7 years now)?? I’ve heard that sometimes it takes 2 or 3 blood tests and doctors to finally see that one has thyroid problems. Is this the experience of others, and would I be throwing my money away by seeing my general practitioner?

I’m worrying about this as my hair is long, thick (or was) and wavy and has been my best feature, so I’m told anyway. I’m getting ready to cut the length off for the first time as it’s starting to look a bit stringy. Can’t believe I’m saying that. :( Best to everyone!

frances May 21, 2011 at 1:33 pm

I’ve been glued to these stories for hours now b/c they’re so similar to my own. My hair has always been thin but straight and manageable and for months now it’s texture has changed to frizzy, broken and very fragile. Needless to say the bald spots cannot be covered even with toppik so I’ve resorted to a wig for work and some social events. Dr’s have been totally unhelpful telling me that I’ve now gotten thyroid imbalance corrected. A naturopath has recommended a gluted free diet and PRP. Any results in either arena??? Thanks for this opportunity to share and compare.

K May 23, 2011 at 12:31 pm

Graccey, you are spot on with the PPD allergy. It is amazing how difficult it is to connect the dots. It took me a year to figure it out. It caused 2 very aggressive cases of TE, my hair is not coming back on it’s own. I have been using Johnson and Johnson baby shampoo (I put one baby aspirin in it to balance the PH level because it is very alkalinity and the baby aspirin is an acid that brings it down, a lot of research to figure that one out too, but I just put the baby aspirin in an ounce of filtered water to dissolve and pour it in the baby shampoo) but anyway it was the only thing I wasn’t sensitive to and yes you are right it is something that continues to progress and makes you sensitive to all chemicals. I went a year without coloring my hair to allow it to rest. And now I will only foil it leaving 1/2″ of roots showing. This has devastated me beyond. I have just started using rogaine and the hairmax comb (for scalp health) I don’t think the comb helps with hair regrowth but it does seems to help with scalp health. It is a miracle I can use rogaine but it does seem to be helping. I use the women’s 2% every other night. Good luck with your regrowth. You are right on with the PPD and I think it is much more common than people think!

Elvire June 1, 2011 at 2:33 pm

Hello Every One of you Fabulous and Courageous Women – Love to all of YOU!
Well, I got the news yesterday – at 61, vital and as healthy as anyone could possible ever wish to be, yep, hair thinning on the vertex and allopecia of the eyebrows, the latter are almost gone. It started probably 10 months ago, still donot know exactly why, but laser skin therapy on my face and arms for those liver spots may have triggered it. I went to see Dr. Shelly Friedman here in Scottsdale, AZ. His assistant is very, very knowledgeable and extremely empathetic and friendly. Long and short: no cure, no idea where it really comes from. BUT, now there is laser therapy, the so-called Laser Cap, FDA approved etc. You put it on 3x/wk for 45 min. at home, you purchase the cap, and within 3 months your hair really becomes fuller and actually it already starts to grow back within 4 weeks. That would be a good solution for the head. You will have to continue doing this for the rest of your life, or until the scientists have found a different solution.
I do not go for the chemicals like Rogaine and other stuff, even if I would get desperate, never. The side effects are always devastating, trust me.

Next week I will go for a second opinion to the Cioa Bell Institute here in Phoenix as well. Another cosmetic surgeon who sells the cap. So far the cap is only available through phycisians. I guess I can understand why, because laser therapy has many strength settings from hair removel to hair grows, so you really need some sort of a specialist to help you along the way.
The cap costs around $3000. If you go to a dr. who has a contract with Care Credit of GE, you can pay it off in 12-18 months. Check out the GE website.
The consultations are free. Just food for thought.

Eyebrows unfortunately is a different ball game, that is skin transplantation from skin at the back of your head where your hair grows. This means that you would have to trim your eyebrows for the rest of your life. The cost for this surgical treatment is $5000, and again covered by Care Credit. Not sure if I want to do this. I am very light blond. I may just consider permanent eye brow tatoe. I have seen beautiful work – cost around $500.

I am horrified to hear how many of you have been treated like 2nd class citizens – horrible. Remember, you can report this all to the Attorney General as well to Medical Boards. There is still some justice here. Yep, they really do not know what to do with us women.
Men, oh yeah, different ball game. Just think how much money is spent on prostate research and medication versus female cancers!!!!! This IS a male society, but just smile, that makes you feel better. Do not let this get under your skin. KNOW who you are with or without hair, you are one fabulous person, loving and shining your light on this world. Step into that, claim it, own it. Whoever is unkind to you, just love them, bless them and wish them well. They have a bigger problem than you, trust me. And the WILL bump into it one day and not know what hit them.
So, Wonderful Women, let’s continue to share the love for each other and support each other and NOT get bogged down. A wig can be very natural, besides your eyes and your smile do all the talking, so go for it.
I will keep you posted with my laser experiences.
God loves you as you are! God only sees your inside, and that is what counts at any moment everywhere.
Warm hugs to you all, Elvire

Eva June 7, 2011 at 8:48 pm

I suspect Hypervitaminosis A for my hair loss due to prolonged use of a high dosage of Retin A but I can’t find anyone who will test me. I had a PAINFUL scalp, too sensitive to touch and unbearable itching. I stopped the Retin-A 2 months ago and the scalp pain and a lot of itching stopped a week afterwards. I saw a PCP and 3 derms. All recognized hair loss but shrugged it off as hormonal or a lack of deep conditioning! Please avoid these NYC doctors at all costs:

Dr. Schweiger Dermatologist NYC Bernstein Medical – no actual diagnostic dermatology, just the most disinterested sales pitch for FUT. All the tests and diagnostic work they list on the site as part of the consult is garbage. I gave him my recent CBC which showed hematology problems, he didn’t even look at it. He magnified a tiny area of my scalp for 20 seconds and said it was normal, I have scabs! Said I probably suffered from hormonal imbalance and my hair would grow back and kept blaming it on hair extensions that I haven’t worn in a long time. His prognosis, a $9,000 FUT. I paid $325 for the visit. He was truly going through the motions even his assistant looked embarrassed!

Dina Strachan, Dermatologist – refused to look at bloodwork she didn’t order – fine, but after pulling on my hair declared I needed Redken deep conditioner because my problem was I needed moisture and that’s what she loved. Her office is one giant cosmetic surgery sales pitch as well.

Dr. Jeffrey Epstein – After a 1hr sales pitch by the center managers, he declared he was really only a plastic surgeon.

I’m going to see an endocrinologist, a trichologist, a hematologist and a gastroenterologist and maybe this Dr. Redmond. I’m done with ‘hair loss experts’ pushing cosmetic surgery and trying the all around approach. My insurance is crap, but….Anyway, thanks all for your stories and knowing I’m not alone in hair loss and the fight against disinterested medical establishment. xxx

K June 8, 2011 at 11:38 am

Eva if you can look at some of Pilar’s post she mentions in one of them a dr she sees in NYC. She loves her and the dr has done a lot for her. I would say there is no doubt it is the Retin A that has caused your loss, but it is probably Telogen Efflivium which is temporary and the recovery is nothing like they say it is. Especially if your scalp is miserable because there is a lot of inflammation that will need to calm down before everything can reset itself. Please try to find her post where she list the derm she sees. She loves her.

Pilar June 9, 2011 at 8:19 am

Hi Eva-

I’m sorry you’ve had such bad luck with Derms/hair specialists. For the 10 months I’ve seen Dr. Sherry Shieh. She’s the Assistant Clinical Professor of Dermatology at Columbia University and she’s great! She knows her stuff is one the most compassionate and kind doctors I’ve had the pleasure of meeting. Here’s her info:

Dr. Sherry Shieh
928 Broadway
Suite 204
New York, NY 10010
212.982.8229

Pilar

Ann A June 28, 2011 at 10:55 pm

Thanks, for all of your stories. There is comfort in knowing your not alone.
I took accutane for my acne for about five months ( I specifically asked my nurse practitioner if accutane could cause hair loss & after she told me no). I felt optimistic about reducing my acne & breakouts. During the fifth month I noticed shedding. Three months later I have a thinning hair line, had to cut my hair and my self esteem (already lowered by years of acne) is non-existent!
The nurse practictioner’s advice” I just hold tight b/c it takes a while to leave your system”. I have read conflicting statements online. Some people say there hair has grown back & others haven’t. I guess the results vary from person to person. If anyone has experienced hair loss due to accutane Help!!!
How long did the shedding last? I’m sooooo frustrated! If anyone can suggest a dermatologist, endocrinologist, or trichologist in Wisconsin or Illinois that would be great:) I currently don’t have the money to visit Dr. Richmond

Ann A June 28, 2011 at 11:00 pm

However, I’m considering saving up. Is sprironolactone / yazmin treatments indefinite & I dont hav kids yet. What if you want to plan a pregnancy?

annie Winner June 29, 2011 at 2:25 pm

i want to comment about the $3,000.00 laser cap.
it is FDA approved for safety but not for hair regrowth. i bought one about 1 month ago and don’t know the result yet. but for sure. IT DOESN’T GUARANTY POSITIVE RESULTS… most doctors are skeptical about this device… i am too but am at the point where i have no other options.

Carol July 1, 2011 at 6:09 pm

I had a hair transplant by Dr. Michael Lorin Reed’s STAFF in NYC 14 months and $7,000 ago! It has not worked. I am back to the same state of hair loss as before I did this. I asked why he didn’t do any blood tests, and he said that it wasn’t necessary. I had repeatedly asked if the procedure works on everyone, to which he said “YES” . I have been so upset that I haven’t yet gone to see him. Has anyone else had any kind of experience with this guy?

Kathy July 1, 2011 at 6:33 pm

My dermatologist recently prescribed 100 mg spironolactone for a month and told me to increase the dose to 200 mg after that. He also told me to use Rogaine for men. The Rogaine instructs that it not be used in the front of the scalp (where a lot of my hair loss is) but to only use it on the crown of the head. Can I safetly use it in front? Also, how do you deal w/ putting foam on your head 2 xs a day? My hair is thin with no body. If I add foam I’ll need to restyle it. Am I missing something? I don’t mind taking a pill but the Rogaine has me freaked so I haven’t started it. Any suggestions? I’m having a hard time thinking of using Rogaine the rest of my life.

kim July 4, 2011 at 7:04 pm

Carol, If you read this please respond! I have never been to Dr. Michael Lorin Reed but is he a complete waste of time? It sounds like he was, but I’ve heard some good things about him and I have my first appt. scheduled in 2 weeks!

Ms Peace July 17, 2011 at 5:43 pm

I lost all my body hair for the last year. I have been to over 11 doctors and have learned so much that I am at the point now of just trusting God for direction and the right doctor. Thank you for sharing all your stories. I will be praying for every person on this list of hairloss! I am not giving up. I found this hormone balance natural pill called MACAFEM and I am already feeling better. It helps balance hormones and is not contraindicative with other drugs. Check out the website Macafem.com I’ve also had 11 ;panels of bloodwork done and it shows up normal. I’ve had a heart monitor put on me from the heartpalpitations i used to have and results came back normal. I am 45 years old and been under much stress. But I am finally taking it easy. Exercising evry day and eating a very balanced diet w/out junk food and high fatty food. I know its good to get checked by an endocrinologist and dermatologist. But the most important thing is to Trust God and direct us. I want to add I had hands layed on by a pastor and I felt electricity run through my hands and the anxiety and major heart palpitations ceased and I haven’t had those symptoms since! Thank God! Don’t give up your situation will get better. I have been wearing the most beautful short haired wigs and no one could notice they thought it was my own hair. So after a while I got used to it. I think the less we worry about it the better our body will react. We are putting less stress on ourselves physically and emotionally. Peace to all of you!

Ms Peace July 17, 2011 at 5:54 pm

God Loves YOU he has the best on his mind for you. Just think all the people we are helping by giving our own testimonies. There are so many people going through this more than we can imagine. Thank you for sharing your story. It has helped me very much. I think its important to be sad, be mad, and then move on because dwelling on it all the time can bring you down…Everything we go thru in life happens for a reason. We have to love ourselves inside out. And learn from all of these experiences including hair loss! Anything is possible with those who believe! Believe in your restoration of health Isaiah 53! GOD BLESS YOU!

Ms Peace July 17, 2011 at 6:41 pm

There is hope!

Andrea July 31, 2011 at 4:08 pm

Im new here and suffer from hair loss. I’m 25 and have developed bald spots about 2 yrs ago back in 09. On the side of my head near my temple areas. I hide the bald spots with headbands every chance i have because i feel as if people just look directly there…im self concious about myself because about a year ago i had a head full of hair and now i dont..I want to seek help just doesnt know where to begin…im currently takin biotin and keep hope alive…

Bee August 2, 2011 at 11:45 am

Hello,
I’m 28 and suffer from patches of hair loss. recently it has become so bad that i can no longer leave my hair down. it is really distressing for me, especially as I have recently met a guy and I’m not sure whether I should tell him about it or not. Currently when I meet him, I back brush my hair and try my hardest to cover the gaps; this ultimately means i am making things worse for my hair! I dont know what to do :-(

Siumai August 7, 2011 at 4:36 pm

Hi everyone,

Thanks for all the posts and suggestions. I’ve been losing so much hair now for about a month already. I’m in my 20s and I got depressed over this greatly. I went to a dermatologist and he prescribed rogaine, but did not give me an explanation nor requested tests. I did not use rogaine because I’m scared that I’d have to depend on it all my life.

Aside from the falling hair, I’m also experiencing bouts of arrhythmia. There are instances when my heart would beat slowly and it feels like it’s going to break my ribcage. It’s hard to breathe and I get dizzy. Do you think these are related? I don’t want to go to another doctor yet because I haven’t researched yet and because of my many disappointing experiences with them, I would never dare to consult with one without knowing anything.

K August 9, 2011 at 8:38 am

Siumai:

Have you experienced anything dramatic? Car wreck? Tremendous unusual stress? Are you on Birth Control? Did you stop? Did you dye your hair? I believe the arrhythmia is due to anxiety but you may want to go to the doctor for that. All of these questions may answer the problem. There is a condition called telogen efflivium (it is a temporary condition) and will run it’s course for 3-9 months no one knows the exact length. All we do know is that there is nothing to stop it. You are wise to not start rogaine but you really need to look into these questions. And if your answers are all No. Go to another dermatologist and voice your concerns. Ask for all the blood tests related to hair loss do a scalp biopsy get to the bottom of it. Find out if it is temporary and if it is let it run it’s course and do whatever you can to not stress. Then if it is more than that get into action and start treatment because the sooner you treat it the better the results. Hair loss is not cookie cutter there is no one answer for all of us at this time. I wish you the absolute best.

Karen McNeil August 12, 2011 at 4:39 am

Hi, my hair has deteriorated over the last 5 years. I used to get it cut and coloured regularly, then due to the loss of my partner, job and having to look after my mother who is 91, I developed nervous eczema and now my hair is a mess and I can’t have it coloured due to the condition, it is very fine and grey.

MissAyn August 22, 2011 at 1:45 pm

Hello everyone!
I am riddled with anxiety over my hair loss. I have been loosing my hair for the last 20 years and its only on top, almost like male pattern baldness. I went to Hair Club and am going to be fitted for a hair piece as I can no longer take looking at myself in the mirror.
I am a worrier to a fault and all this has kicked my anxiety into high gear. I’m afraid that I’ll get the hair piece done and it will look terrible.
Has anyone done Hair Club? The girl I met with was really nice. I felt comfortable with them and I was surprised she didn’t try to talk me into a hair transplant because a) its expensive b) she told me straight out that they don’t always work for women.
I’m the only female in my family with hair loss. I’ve tried Dermatologists (like the one that told me, “Oh I lose my hair too because I just had a baby. You can’t tell you’re losing your hair.”
My ob-gyn gave me spirnolactone (?). I like the idea of finding an endocrinologist. I am changing insurance companies right now so as soon as I get sorted, I’ll be making an appointment for sure! I know there is something wrong with me, I lose hair by the handful daily. I’m hoping hair club will at least allow e to build some of my confidence back up while I try to find out what is really going on.

I’m so glad I found this site and thanks for listening.

K August 23, 2011 at 11:56 am

There is really sadness in my soul today. It is just like I’m constantly searching for hair with no answer in sight. I’m just having a really bad day and want to feel better about this situation. I keep reminding my self it is not an arm or leg or foot or hand I can continue in life without physical limitations. I have my sight and hearing and senses. And health but stress is really affecting. I’ve have been working out so hard just trying to relish in that. I am slim and feel good in my clothes. I just keep reminding myself of all these wonderful blessings but I have sadness in my soul. I miss my hair more than I can even put into words. I miss it I miss it I miss it I miss it. Just feel desperate today. I wish I could just touch it and feel the density I once had. I just had to write and get this off my chest. Why are there no answers? Why? Why can’t this be fixed without horrific side affects and a lifelong commitment to drugs and potions! I miss my hair. I miss who I was 2 years. That person no longer exists. And I miss her. I miss the way I use to look forward to getting up and not knowing what was in store but whatever happened I could tackle and handle. But not now I crumble I’m intimidated, I’m insecure, I’m hesitant, I’m preoccupied, I’m hurt, I’m damaged, I’m a shell of the person I used to be.

Ann August 24, 2011 at 5:01 pm

K:
I haven’t been coming out here in the last few weeks as often as I’ve been trying to get my mind of my hair loss. It is not easy to do when you are reading about it all the time.

However, I had to post a reply to you when I read what you wrote yesterday. Girl, you have GOT to get a hold of your priorities. Trust me, I know what you are going through. I may not have your same exact situation, but it is close. I think you are so focused on this that you are likely deeply depressed. I am sorry to be so blunt, but I know when I am down, sometimes some straight talk is the just the thing I need to hear to get moving on and making positive changes.

You ARE the same inside, but you are also different… you’ve been through a lot and it is so difficult to to stay strong through this experience. I won’t even go into the hair stuff, because it sounds to me that this is not what your post is about. You need to get some really solid support and find something other than your hair to focus on. You need an awesome hair system…and support system. From there, I hope and pray for you, that you will be able to find happiness and balance in your life again. You are a glorious human…don’t doubt that for a moment!
Please keep me updated…I’m worried about you and want you to know you are not alone.

K August 25, 2011 at 5:58 pm

Ann

I’m typing on my iPad so forgive the many mistakes I will make. Thank you so much fornrplying I’ve been wondering where u and Pilar are. And good for u for not visiting. Ive had my moments where I can stay away and eve feel good. I had all of my extensions removed and I think it has affected the way I feel. But bit feels so good for them to be gone! And in all honesty my hair is in even better shape than it was before I got them. My ends are not as wispy as they were. I wore them for two months and they really made me feel better but I could never wash my hair like I wanted and every time my husband touched my head he said when are u going to get these out! Anyway I’ve felt not as good since I had them removed. I like to hibernate but my husband is a social butterfly; I use to be……but we All know how this changes you! Please please let me know how the propecia works. If there are any side affects, etc….like weight gain, moodiness, gloating etc…..there is a lady bin our office on spire and I have been reading the horrific side affects it has and I’m wondering about propecia. I hope u r doing really good. U sounded really strong in ur post and I’m glad. And yes I am deeply depresses over this. I would so get a hair system but my husband is soooooo anti fake anything. Which drives me crazy. I just want to feel better. Have a blessed nite and thank u. Please keep in touch and thank u for replying I felt I would hear from u. Have u spoken to the doc since u ve been on pro?

Ann August 27, 2011 at 5:08 pm

K:
Hey, lady. I am glad for you that you got the extensions removed if it makes you feel better, but if it doesn’t then you should get them put back in. I understand wanting your husband to feel you are attractive, etc. but if he did not like them but you did…maybe you should talk to him and tell him how much better they made you feel about your appearance? A thought anyway. I am totally single so don’t have anyone to please but myself but I think in our hair loss, we have to make ourselves feel better first. That produces an effect that trickles down to everyone important to us in our lives. I’m sure your husband thinks you look gorgeous either way but you have to do what makes YOU feel gorgeous!

I am so sorry you’ve been so down. I’ve had some other troubles lately that have been bringing me down so the hair loss almost seems so much less important right now. I may lose my home to foreclosure in the next month so I’m focused right now on getting that resolved and trying to stay out of foreclosure. Then I can go back to focusing on my hair again! ha!

So far, I’ve only been on the Propecia for about three weeks. I don’t notice any side-effects thus far. I am taking 2.5 mg of Proscar, to be exact. I feel good and have not noticed any difference in my hair. I continue to lose about 20 hairs when I shower and brush it each day. That may not sound like a lot but I have already lost so much of my hair, that I think that represents more hair loss than it sounds. At least it is stable for now…I thank GOD that it is not getting worse. I DO have re-growth but it is fine and “wispy” as you said. It is not the same as the rest of my “normal” hair but hey, at least some of it is growing back in. Slowly and finer. That seems to support the AGA diagnosis. The thing that really drives me crazy is that I still don’t know WHY the TE started in the first place. The TE unmasked the AGA, but why the damn TE and what from here? Anyway….I digress and obsses! :)

Remember, it’s not the hair on your head that counts but the head on your shoulders! Hey…that could be our motto. what do you think?

K August 30, 2011 at 4:53 am

Ann, I’m so sorry to hear about your home. That breaks my heart for you. I wish you the best in recovery of your home and blessings on your finances. But I do have to say I think that only losing 20 sounds like a dream! I absolutely know that my TE was triggered by PPD in hair dye. I only wish that I would have figured it out sooner. I was forewarned with itching for a year, no dandruff flaking or anything just itching and that was my body trying to heal itself against the allergy and the all hell broke lose on my head! Please keep me posted propecia; I wouldn’t even look for any improvement for 6 months though. But please be here when you do see it! Have a blessed day!

Ann August 31, 2011 at 9:21 am

K:

Thanks for your response. I appreciate the concern fore in my housing situation. I am hoping to get a short-sale approved and avoid foreclosure so please say a prayer for me!

Also, re: the Proscar, I think that it may already be helping some as I think my shedding may be tapering off a bit more. I am losing a few less hairs Per day now. Maybe? I don’t know, but I am trying to stay positive!! I have no real regrowth. Just wisps, extremely fine hair, almost hard to see. Kind of transparent. I am not expecting miracles, but trust me…. THe moment I feel I have any true results to share with you girls, I will definitely be posting them! There aren’t many success stories out here. We need more. I guess people don’t come out here as much if they are experiencing good things w their hair?

I miss Pilar! Wonder where she is?

K September 2, 2011 at 8:09 am

Ann, Glad you have a plan for your home. I hate it for your little girl too.

I’m glad that the shedding is slowing down.

I miss Pilar too. She is always so encouraging and positive!

Have a good weekend.

Cha Cha September 28, 2011 at 1:21 pm

Lost for answers!

——————————————————————————–

Hi everyone,
I just came across this website, I thought by chance but I think not! I have been having scalp pain, like my skull wanted to crack open. Then the tendersness of my hair folicals when the wind would blow. I started to loose lots of hair so went to my family doctor. All the test were done for Thyroid problems…all turned out what they call “normal”. Have you seen the wide range which is considered normal? How can this be when everyone is so different? I am loosing hair as I sit and write this message. The hair just gently falling onto my shoulder. I need to color my hair as it is time from the length of my silver roots but the last time I had my hair touched up, I thought I was going to die from the pain when the stylist tried to just shampoo the color off. Oh my God! Painful, painful. I used to be a stylist so you can imagine my shock when I was told it wasn’t my Tyroid!
Can you tell me what I should do “first” since you all have been dealing with this “tragedy” longer than I.

undisclosed October 3, 2011 at 7:28 pm

I’m 24 and my hair is thinning. I use to have thick hair that I’d always get compliments on. It use to be shiny. I use to straighten it and blow dry it like crazy too! (and color it from time to time).

About 2 years ago my hair started thinning. I thought it was because I was in college and stressed. At that point I started going what is known as “CG” in the curly hair world. I no longer color, flat iron, use sulfates and I rarely blow-dry and use silicones. I use shampoos and conditioners with beneficial ingredients, not fillers. After 1.5 years on this Curly Girl routine, I experienced some relief and noticed my hair getting thicker. That lasted a couple months and now I’m back to losing a ton of hair. One day I counted 160 hairs…that was on a decent day. I’m sure I’ve lost 2x that amount before. My hair is noticeably thinner, drier, and it knots. It NEVER use to knot. I think my hair has become finer too, but I’m not positive. It just feels more fragile.

I do not believe birth control pills nor rogaine to be an appropriate long lasting answer for hair loss. I do not want to be on drugs for a length of time. Luckily, I have researched how the answer possibly lies within your lifestyle. What you eat, How much you exercise, how much sleep you get and stress you have. As for hormone-caused hair loss, the adrenal gland produces a 1/4 tsp of hormones per year. If you go slightly under or over that amount, a hormone imbalance is the result. If you use table salt, or are on a low-salt diet…you may be negatively affecting your hormones.

!!!!!!!!!!!!!!!!!!!TRY THIS!!!!!!!!!!!!!!!!! (sorry, just trying to get your attention. It’s crucial.)
Sea salt has the ability to stabilize hormones, alkalize the body (which is SUPER important), and do a plethora of other beneficial things. Due to very weak experimentation by doctors, most people believe the stigma that salt causes high blood pressure and we should avoid salt. It’s true, TABLE (or refined) salt causes blood pressure to rise. Table salt is sucked dry of 80 minerals in order to make it look pure/white. Unrefined light grey salt (aka sea salt) contains 80 minerals our bodies need. It has the ability to LOWER blood pressure, stabilize hormones, correct pH levels, prevent acid reflux, detox, decrease hypertension, strengthen the immune system, helps with chronic fatique, etc, etc…
Conclusion? EAT MORE SEA SALT. DO NOT use table salt…ever. Low-salt and table salt diets contribute to heart attacks, diabetes, polycystic ovaries and obesity. They also promote toxicity and makes your body have an acidic pH, which is not good. That means gatorade is NOT replenishing. It’s better to take a dash of sea salt with water before and/or after exercising.

I’ve been taking a 1/4 tsp 2x a day with a big glass of water for a little over a week now. I’m feeling more energetic and my pH is closer to where it should be (7.5). I can’t wait to see if it makes a difference in my hormones, translating to less hair loss.
The book I read to gain this knowledge is called “Salt Your Way to Health” 2nd Ed. by David Brownstein.

Eva October 18, 2011 at 9:53 am

Update from Eva 06.07.11 at 8:48 pm

Thank you for everyone who read and responded to my original post! Thank you Pilar for the reference! After seeing the doctors I mentioned and with time lapsing after quitting A-Ret (generic Retin-A) the IMMENSE scalp pain went away. My dermatitis also eventually cleared with aspirin masks (pulverized aspirin 2-3, honey and water) and much more frequent (and unfortunately stripping) shampooing with natural formulas.

I also stopped using vegetable glycerine as a humectant on dry hair which stopped some, not all, of my breakage. In my dry climate and without my using a 1:1 or 2:1 water/glycerine ratio mix as others do, the humectant seems to have attracted moisture from, not to my hair as is its function, causing it to become dry, brittle and fall out.

My scalp is pain-free but has on occasion flared again but 1/100 of the original pain. My scalp still needs frequent shampooing (I could go weeks without it before) to keep the dermatitis at bay. My hair and scalp are still fairly dry and brittle despite aloe for moisture, avocado oil to moisturize and seal in moisture and Behentrimonium Methosulfate to close cuticles, provide slip and halt hair snapping, BUT the breakage is 90% better. I’m still too afraid to go back to humectants though I know they’re amazing as moisture-retainers for dehydrated hair. I have spots of completely missing hair towards my hairline that hasn’t and will probably never regrow but I’m focusing on nursing everything else back to health.

I don’t know in which proportion including diet, all of these things occurred but I believe A-Ret abuse was a large part of it as evidenced by blood tests taken by my PCP which I was never able to get re-evaluated due to doctor apathy. My sister is experiencing an unrelated bout of hair loss concentrated at her crown and feels hopeless. I’m sending her to this board and to all of your suggestions right away. My problem seems to have subsided but I’m remaining only optimistically cautious and still very vigilant about monitoring hair loss. Thank you everyone again for contributing to this board.

ak October 24, 2011 at 10:29 am

hair loss is ruining my life. anyone know of anyone in Arkansas who specializes in hair loss. dr’s and dermatologist could give a crap about it.

also, anyone tried the laser cap and seen results?

Noni November 8, 2011 at 3:39 pm

I have had hair loss for the past several years. I have seen both endocrinologists and dermatologists. I had one derm who was good, but I unfortunately moved. She put me on minoxidil 5% and spironolactone. I am now seeing and endo but he has me on Synthroid and I was very interested to read on this site that it can actually be a cause of hair loss! If anyone can recommend a doctor in Chicago i would appreciate it. I see there are 2 other people asking for recommendations but I haven’t seen responses to them. Thanks!

Abbie November 12, 2011 at 8:25 am

HI everyone

Hopeing somebody may be able to help or even point me in the right direction. I am 21 years old and have a medium length graduated bob,longest layer being shoulder length. Since march this year I noticed the right side of my head felt a lot thinner then the left. So due to this i started to sleep on my left side, havent dyed my hair since april,stopped straightening my hair everyday, let my hair dry naturall, you name it I tried it. However it has now got to the stage that the middle layer of my hair has completly broken off and is only about 4 inches long. I am absolutly heart broken about it, and also cannot understand . I do not want to have to cut all my hair off as it has taken me years to grow out an awful hair cut and do not suit short hair at all :( so all in all feel very upset and worried. If there is anybody that can help I would really appreaciate it.

Nancy December 5, 2011 at 4:39 pm

I am on Arava and my hair has become extremely coarse, frizzy, and tight tight curls in the back. The sides of my hair are pure frizz and the top is straight, with frizz. It used to be smooth and so easy to manage. Now it takes so long and it looks awful. Anyone find the same thing and anything that helps? I have tried so very many hair products, so has my beautician. She says it is like I have 3 completely different textures on my head.

Jessica December 13, 2011 at 8:03 pm

I was searching the internet and came across this wonderful site. I really appreciate you posting this article. I have always had a small bald patch on one side of my head. My mom told me it had always been there so I didn’t worry about it. Recently it has been getting larger and the hair around it is getting lighter. On the other side my hair is thinning and the color and texture is changing. It also seems to be falling out. I have excessive hair loss on a regular basis. I am only 24 years old and I can’t stand that my hair is falling out. I went to the dermatologist and he gave my injections but they didn’t work. He said I have alopecia areata and that the other side was a normal receding hairline. (He barely even looked at it) He then told me after the injections weren’t working to try Rogaine. I think it might be helpful to see an endrocrinologist as I have also been having problems with anemia. Again, thank you so much for the information you have provided.

Graceey December 28, 2011 at 6:15 pm

The more research i do about hair color and PPD/PTD allergy the more I think that my hair loss is from that… it has been 7 months now and my hair is growing back. I have not had a tight /itchy scalp/ no more feeling as though bugs are crawling in my hair. I have only gone to the Hair loss dermatologist-whom did not think it was hair dye and the regular doctor to check my hormones. I would love to cover my gray – My hair is very dry at the roots. I went to a stylist(hair loss sprecialist) not much info there-master colorist-she did not know about PPD allergy- I do think stopping coloring my hair has help me keep me from lossing more hair and I think some have grown back. I really would like to color, but I am blonde and gray so I don’t think henna will work. I want to tell you about the reaction I had was first itching and then hair loss. Please take note if that happens to you. Then doctors- they said it was probably not the dye.Wrong! They said Hair loss came with age and hormones. I had all of those tested . Then 6 months later I had the salon dye my hair and a bad reaction bumps and itching and hair loss.Again! I still would like to see a doctor that has knows about hair loss or PPD allergy Or a salon. I have not found anyone in Florida. Keep researching. Mostly I have learned from these web sites and I have educated the doctors and the salon. I know it is all about money and that is how these chemicals stay in the products we are using. I did use rogaine before my first reaction. I thought might have had a chemical reaction from the rogaine and hair dye being used in the same week.

loretta February 9, 2012 at 8:23 pm

i have been loosing my hair for a few years and over the past two years have some bald spots. i changed my shampoo to sls and paraben free and though it is minor my hair seems to be falling out a little less and less clumps of hair coming out after washing and stopped using conditioner all together.

KK February 24, 2012 at 6:39 pm

I am 43 and I have been thinning/losing my hair for the past four years. It is so upsetting. I know very few people who can relate…until I came across this site. Has anyone tried apple cider vinegar? I read that it can help with hair loss, but I am skeptical, as all of the remedies I’ve tried thus far have been disappointing. I try to put my hair loss situation in perspective, but I’m not always successful. Best wishes to all of the women on this site. I hope hair restoration is around the corner for all of us.

Rachel March 1, 2012 at 10:35 am

I’ve had a small bald patch in my part since I was a teenager..I used to think it was a scar from a bad scrap I got once. I recently cut my hair rather short and donated it and have since noticed alot more hairs falling out. Part of me thinks I notice simply because now they land on my shirt and before they always just fell off. I’m just worried that it could be baldness, because God love him my Dad has been going bald since he was like 19. I’m 20, have had a kid and hypo-thyroidism runs in my mother’s family. I don’t want to go bald, I’m terrified of it actually and was just wondering who the best person to go to, to figure out if this is just a scar or if I’m really going bald. Anyone have any suggestions?

Miranda March 11, 2012 at 11:16 pm

Hi,
I have seen several doctors for my hair loss, none of them have been helpful or taken me very seriously. Can anyone recommend a good endocrinologist or dermatologist in the Lexington, KY area? Thanks!

Tanya March 19, 2012 at 4:22 pm

Greetings ladies, I am so happy I found this website. I have a 19 year old daughter who has been experiencing hair loss for the past 5 years. Throughout high school, she wore hair weave to camouflage what was going on. She is now a sophomore in college and wants to wear her natural hair. It is frustrating her because we don’t know why its happening. Does anybody know of a good endocrinologist in Chicago? Do you think treatments varies depending on ethnicity? She is African American.

D April 9, 2012 at 4:19 pm

hello ladies.

i’ve come across this site before, but today has been an already 5 hour session reading everything that has been posted and researching things on the side. first and foremost, i want to thank you all for your words, rants, and honesty. i stayed home from work today after breaking down in the bathroom, already dressed for work, because of my hair. a few posts made me cry, a few made me smile and all remind me that i am not alone. i, like a few of you, hate that i focus on my hair, but even though i try my damndest to not do so, it really does depress me. i know i will bounce out of it, but it’s only a matter of time before it comes back. today is the first day that i have ever not gone in to work because of the hair situation. here’s my story:

i’m currently 41. I started noticing my hair texture changes first, when I was 17, a junior in high school. as a child and teenager I had thick, curly hair. and, i started dying it in 8the grade, just the bang area, for the whole 80′s new wave look. in high school i’d dye it blue/black as i entered a new “phase” of the 80′s, lol. the texture of my hair started to feel thinner, and was getting knottier. and i noticed it was mostly the top layer; my underlying layer of hair was still bouncy. then i noticed i couldn’t wear bangs any longer. i was sad, confused and embarrassed. this was before the internet so basically i just dealt with it not knowing what was going on and no one i could talk to.

when i was 24, went to so. america to visit family. they hadn’t seen me since my last visit, which was when i was 17. there was a guy who i had liked and hung out with when i spent my 17th summer there and was excited to see him once again, “as an adult”. i think it was the second day or so of hanging out with him when he says to me: “hey, i noticed you’re losing your hair”. i was beyond embarrassed at that moment and all i could muster out was, “yeah, i know”. thanks for pointing it out there buddy. next came anger mixed with that embarrassment. i felt, and still feel, that people stare at my head and notice my thinning hair when they are talking to me. when i came back to the states a few weeks later, the first thing i did was make an appt with my pcp. she referred me to an endocrinologist who found my testosterone level slightly elevated. it was in the 70 range. i didn’t have masculinization going on so she told me she didn’t want to put me on medication and to return if i noticed in increase or changes in symptoms.

for the next 10 years i dealt with it. noticing my hair getting thinner with every passing year. a quick side note, my father is bald and my mother has always had beautiful, thick wavy locks. taking in to account that the supposed gene for hair is carried maternally, i was confused because my maternal grandmother who passed at age 86 had the most abundant set of thick hair i’d ever seen. it just didn’t make sense to me and only served to depress me more. my mother has since developed traction alopecia, due to her pulling her hair tightly back daily, for work, for years. she has since kept her hair short, but mine looks worse. back to where i left off. at 34 i decided to go to one of the hair restoration places. they took pictures and walked me through the process. it was an odd place, though. small, small place. one guy. said i was a good candidate. he showed me pictures of what my hair loss would possibly look like in another 10 years. i started sobbing. it felt more like a scare tactic than anything so i left, and decided against it, for the time being. still haven’t gone back.

in 2010 i decided i needed to find some good doctors who understood my problem. i decided to research for a good endocrinologist (my previous one was with Kaiser) who took my ppo. and i found her. i recommend her to all you ladies out there who want to see a detailed, thorough endocrinologist in the SoCal area. her name and info is:

Marlys Drange, MD
800 Fairmount Ave
Ste 310
Pasadena, CA 91105
(626) 795-2663

again, she found my testosterone level a tad high, in the 50′s. she initially wanted me to start on both metformin and spironolactone. i am not a diabetic, but apparently the metformin stops testosterone production and the spironolactone inhibits testosterone from absorbing…or something to that nature. she didn’t come out and say that my elevated level was the cause of my hair loss, but she did say elevated levels “could” be the culprit, but that either way she wanted my levels to normalize. makes sense. she listened to me patiently and spent a good amount of time, medically, with me. she ordered labs: not anemic, good iron, good protein, no thyroid problems. the metformin made me sick. she told me to start slowly with each med and that she’d increase it with time, based on my body’s reaction. with spiro you need to have your potassium checked within two weeks of starting it. sadly, i didn’t follow through with the meds because they made me feel so sick and i couldn’t go back to her since i lost my insurance. but after reading all of these posts, i have scheduled another appt with her in a few weeks and will ask her to put me on spiro only and will see if this helps.

in between all these years, i also tried some homeopathic methods. i read dr. andrew weil’s book on health and used to take 2000mg of alpha-linolenic acid either by evening primrose oil, grapeseed oil or borage oil. it didn’t regrow my hair but i do feel that it helped stall it. only problem is that after a year or so it stopped working for me, but it may help some of you out. there’s a connection, according to dr. weil, between alpha-linolenic acid and hair. i’ve also used homemade rosemary water and washed my hair with it, but it only helps with making me smell like the bush it comes from.

so here i am. i’m ready to try the spiro, alone, especially after reading your posts. i’ve thought of shaving my head, and i may be closer to doing that. i keep my hair in a short bob since it helps not having it knot up when it’s longer, due to its fineness. i try to let it air dry, but blow drying it, upside down, adds volume. plus my curls do not really form anymore because of the texture. i have never counted my lost hairs individually, but i don’t need to have an exact number since just eyeballing what comes out every time i wash, comb, or just touch my hair is stressful enough. it’s hard to be in the sun. we hung out at a garden for Easter yesterday and the sun was burning my scalp. i have tried expensive shampoos, but nothing. i may look in to the toppik. i used to use this bumble and bumble brown hair powder, but since it didn’t quite match my color (it’s only available in three shades) it didn’t look so convincing. the toppik makes more sense since it’s a fibrous material.

i also have learned that most people are low in their vitamin d levels, which may also contribute to hair loss. i actually had labs done to check for my vitamin d level, by a cardiologist. my heart is fine, thankfully, but she did tell me to take 2000i.u. daily of vitamin d3, specifically. when i researched about it, i found the possible hair connection. so i do take that daily. i will also be buying vitamin b6 and 12 and biotin. and i will research the gut connection because biologically speaking, it makes sense. i will return with another post in a few months and update.

in the meantime, no matter how awful i feel, i have to remind myself that my hair is just a small extension of who i am. i can’t, and shouldn’t, regardless of what the public media says, allow myself to be so superficial. i have my health, my family, a boyfriend who loves me and thinks i’d still look “cute with a shaved head”. that’s what matters. not those who judge you by your hair. there are children, people dying from things that can be controlled, reversed, and/or prevented . the damn double standard of being born a woman. men look dashing, a la Patrick Stewart, with bald heads. society needs to accept the same for women. i have my moments of weakness, today especially. when i just want to ball up and sob and scream “why me”. but as long as i do my best, make sure my health is good overall, then i have to come to peace that it’s something i cannot control or prevent. i may be able to do so for a little while, but that alone is stressful. i’m just trying. thanks for reading. peace and love to you all.

Lauren April 26, 2012 at 12:38 pm

Hi everyone! First off I just wana say this is a great site and thank all of you for sharing your experiences with hair loss. I too am having a huge problem with this. I’m 21 years old, and it’s been going on since about October of last year. Since then it has gotten much worse. I’m so scared to wash my hair, because every time I do, 100 or more hairs fall out. I’m also having the sore scalp feeling like somebody is pulling at it. It’s horrible. I’v had long, fine, but thick and straight hair forever. It’s always been very healthy. But now it jsut looks awful. I plan to see a doctor soon, but not looking forward to it. I guess I’m just really depressed about this right now. Last night I cried myself to sleep. It’s the first time that’s happened since this has started. I’v tried to stay strong, but holding it in hasn’t helped. So anyway, I’m looking into wigs, but I really need some help finding a natural human hair wig that is affordable. If anyone knows of a place or site, please let me know. I’m so sorry that all of you are having this problem and I feel your pain.

Suzzanne April 29, 2012 at 12:16 am

Just found this site today and want to thank everyone who is sharing. I don’t have the words for how devastated I feel about losing my beautiful, beautiful hair. Thank you for the information and fellowship here. I have a wonderful internist, but she hasn’t been able to help, (been dealing with PCOS for 12 years now and severe hair loss since Feb 2008). Will be looking for an endocrinologist and a dermatologist now too. Hope I can give back some day with good news.

Colleen July 11, 2012 at 6:29 pm

Hi Ladies – It saddens me to read these posts but I feel thankful for this virtual support group.
I am 29 and started experiencing hair loss at 17. I have always been a upbeat, social person but find myself ‘hiding’ and withdrawn. I don’t want to go out that much b/c doing my hair is too much of a process. I’m worried I will never find a man who will be accepting of this.
I have seen several endocrinologists, had a scalp biopsy, tried rogaine etc.
My current solution is this : I have bought clip in hair extensions from Sally’s Beauty Supply store (about 100$) I actually just trim them myself and dye the hair left on my head and the extensions using an ammonia free hair dye (L’oreal or Garnier) in order for them to blend. I use a lot of root lifter and fill in the balding spots with Toppik (dark brown) and top it off with a shine spray. I’m telling you, most people have NO clue of my problem. I feel this is the best way to feel like a woman as I continue on this quest to solve my hair loss problem. I’d be happy to tell more of you about the regimine … high maintenance yes, but you know what, we all have to do what we need to do.
Gone are the days of feeling beautiful post shower or swim in the ocean. I currently work in clinical research and am always looking on clinicaltrial.gov to see what the newest research is on hair loss. I know gene associated with male pattern baldness was identified so I truly believe in a few years, we may have a solution.

I understand you all, especially b/c no one close to me understands the pain I deal with and insecurities I feel. I feel like a boy. I am in pretty good shape, know a thing or two about makeup … but the lack of hair makes me feel like the ugliest person in the world. I just want to be happy again.

I will share any new information … promise. There are so many entries about our problems on this blog and so few are about what solutions we have. Keep trying, keep researching – and share, share share.

I live in Boston and would love to start a support group and do fun ‘girly’ things without the fear of judgement!

Colleen

karen July 19, 2012 at 6:06 am

What a helpful website, thank you ladies for sharing. I am 55 and am loosing hair by handfuls when I shampoo. I have been using Minoxodil extra strength for about 5 years and it was helping but not anymore. I also have been taking Nioxin hair vitamins and they helped for the first 3 years but not now. I am going to check out Dr Redmond like several of you recommended and head to Sallys for hair extensions also. Does anyone know of a good Dermotologist or Endo Dr. in Humble or Kingwood Tx area? Karen

Jean August 4, 2012 at 10:06 am

Took 8 tablets of Levaquin – {500 mg} for bronchitis 4/2010.
Lipitor 40 mg changed to 80 mg 8/2010……..QUIT 12/2010

Perscribed and take Crestor 10 mg since 2/2012.

Hair has always been baby fine – but thick enough. After these meds it has been falling out in large amounts. I use name brand thickening shampoos and only shampoo about every 5-6 days. I carefully comb out after shampoo, where much hair is lost .

Doctors have tested thyroids – says they are ok. I am 79 years young.

Other meds I take: Levothyroxine 75 mcg; Pantaprazole 40 mg; diltiazem 240 mg; maxide 25mg-37.5 mg; misoprostol 200 mcg; alendronate 70 mg; aspirin 81 mg; hair/skin/nail suppliment.

I live in MS Gulf Coast area. Would be willing to travel 600miles to a good doctor – do any of you know where one is to find out how to stop this loss.

Blue September 9, 2012 at 4:51 pm

Hi everyone. I seriously feel like crying when i read these comments. Hair is often associated with beauty and health so when it isn’t looking the way we want it to, it’s really suck, doesn’t it?
I’m seventeen and my hair has been gradually thinning for 7 years now. I’ve met some pretty unhelpful doctors who just prescribe me iron pills, always it’s the iron pills. I just wish i could have hair like i used to and thinking about it makes me feel really bad and just kills my self-esteem at times. But what i’ve learned is that there are alot of tough things to go through in a person’s life and instead of complaining 24/7 about what i don’t have, I’ve learned to appreciate the things that i do. Im not saying i wouldn’t be the happiest person in the world of by some miracle my hair decided it wanted to grow back again..that would be awesome! But i know i would give up every hair on my body for the things that i do have, like friends and family and my comfortable life and my freedom. Hair is really really important but i know things that are way more important to me. I hope all of you will keep that in mind too! I wish you all the best of luck so keep trying!!!!!

Liz October 6, 2012 at 4:38 pm

Thank you for all your post. My daughter had extremely thick hair about eight years ago. It was so thick you could barely put it in a scrunchie. Her hair has been continuously thinning to the point that you can see through it. All the women in my family on both sides have extremely thick hair. We live in the north east and have seen several GP and a Dermatologist who act like there is nothing wrong. I work in the medical field and when I hear this I get so mad because I feel like they want to just brush of like no big deal. It is a big deal to all women no matter what ages. I have written done some of the post advise and will continue to look for an endocrinologist for her. Please keep me postes on any new developements.

Anonymous October 11, 2012 at 11:02 am

Complex B vitamins with folic acid, and protein. There are some cereals on the market loaded with B vitamin. Noodles and pasta are important. I have hypothyroidism, I care. there is alopeica in the family. Be patient, give it a try. Stay with it for months.

please help November 11, 2012 at 5:10 pm

Does anyone know of an endocrinologist, dermatologist, or gynecologist in Texas that specializes in hair loss????

faith November 20, 2012 at 4:54 am

Im a women in age of 32 years, I lost my hair since 2008 from front of my scalp and back of my hair. I’ve tried almost every hair product but they is no different. My big worry um getting married next year and i don’t know what am i going to do and im so stressed about losing my hair.Im willing to spend even it an expensive product for my regaining my hair back.I will appreciate your help.

Samantha January 3, 2013 at 5:32 pm

When I feel broken, alone and so sad..it helps to read I am not alone. I have been losing my hair for the past 10 years. All test are normal, except I have been diagnosed with androgenic alopecia. Told all I can do is rogaine. Told by doctors since I am entering my 40′s now, I should “accept” this.

I hate feeling broken and weak. I hate to look at myself. I am so envious of those with different hair styles, colors, etc. I just live in fear every day that it will be nothing soon. Back of head soooo short.

Just know I am researching, many are-so those of you who have been helped, please do share. We are desperate to be ourselves whole again.

allison January 9, 2013 at 12:15 pm

Hello all!!!! I would suggest all you havent been checked for pcos, to do so!!!! Its prob the issue. It reaks havoc on a womens hair and body. I take saw palmetto and my bc pills everyday and have been happy with results. Saw palmetto is used to stop testostrone from turning into ht with causes . the follicle to shrink and not be able to support a healthy hapr so it bdeaks off and eventually falls out. Ive heard good things about. Hairessentils vitamins

Dora March 21, 2013 at 4:12 pm

I’m 45 yrs of age. It seems like I’ve been fighting this battle forever. I live in MS. I went to the dermatologist here and he acted as if he did not want to touch me. So my quest for help continues. Thanks for the info I have read upon. It is very helpful. God Bless All Of You….

Carla March 29, 2013 at 9:42 am

I’m so glad I came across this site. I’m 41 and started to lose my hair in Aug 2011. It started out as two bald spots in the back near the hairline. I went to a Dermatologist who started me on steroid injections, Topicort, and hair, skin and nails vitamins. After a few months, they didn’t seem to help. I went to my Internal Medicine md. He ordered all types of blood tests, $4,000 worth, which all but my Vitamin D came back normal. I started a Vitamin D supplement. He suggested I live my life and be happy. I then went to an Integrative Medicine md, who ran more blood tests that came back normal, urine tests that came back normal, and had me do a GI Repair Kit. I even tried going gluten free. I take a multivitamin, Omega 3, B Complex, Vitamin D 10,000 units, and hair, skin and nail Vitamins. I’ve cut out fast food and processed food. Drinking lots of water. Not exercising like I should. I began to gray in my twenties and have been dyeing my hair for years. The Dermatologist told me it didn’t cause the hair loss. I went months without dyeing my hair just to see if it would help. Nothing has helped or stopped my hair loss. I have now lost most of the hair in the back and on the left side over my ear leading to the front. A month a go I noticed a huge bald area on the right side in the front. I have been so depressed and self-conscious about my hair loss. I have been staying in the house and avoiding gatherings for fear of someone noticing. After spending lots of money and not getting any answers, I feel so helpless. I purchased a wig, but since my remaining hair is long and covers the bald areas, I haven’t started wearing it yet. It is a comfort knowing that I’m not the only one going through this. People don’t seem to understand. I know I’m not my hair, and my hair doesn’t make me, but it is a very traumatic thing to go through. I’ve decided to take my Internal Medicine md’s advice and to just live my life. I can’t continue to be depressed over something I can’t control. I wish everyone luck and I will continue to follow.
Carla

Pam April 2, 2013 at 11:48 am

Would someone please tell me what PCOS stands for? I am planning on going to a dietician for a saliva test. I will let y’all know what comes of it! Thanks for all your posts. Prayers for all of you to feel beautiful, again, however that takes place!

Carla April 4, 2013 at 4:33 am

Pam, PCOS stands for Polycystic Ovary Syndrome. It is a problem in which a woman’s hormones are out of balance.

NAZIA June 4, 2013 at 10:39 am

Hello All,

my daughter is 19 and has been diagnosed with androgenetic alopecia. She has been to several dermatologists. They don’t understand the problem. I am planning to bring her to Dr. Geoffrey Redmond. I read his website. He surely knows how to treat this kind of hair loss. I spoke to his receptionist… they are very accomodating and profesional. So, as much as I would like to believe, that Dr. Redmond will be able to fix this altogether, I do understand he is not a miracle worker. But, I do believe, if anyone can understand this

Ann June 4, 2013 at 6:36 pm

I live in the northeast and have been dealing with thinning hair about three years now. I was using women’s rogaine for a couple of years and then it stopped working. I take levoxyl for hypothyroid . The only doctor I trust is my endocrinologist. When the rogaine stopped working I called the doctor and he prescribed Spironolactone. My hair has stopped falling out by the handful and is starting to look healthy again. Hope this information can help someone.

Gen July 11, 2013 at 7:51 pm

I am 45 years-old and started noticing a thinning of my hair about 2 years ago. I did see a dermatologist specialized in hair loss and was only prescribed a testosterone lab test which came back normal. My scalp is vey itchy but I do not have dandruff or any signs of dry skin. It sometimes hurts so bad I wake up at night. I was prescribed a steroid shampoo and a steroid lotion which have helped calm down the itchiness and pain if used regularly. I was diagnosed with Female baldness (mostly on the top which is really thin now) and dermatitis. not further explanations. I was also prescribed Rogaine 5% and a mixture of Rogaine and RA to use every 3 days. once a day. should I start using them twice a day? its only been 3 months and I have not noticed a change. I accepted a job to work from home because I was getting too self conscious to go to work at the office. I am very concerned by my appearance usually but this hair loss is a constant worry.

Julix August 1, 2013 at 12:52 am

Does any one know of a hair loss doctor in Northern California ? Mega vitamins have really slowed my hair loss , at least this week, also eating a ton of protein …will see.

Annie October 4, 2013 at 11:24 am

Hello I gave up years ago and have been wearing hair pieces. If u live in Nj I know someone who will come to your house or you can go to his and he will make you a custom piece depending on your needs. I started the journey again because I noticed that my daughter is starting to resemble me. I want to get treAted so that I have an answer for her. I really can’t afford dr. Redmond but I am giving it a try. I will share my experience.

UD October 27, 2013 at 4:31 pm

LOOKING FOR AN ENDOCRINOLOGIST, DERMATOLOGIST SPECIALIZING IN WOMEN HAIR LOSS OR TRICHOLOGIST IN THE VIRGINIA AREA.

Nadine October 29, 2013 at 12:53 pm

My daughter and I finally went to see Dr. Redmond in July 2013.
If anyone has any negative comments about this doctor, and his staff, they don’t know what they are talking about.

My daughter is under his care for 3 months. There is no major change in her hair density or texture yet, but we are hopeful. Her hair is not falling at the speed prior to her seeing Dr. Redmond. We need to give the treatment more time.

wish you all luck.

I will keep you all posted. thanks.

Kendall December 19, 2013 at 8:03 am

Hello Ladies. I love this site. I will be brief. I have only been to 1 Endo and they told me my glucose was pre diabetic but that my TESTOSTERONE was too high. Not over the line but right there. He put me on the cure all of metformin but I haven’t taken it yet. I am trying to lower my testosterone by diet and exercise and also watching everything I eat. Its not doing much but I have been doing this for about a month now. The holidays kill me with wine, coffee, and sweets. I have read the reviews and will probably pick up that book but also hit another endo and a dermo. You guys keep the faith. PS In Houston. Any suggestions on a dermo or endo you like, shoot them my way.

Kathy January 5, 2014 at 3:37 pm

Does anyone have any recommendation for a good doctor in Phoenix, AZ ?

maya January 16, 2014 at 2:43 pm

hi to all

i am a mother of a 10 yr old beautiful daughter who at this moment has started to lose some hair on her eyebrows.. at first i thought it was just skin disorder because it started out as an round and whitish spot on her left eyebrow…and only applied ointment on it. but then i statrted to notice that her eyebrows are have seen to not look normal and both end of her eyebrows are gone … and so i immediately took her to a dermatologist and with just one look at her through a lighted mirror ( i think) she told me – its alopecia.. due to stress, – that really shocked me…she’s a happy ten year old girl.. attending grade school.. she’s my only child … day and night we are together..so i am very secured in knowing that if she has any problem in school or with her friends – she would tell me as she always does.. and then the doctor showed me pictures od bald older men and told me that sometimes _ alopecia showed itself in men’ s mustaches.. sideburns… etc. then she gave us a prescription for an ointment to use on her brows 2 x a day and get back at her after two weeks.

goodness, later at night did ihave fully understand what alopecia is after searching on it on the net!! i got fully drained and feeling so helpless – knowing that there is no cure for it ??? my child is only 10 .. and that doctor just simply gave us an ointment….???? never giving me any sign that its not a simple matter to have alopecia????

bharath March 12, 2014 at 1:19 am

hi mam…..
am bharath of 22year’s old. I hav a problem of continuous hair fall. My hair become too weak and am getting pimples on head and I feel like itching my head
am using the shampoo DOVE . please mam
suggest me any oil or shall I consider any hair care hospitals.
Due to this I scared lot about my hairs ……

Phyllis April 22, 2014 at 9:49 am

bharah,

It sounds like you may be allergic to your shampoo. Try Neutrogena shampoo for oily hair. Also look at you diet. Include fatty fish or fish oil, vitamin D, biotin and a diet of fresh vegetables and fruits. Avoid sugar and high carbohydrate foods. Hope this helps!

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