Comments on: Hair Loss – Wigs – Reflections

By: Beth

Beth — Tue, 14 Jan 2020 04:19:58 +0000

I have had hair loss for over 2 years. It happened right after I was on antibiotics (doxycycline). I thought it was just a temporary reaction-nope! Here I am….still losing a ton of hair. Fortunately, my hair is still growing, just not staying on my head. I have gone to 3 dermatologists and 2 family practice drs and I was thinking of going to an endocrinologist, but I don’t think they will help because I don’t really think it’s hormonal. I think I might go to a functional doctor since they also test for gut health too. Hair loss is the biggest symptom but I also have dry and ridged nails and I have gotten a few skin infections (eyes and mouth). Has anyone else experienced this?

By: Hairtalk2020

Hairtalk2020 — Sun, 05 Jan 2020 07:22:56 +0000

So relate. Ricki lake brought me back to this site after several years.

By: Julie

Julie — Mon, 16 Dec 2019 07:08:27 +0000

I am grateful for the womenshairlossproject.com, where I can meet people that knows exactly what I am going through. I have tried everything under the sun to try to stop my hair loss, Rogain, lasercap, iron pill, most recently PRP and Nutrafol, but it does not seem to work on me, my loss is gradual, started when I was a teen, and now in my 50th, just getting thinner by the day, trying to hold on to what I have is what I am doing now, but my hair continue to shed every day, I have come to term with it and I don’t want to let my hair control my life, but it is easier said than done. I have just started to wear a small hair piece on top of my own hair, it makes my hair look a lot fuller and nobody seems to notice, it made a big difference. I may have to go for full wig in the future but I am just taking it one day at a time. I am debating if I should continue to go for PRP treatment as I really don’t see much result, I would love to hear feed backs from those of you who has been going for PRP, as the treatment is both expensive and painful (the micro needle), I am just not sure if it really worth it at this point, but I only went for twice, so I have been telling myself may be I need to keep doing it regularly in order to have good results? Honestly if it works, I really don’t mind the pain and the money. I can only wish none of us has to go through this.

By: Lia

Lia — Thu, 21 Nov 2019 17:37:15 +0000

I keep hearing about saw palmetto and warmed pumpkin seed oil treatments helping with our hair loss. Mine was devastating. My bra length hair broke off first and then immediately began coming out with the bulb attached. My braid had a circumference of about 2-1/2″ and its now 5/8″ thick! So I’ll be trying the saw palmetto/pumpkin seed oil treatments starting now. Will let everyone know if it works!

By: Judy

Judy — Sun, 20 Oct 2019 13:48:33 +0000

Vikki, My hairloss started about 2 and a half years ago. Everybody thought I was being neurotic, too. My hair was getting thinner on my sides and my whole hair felt so much thinner. I had a scalp biopsy and was diagnosed with androgenic alopecia and I am so devastated just like you.
I have been to numerous doctors. I tried minoxidil, a laser comb, spironolactone, and PRP injections. It has been 2 years on minoxidil, a year on spironolactone and a year for PRP. None of these things has worked for me at all. My hair just gets thinner and thinner. There is hardly any hair left underneath my sides and I have hardly any crown left. I had such thick hair. My hairdresser would say it is not fair that you have so much hair. Just like yours, my hair never fell out. It just got thinner and thinner, it just disappears. I have cried every day, I hate mirrors, when I see people that I know, I try to avoid them and run the other way. I have nightmares about losing my hair. I feel I can never be happy again. I, too, can’t stand to behind someone with great hair hair. I think I am obsessed with everyone’s hair. That is all I see. Right now, it is becoming noticeable. So much thinner. I feel I do not look like myself anymore. I know it is only going to get worse. I can’t stand it anymore. It is torture not knowing what your hair is going to look like in a week or in a month. How much will I lose today or tomorrow. I just hope I can get passed this like you. You certainly sound like you are doing it now. I admire you so much. Thank you so much for sharing your story. It seems so much like mine and I don’t feel so alone. I can only wish the best for you from the bottom of my heart.

By: Pamela

Pamela — Mon, 02 Sep 2019 16:48:04 +0000

My story is similar to all of yours and I’m glad I found this website. I’m 63 & my thick hair started falling out at 17 yrs. old after I had mono. Then again at 20. It was ok till early 30’s but each year after I would shed starting in May which lasted until Oct. Each year it got thinner until 2013 I had another major loss for no reason. Again in 2016 and in 2017 but this time it didn’t stop so here I am 99% bald. I want to just shave the rest but can’t bring myself to do it. I have a wig but haven’t worn it yet. My husband just divorced me. I go out shopping but since I feel like a freak that’s about it. I’m grateful I had hair most of my life but now it’s hard to accept.

By: Beverly

Beverly — Wed, 07 Aug 2019 14:28:35 +0000

I have been struggling with hairloss for 3 years. I have tried everything. Most recently I did prp injections. I had 2 treatments one month apart. Since then the shedding/loss has increased dramatically. I was diagnosed with AGA and my loss is more male pattern than female pattern. I have a receding hairline, balding temples and thinning at the vertex. Since the injections the loss is all over. Up until now I’ve been able to disguise with strategic styling methods but now the loss of volume has made that almost impossible. I have a couple of toppers I haven’t worn yet. I recently got a short cut hoping it would help my hair look thicker to no avail. I am going to have my toppers cut to go with what is left. I have worn the toppers around the house to see if I could get used to them and pretty consistently I get a headache within an hour. It’s helpful to hear the stories of others as I feel very alone with this. My boyfriend is tired of me being upset by this. I just want to find a way to be comfortable with myself:/

By: Bernadette

Bernadette — Tue, 25 Jun 2019 00:06:19 +0000

Hi,
I’m glad to have found your website. I have been suffering from hair loss since 2004, its been a real challenge. I’ve done it all, the topical solutions, to the steroid injections to the wigs, then the hair matrix from the Hair Club. Now today was my 3rd placebo injections, I’m hoping they work. If not, I have my wigs, I have come to the conclusion, after all the screaming in my head, I’m not going to let my hair define me.

By: Vikki

Vikki — Sat, 25 May 2019 20:17:55 +0000

I can relate so much to this. Hairloss has devastated my life. I’m now nearly 42 and have a very very similar experience. It started when I was around 35. It was Subtle differences at first (that part where everybody keeps on telling you that you’re a neurotic and it’s all in your head – isolating more and making you feel desperate and powerless) then it progressed and picked up pace bringing me to where I am now. My fringe (bangs) is no longer there because my hair thinned so badly in the front – I had to grow it all out to help create a hairline which I shaped with toppik. Then the hair I had got thinner and thinner. It never fell out …. just kept getting thinner . I fought it off with toppik and minoxidil and spiro and all sorts of vitamins and potions. Yasmin pill helped for a while. Then … I took a break from Yasmin …and 8 weeks into that break .. TE kicked in. So on to top of what I already know is AGA, I have TE and my temporal lobes and hairline have been insidiously moving back away from my face . I can do nothing now except keep it long ( the strands are like cobwebs) and plait it , in a ponytail thru the back of a baseball cap. I have severe depression. I have no boyfriend. I have not been able to hold down a job – ( I did my degree in my mid thirties and most of that time I was distracted by my hairloss) I don’t go out anymore, unless I’m in a cap. I seem to exist , getting thru each day the best I can. I’m naturally glamorous and used to have lovely thick shiny dark hair. Now all I have is long fluff which is still falling out. New growth is visible but it is feeble and very very light coloured. I can’t wear 3/4 Hairpieces anymore. Can’t wear a pony tail or a bun. Would rather die than be seen with short hair as I don’t have the face shape or the hairline – and even if I did … short hair would look worse on me as it’s so feeble and wispy . I have no money for real hair lace fronts and I wonder how I will keep one on ?? Seeing as all of my own hair is falling out and I don’t want to take my wig off at bedtime??? I want to feel like myself again. This has consumed me long enough. Like the OP…. I have arrived at a new phase in my hair loss journey: the phase of running out of options . If one more person tells me I’ll still be beautiful with or without my hair – however well-meaning , I’m not sure I’ll hold it together . If one more person tells me I’m lucky I don’t have cancer , I’m not sure I’ll hold it together . This awful problem is incredibly debilitating for women and girls . Our hair is functional. I have not been able to go to a hair salon since 2012 – because even then, the back of my hair was hollow and needed leaving alone . 7 years of tears and researching and sobbing and having mental breakdowns… I cannot do this anymore. This is now the fork in the road . I try to remind myself that I’m incredibly lucky that I still have coverage- and I have my health. Life is a gift. I was lucky to not have to deal with this mental torture until I was past 35. Some people deal with it from a much younger age and that is incredibly unfair. I have know for a long time this day would come . I think I just sped it up by going off the pill (Yasmin) and jumping back on it . I have seen endocrinologists, trichologists and doctors galore . I have modified every aspect of my life to work around my hair loss and I’m ready now to face the next stage . I’m due to have a scalp biopsy soon to confirm what I already know….this will no doubt silence the people who have ignored my tears or labelled me as a fool JUST because I became very good at masking the problem . I’m not really looking forward to my 42nd birthday as I don’t have enough hair to do much with and I know I won’t have a wig by then . I have done my absolute best trying to battle this and there is nothing more I can try. If you are reading this and have noticed your hair thinning , please do not listen to people who tell you you are crazy . Don’t go to a GP … go to a trichologist , get your bloods looked at , check your OCP has a low androgen index ( don’t take microgynon for example !) TRY minoxidil- it helped me for a good couple of years, attack the problem at the root cause…don’t consult people who have no idea what they’re doing , seek comfort in those who believe and understand you …lots of people in popular culture are wearing wigs. I see people in wigs every day . It’s HAVING to wear a wig that’s the only difference between a hairloss sufferer and Beyoncé ! The world can be a cruel place when you’re dealing with hairloss …. everybody else seems to have great hair and even standing in the queue at the supermarket is torture – as you stand , neatly always , behind somebody who probably couldn’t care less about their hair but has so much of it you want to drop your shopping and run off! But – if you can get through this – you really can get through anything. If you’re thinking you’ll never be happy again, or feeling depressed tell yourself – I’ve got this. I can own it. I can look fantastic again…wigs are not taboo or funny – I just have to cope with the transition. Accepting what we cannot change and doing the best we can with what we’ve got is the only way to swim forward . We are too good to sink . This is happening to so many women right now – you’re not alone . I can actually say that once I have come thru this awful phase – I will feel a massive sense of relief . No more watching and waiting and obsessing and researching . Just me in a wig. I can change colour and style and have it thicker of curly or black or brown ….and I’ll be able to feel like the old me again. I’m not battling it anymore . The new phase is here . I’m not saying it is going to be easy … but…it’s better for me to take control rather than have it control me. I’m now being referred to a psychologist for therapy as this has deeply affected my mental well-being… but I know this has to pass..there has to be another side to this . I’m 42. I am not prepared to waste anymore time hiding on my own xxxx my heart goes out to everyone suffering with this awful problem. Be strong and don’t let this ruin your life. You deserve to be happy xxx

By: Evan

Evan — Tue, 14 May 2019 03:55:18 +0000

I AM IN SHOCK!!!!!

I AM SITTING IN LOS ANGELES, I AM 35, BLONDE AND MY HAIR IS THIN AND CURLY TO BEGIN WITH.

I HAVE FINALLY REACHED MY LIMIT. my struggle with my hair (and waves of bad skin) has caused me such emotional pain and dis-regulation that it has run my life, ruined my relationships, and caused me to feel insane.

i have been to all of the doctors and tests mentioned, in fact my dad is a doctor, and believes I have body dysmorphia and chose vanity over sanity. This is not the case, I believe that the amount of stress the hair and preparation causes me to feel so overwhelmed and ashamed. My self esteem and my authentic self and creative spirit have been altered. My friends and family dont understand and I am often met with the idea that it is my perspective that is the problem.

Its impossible . It even got me sent to a psychiatric ward by saying i didnt want to live like this! Now I am desperate and will do anything- even to just vent and try to not panic and cause so much more suffering.

I have been afraid of a wig. ashamed and have times where I feel dread- and have anticipatory anxiety about going out. When I do I wear hats.

I do not have bald spots- but I have a weird unruly breaking and changing texture that is unmanageable and have has significant hair thinning that has gotten worse to a point where I cry almost everyday.

I would love any support suggestions therapies, or even how to transition or what it is like to decide to be ( free) by wearing a wig- I cant even imagine what it feels like to have hair that doesnt make me feel sick and gross.

I am soo soo grateful I read this story. I feel so so alone and scared