Comments on: Finding Hope, Finding Hair and Moving Forward – A’s Story

By: crissi

crissi — Mon, 15 Apr 2019 11:14:31 +0000

So glad you bought the premium wig and most of all-that’s it’s comfortable AND quite undetectable.
If you didn’t have to work at the same place , no one else would have noticed.
I’m glad you said “extensions”.
Let me elaborate.
I for one, find the idea of telling other people HORRENDOUS.
It’s not women I fear – so much as men.
When I see men with full hair- it really makes me sick to the stomach .
Why ? Because MEN are normally the bald ones NOT US WOMEN!!!!

By: Mishell

Mishell — Mon, 28 Dec 2015 01:25:32 +0000

Thank you for sharing. I am still , even after 48 years of it, in the “dont want to leave the house” phase. I just dont get why I have this condition? I ask so many times a day. “Why does it have to be this?” Girls with a pretty face can get by so much easier. But in HS, when you’re not beautiful, and you cant grow big hair and its the 80’s you dont want to go anywhere. Just going to school was torture. Work, torture. Im so scared I am never going to be able to come to terms with “why this”?

By: Tina

Tina — Mon, 30 Nov 2015 17:52:01 +0000

I never had hair issues, until 2013, I was 45 and had to have an ovary removed due to a cyst. No one ever told me the hell and horror my next few years would be because of it. my iron was low d3 low and a bunch of other things I stressed from 6 months prior to surgery until now. I feel ugly Ive been to countless drs endos and even a naturopath and no one has a clue what caused this and how to stop it. I have the breakage and loss, temples top all over and starting to recede. I often wish id just wake up from this nightmare they are saying hereditary but no one in my family suffers this, and in 18 months? I’m not strong enough to handle it I guess I’m petty but its not right nor normal for a woman to suffer with this

By: Lea

Lea — Sun, 03 May 2015 05:41:39 +0000

This journey does unit us. I wish it would be something else that does, but this what was chosen for us. I can relate to the daily prison feeling , of existing but not really living. Day in and day out is purely another day to survive in. I miss actually living, laughing so
Hard I’m crying and meeting strangers with confidence knowing I have the identity I have always had in life. But when it gets taken away we need to become brave, bold and strong, stronger than you ever thought possible is possible with hair loss. We will show up and win. What’s required of us is to face this and show up to it. I can’t hide any longer and I can’t feel shame for something that got taken away. But I can show up to the solution and wear wigs and love myself for the challenge that I have and I have faced the challenge head on(no pun intended) with no apologies to the world. I am not deceiving the world with my new wig. The world is deceived in thinking that balding women are less feminine. And that those who are in that situation dont deserve to anything for themselves. That is the ultimate lie.

By: bayareagirl

bayareagirl — Mon, 03 Feb 2014 02:07:38 +0000

A: Thank you for sharing this story – it hits home too closely. I too am on this journey and am not handling it well at all. I’ve always admired those I’ve known who have met their medical challenges with bravery and friends who have faced far worse things than this and wondered how I would do. Well pretty pathetically it seems.

I’m sorry that you felt so bad about yourself for so long but it is heart warming to hear that you found a solution. I too am visiting Follea next week and almost feel like my life depends on it. Sounds dramatic but I just can’t see past all this at present (diagnosed AGA last week). I will be looking at blonde hair too. I’m encouraged to hear your comments about their hair. If there is a photo anywhere on this site of you or your hair, please direct me!

By: Juana

Juana — Mon, 13 Jan 2014 10:37:19 +0000

I stumbled upon this page because I’m tired of living with this problem of my hair just continually falling out day by day.May I first say that A’s story really hit home for me and I cried as I read it because I see myself as ugly and worthless I don’t want to go out and I avoid it when possible.My family dosen’t understand what I am going through or deal with as a result of losing my hair ,they make fun of me behind my back to others or at times will say omg you have lost so much of your hair! And omg how it hurts me hearing that I feel so embarrassed and I just feel so ugly.My depression is really bad and this dosen’t help at all.I thought,hoped,abd prayed when I found out that I had a thyroid condition that please let that be the cause and let my hair start coming back in with the medication but no such luck .

By: Sue

Sue — Sun, 20 Oct 2013 15:01:51 +0000

This website makes me feel not alone as that is what I feel. I’m wAtching my hair fall out before my eyes and might as well just shave my head. I was given spironlactone but I haven’t started it yet. I’m hesitant. The pharmacist informed me that it is prescribed B/c one of the side effects is hair growth. Is the hair growth just on your head or will it cause facial hair as we’ll? I am getting no where with drs. My iron is 33. Thyroid within normal limits. I have not been referred to a dermatologist. Is this where the drs. Should be sending me? Ready to give up.

By: Sandy

Sandy — Sat, 03 Aug 2013 03:03:05 +0000

I was Born Bald and will soon be bald……….I like all in here dread the day I have to wear hair..it really should be now!!! dragging for loss of confidence in choosing porter…so much to learn…what Help is there for those of in Canada who do NOT Live near a Folia Salon???? I spend an increasing amount of time in the house and seldom go out because it takes so long to get ready.Id love the idea that I could find a Great head of hair to just pop on and go out!! Wish I new WHO the God of store bought hair was ????My Mom and a friend with a genetic condition Both look so pretty with their hair……..I just wish I could take the leap!!!
Sandy

By: kateincanada

kateincanada — Wed, 24 Jul 2013 02:26:38 +0000

Hello Ms. A.
Thank you sharing your story and putting things in perspective. I have only been on my hair loss journey since January of this year. I am in the middle of a three month course of doxycylcine which has allowed some hair regrowth at the hairline on either side of my head but I am losing more and more on the top, also diffuse, as you have. Some days I feel ok and moderately positive, other days I feel very down but try to keep it to myself. Reading your story and those of so many others, on this brilliant WHLP site definitely helps. We’re not alone in this after all. TVM.
Hugs.

By: Elaine

Elaine — Sun, 21 Jul 2013 06:48:56 +0000

A. Ive had alopecia 33yrs im now 46 and finally through the support from alopecoa Scotland I love who I am and my confidence is growing. I no longer feel alone and am nearly ready to share my story but not yet. Well done you xx