I am constantly inspired by the women who have taken the bull by the horns and made the choice to move forward in their hair loss journey. Whether it is making the bold and beautiful choice of shaving their heads, or choosing to wear toppers, integrated hair, or full lace wigs — they remind me that there is life after hair loss, we are beautiful as we are, with hair or without. I think often sometimes when we are confronted with hair loss we begin to feel that life is over, on the contrary, it has only begun.
I put together a video showcasing some of the women from the network who are either wearing hair or wearing nothing at all (on their heads that is). In this video, “Hair Never Looked So Good” each woman either has a full wig, an addition, topper, or is showing her beauty sans hair. The only exception is Kendalkins friend in one of the photos, I simply had to include it because she looks stunning.
Thank you to all the ladies who agreed to be in the video. You inspire me, and I know you will do the same for others. XOXO
Mary discusses living with alopecia, and how attending a Bald Girls Do Lunch event dramatically changed her life. Read Mary’s full story here.
As most of you have probably already noticed I haven’t written very much lately. I’ve just been sort of trying to refocus my energy to get through this really really tough time. As I write I have to pause as I cannot see the screen though all my tears that keep falling like water out of a facet. I cannot be certain as to why I am going through another very bad shed, I should know by now that I probably should just stop asking why and move on.
For the most part I get through my day, but with a sadness and awareness each time I touch my head or see my reflection. I avoid all mirrors even the ones in grocery stores. I run past store windows for fear I’ll catch that glimpse that will ruin my day. That is how I’ve worked to be able to main a quasi productive day and to live my life… avoid my reflection, turn off the bathroom lights before entering, wear my hair up in a ponytail type bun so that I do not feel the lack of hair I have and to avoid having to be reminded every second of the day that I’m losing my hair as another strand falls on my arm, shoulders or back.
I just took a shower and washed my hair, it pretty much is dried already by the time I take a comb to it, thats how thin it is now. I comb through, saying any words of comfort to myself, a prayer, the alphabet, anything to keep myself busy while I get through the toughest part of my day. The hair falls out so easy like gobs of spaghetti. I consider taking the razor to my head right then and there and just being done with it, but I decide against it for the moment. I’m usually much stronger than this when dealing with my hair but I’ve felt so sad and weak lately. I remind myself it is only hair, and if this is the worst thing that ever happens to me then I probably should consider myself lucky. I feel so sad right now, a heaviness that just sits on me. It’s 4:35pm do you think it is too early for a glass of wine? I think not.
P.S. Forgive me if you’ve written to me and I have not answered yet, I will definitely get back to you. I’m just trying to piece myself back together right now.
The title may seem to be surprising.. but, actually, when analyzed accurately.. it is not. I have been an AGA sufferer for a few years now. and I AM SICK OF THIS SITUACION. What I want now is only “to have this situation solved one way or another. Either grow back or fall out completely. So that I can resolve it and move forward.” Based on my prior experience I know that grow back is impossible. You may say I gave up. Yes, I did. Because there is no point trying to fight with anenemy you don’t understand and one you are blind and deaf against. You will only go through better and worse times, being moody so that people around will not stand you anymore. Curing uncurable puts you in a perpetual state of false hope. You neither have decent hair nor a good replacement; You’re betwixt and between.I have had enough. Finished medical treatment and wait for so little hair to shave it off. Be beautiful for myself when totally bald. I can accept it. And being beautiful to people around who have no idea, when wearing the best available vacuum wig. Just hard times for me when the final hair loss comes. Wish me strength. I hope I manage.”I am literally a shell of my old self and I am quite frightened. Sometimes I just want to shave my head and get a full best quality undetectable wig so I don’t have to see anymore hair in the shower drain, sink, bathroom floor, back of my shirt, etc. I don’t want to have a partial replacement system on a clip, as it is just inconvenient.I don’t want to have a partial replacement system based on adhesives as I would never accept my looks with severe typical men’s baldness. I want to shave my head and become beautiful again. And I will.Nobody can understand me. But I do not care. This is only my life and my best times (I am 24)
Thank you so much for writing your story. Your thoughts are my thoughts. Your feelings are my feelings. On more occasions than I can count I have wished for there to be some finality to this never ending hair loss nightmare. Some closure…anything. I’ve felt the torture, the decline and slow death of my self esteem tear away minute by minute, day by day and year after year. You reach a point where you throw your hands up in the air and say “if I’m going to be bald then fine let it happen all now and let me get on with my life, because this strand by strand thing is eating me alive.” [click to continue…]
This is a short one minute video I found on youtube of a few different women who have shaved their head. I don’t think they did it for hair loss, but still they all look great with their new bare scalps. I often look online for images of other women who’ve taken the plunge for whatever reason, to hopefully get the strength and motivation to do it myself.
Check it out:
So the great thing about having a supportive man in your life is being able to joke about things that aren’t really funny. Yesterday my fiance was saying something from afar that nagged me (completely unrelated to hair), I forgot what, but I replied to him “Hey, be nice to me, I’m going bald!” As the words left my mouth I started to laugh and so did he once he could hear I was only joking.
My mind found a joke in there somewhere to pick myself up because I was feeling pretty down yesterday after the shower gauntlet of shampoo, rinse and comb. Oddly enough, I picked up a T-shirt to put on that I think was mailed to be a few weeks ago when I bought something on the internet ( it was a free gift) and the back of it said:
a: a fixed purpose,
the power and will to persist,
resolve, to have the drive,
to have the grit, to go the distance,
to be hell-bent on reaching a goal
and getting it done no matter what
After I read that my spirit lifted up a little and I forced myself back into my “strong mindset,” and said to myself “I am determined.” Determined to not let my hair loss eat me alive, to beat this, maybe not with treatment because that is beyond my control, but with my mind, with my heart and learning to love myself and not care so much about what other people think.
Anyways, I thought it would make funny bumper sticker “Be Nice To Me, I’m Going Bald.” a little humor never hurts.
I recently read about this organization called “Bald Girls Do Lunch” after reading an article in the Desert News. Bald Girls Do Lunch is founded by Thea Chassin who has had alopecia universalis since 1997. Chassin lives in New York and for the past five years has been a support group leader for alopecia areata. She deals with women, men and children of all ages. From the beginning, Bald Girls Do Lunch was created as a non profit organization that was devoting all its resources to the emotional and practical needs of women with alopecia areata.
Their website states:
Bald Girls Do Lunch supports women with alopecia areata — an auto-immune skin condition which causes the partial or total loss of hair on the scalp, brows, lashes and body. We are a not-for-profit organization dedicated to improving the lives of women living with the challenges of this condition.
How do we help? We recognize that too many women are feeling very alone with this condition. We bring them together for small and intimate lunches where they can discuss with each other whatever’s on their minds.
• We hold workshops with wig makers to understand wig types , how they are made and which ones suit our lifestyles
• We hold classes with a master make-up artist
• We provide tips and guidance for learning how and when to discuss this condition with family, lovers and friends
This is such an amazing concept and organization. They have the following upcoming lunch locations
Pasadena, CA – Septemeber 9, 2007
New York Special Event – October 7, 2007
Scottsdale, AZ – October 13, 2007
More information can be found on their website http://www.baldgirlsdolunch.org