Comments on: Stacey’s Hair Loss Story – Searching For Answers

By: Amy

Amy — Sat, 19 Nov 2016 23:54:22 +0000

I need help deciding what form of PCOS I have so that I can treat my hair loss from it properly.

My hair loss is male pattern meaning it started in the front and is spreading to the ears and towards th back part meaning soon I will have horseshoe hair. My hair has gone from mild to moderate loss in only one month. I only noticed any loss 2 months ago. Please help! This seems to be a very aggressive type of hair loss since it started so recently and has gotten so much worse in a short period of time.

i was on Mirena iud for almost three years before I noticed the thinning. I had it taken out 11/1/16 of this year. On 11/4/16 I had blood tests done and was found to have the following results

Cortisol 13.98 (normal range 8.7-22)
Testosterone 4325 ( normal ranger 8-60)
DHEA 75.2 (normal range 31-228
FSH 5.6
LH 9.6
Estradiol 66 pg/ml
Progesterone .04
Glucose 93 (normal range 70-100)
Glyco HGB 5.7 (normal less than 6)

So I appears as though I have signs of PCOS AND insulin resistance but I suspect it was caused by the Mirena so do I have pill induced hair loss and PCOS or insulin resistant PCOS and hair loss?

Also, I just got my period back on 11/18 so I am on the right track and I am doing a light lover cleanse with tea and salt baths but should my hair be getting worse with no sign of new growth? I do also have excess oily skin and extra facial hair all in the last two months.

Help! Please!

By: zumi

zumi — Wed, 12 Oct 2016 12:39:40 +0000

hi,
my pcos was diagnosed when i was 16 years old. I had irregular periods and my beautiful black hair started to lose. My doctor prescribed me Metformin and I had it for 4 years continuously. After that my period started to be regular, so my doctor said not to have it, as it may cause some side-effects in my kidneys. But in this mean time, I lost most of my hairs, it has thinned so much and at the top it seems like balding.
I am having regular periods in this one year, but the hair I lost, is not re-growing again. I feel shame to go public, I don’t like myself to see in mirror.
I am 21 years now, my height is 162.5 cm and weight is 64 kg.
please help me what can i do, to re-gain my hair.

By: Jaffar

Jaffar — Sun, 27 Dec 2015 12:44:46 +0000

Hi ladies,
I am male, husband of an extremely beautiful wife. We are happy, despite not having a child for the last 4 years of our marriage. Yeah she is diagnosed of PCOS. She is on Metformin, has had clomid about 4 cycles, but no result. Doctors suggest Laproscopy or IVF. Even that was fine with me, but the feeling when I see her staring at the mirror and looking at her hair, which has receded to a far greater extent at the crown, showing her scalp and that worry on her face, she so miserably tries to hide from me kills me.
I can relate to the pain you all have suffered, and just pray some miracle happens that all of you be cured…all of you have babies in your laps with hair full to sing your children the lullabies. I hope my beautiful wife conceives some day and gets her hair back.
Any remedies, please suggest. I suggest useful [cured patient’s] comments on this thread be segregated.

By: Rosalie

Rosalie — Sun, 29 Nov 2015 01:55:49 +0000

HI STACY

WHEN I READ YOUR STORY OMG!! IT WAS LIKE I WAS READING MY STORY. I AM A 53YR OLD WOMAN, THAT HAS HAD POCS ALL MY LIFE.WHEN I WAS YOUNGER MY MOM USED TO GIVE ME HUMPHREY PILLS TO MAKE MY MESTRALCOME DOWN BECAUSE I USED TO MISS A COUPLE OF MONTHS. THE DOC TOLD HER TO GIVE ME THOSE PILLS. AS I GOT OLDER I CONTINUED LIFE NORMALLY EXCEPT FOR MY MENSTRAL IT WOULD COME, THEN IT WOULDN’T COME FOR LIKE 2 OR 3 MONTHS. I WANTED A BABY SO VERY MUCH, KEPT TRYING BUT NOTHING, I BECAME PREGNANT AT AGE 19, BUT LOSED THE BABY I DIDN’T EVEN KNOW I WAS PREGNANT. AFTER THIS INCIDENT I NEVER BECAME PREGNANT AGAIN. I DREAMED AND TRIED BUT I WOULD NOT COME OUT PREGNANT. IT CAME TO A POINT IN MY LIFE WHEN DEPRESSION HIT ME KNOWING I COULD NOT CONCEIVE, AND PEOPLE WITHOUT KNOWING ASKING ME WHEN AM I GOING TO HAVE A BABY THIS WOULD KILL ME INSIDE.. BUT THEN IN 2001 I WENT TO SEE A SPECIALIST BECAUSE I WAS GETTING PAIN WERE MY OVARIES WERE, MANY TEST WERE MADE. THAT WAS THE 1ST TIME I KNEW I HAD THIS PROBLEM CALLED PCOS. MY TESTASTERONE LEVEL WAS SKY HIGH, I WAS VERY HAIRY, INCLUDING MY FACE, AS A YOUNG GIRL I WOULD SEE MY MOTHER SHAVE HER FACE FROM HER MUSTASH DOWN TO THE BOTTOM OF HER CHIN, SO THIS WAS KIND OF NORMAL FOR ME GROWING UP WATCHING HER. BUT ANYWAY I STARTED DOING THING WHEN I WAS ABOUT 15YRS OLD. BUT AS THE YEARS CONTINUED IT GOT WORST, I WOULD ACTUALLY HAVE A 5 O’CLOCK SHADOW. I HATED THIS ABOUT MYSELF, PEOPLE WOULD STARE, LAUGH, TALK BEHIND MY BACK, SAY THINGS IN FRONT OF MY FACE, SOME EVEN ASKED ME IF I WAS A MAN, THEY WERE VERY CONFUSED WHEN THEY WOULD LOOK AT ME, I HAVE BIG BOOBS SO THEY DIDN’T KNOW WHAT TO THINK. AND IT’S FUNNY BECAUSE I HAVE ALWAYS TAKEN GOOD CARE OF MYSELF COVERED SHADOWS WITH MAKEUP. BUT THATS HOW BAD IT WAS THAT NOT EVEN MAKEUP WOULD HIDE IT. IT WAS VERY EMBARRESSING TO ME, HURTFUL, AND I WOULD CRY A WHOLE LOT. WELL IN 2001 I SAW A ENDOCRANOLOGIST THAT HELPED ME. FIRST THEY REMOVED MY RIGHT OVARY IN THAT YEAR, THEN IN 2006 THEY REMOVED THE LEFT THIS IS WHEN I CAME TO TERMS THAT I WOULD NEVER BE ABLE TO GIVE BIRTH.. BUT DUE TO ALL THIS MALFUNCTION IN MY BODY SINCE I WAS A YOUNG GIRL I HAVE BEEN LOSING MY HAIR SINCE BEFORE MY LAST SURGERY I HATE THE TERM BUT ITS CALLED MALE PATTERN BALDING.. I AM DEVASTATED THEY I LOST MY HAIR IN THE FRONT OF MY HEAD, I WANT MY HAIR BACK SO BADLY BUT ROOTS ARE JUST DEAD.. DON’T KNOW WHAT TO DO.. HAVE TO PART IT WAY DOWN MORE THEN NORMAL COMBED TO THE RIGHT, AND ACT AS IF.. I PUT SO MUCH GEL AND HAIRSPRAY SO IT DON’T MOVE SO BALDNESS DON’T SHOW, OH AND WORST PART IS THE SEPERATED LINES IT MAKES, HATE IT, HATE IT, HATE IT… AND YOU KNOW WHAT THE FUNNY PART SO MANY PEOPLE ALWAYS COMPLAMENT ME ABOUT MY HAIR CRAZY.. I NEED HELP TOO.. OH AND AFTER SERGURY MY TESTASTERONE WENT DOWN TO NORMAL, BUT IT WAS TO LATE FOR MY HAIR.

By: Lindsay

Lindsay — Sun, 15 Nov 2015 05:33:53 +0000

Hello, I am 26 years old I have been dealing with PCOS since the age of 20. I was put on Birth control at first when I started having irregular periods When that did nothing to help and I started seeing an endocrinologist who started me on Spironolactone and metformin along with the birth control for four years. Right after I turned 25 nothing has changed I was still not getting my period at this point I hadn’t gotten it for at least a year. My hair was thinning on the crown on my head and I feel as though I can not style my hair at all without it being noticeable. Most of the time I wear my hair up in a ponytail as I feel that is the only way to hide the thinning spot. which It gets very old because I love to style my hair. Has anyone ever tried an estrogen injection to possible help with PCOS? and has it had any effect or change in hair loss?
Any help would be grateful!
Thank you,
Lindsay

By: Ruby

Ruby — Thu, 05 Nov 2015 09:47:48 +0000

I am 34 years old and I was diagnosed with PCOS when I was 13. I became extremely hirsute. This made high school a nightmare. I even had laser hair removal with the first types of lasers. It did nothing but make me grow my face hair out and then have burned skin. Later the lasers worked much better. If anyone that reads this is hirsute I recommend a 8800 Nono. This little machine is a miracle. It won’t get rid of your hair right away, but if you are diligent after a few months you will see a huge difference. Just make sure to moisturize the Nono dries out the skin. I started to loose the hair on my head when I was eighteen. Within a year and a half I lost almost all the hair on the top of my head. I read the older post about hair loss and how there confidence and sex life are low. Just remember you have someone who loves you, and I know it’s embarrassing but cherish that love. I was so young when all this happened to me I never have had confidence that someone could love me. Due to the hirsute and male pattern baldness. I have never even dated anyone because I was so scared they would notice stubble or my wig. I am more confident now but having no experience I can’t even flirt. So if you have someone that knows what is happening to you and does what they can to make thing easier for you. Please smile and feel better even if it’s for just a moment. Next for hair loss if you have the money I recomend Bosley. I had it done in my twenty a and all the hair they transplanted is still there and grows well. The only problem is how expensive it is. I can get it done twice more, I am saving up. I have been wearing wigs for awhile now, and if your new to looking for wigs. I recomend lace front wigs they have the most natural hairline. I cut the lace a centimeter from the wig hair line. Then using Almay TLC liquid foundation I use a small makeup brush to blend the lace to my skin color. Friends of mine have told me they had no idea I lost my hair or they thought it had grown back. I have cried myself to sleep more times than I can count. I do everything I can to help with my PCOS symptoms, and I still have set backs. I just research different ways to fix my symptoms often. New products and ideas are developed all the time. Remember you are not alone and do not let this beat you down. I hope some of my ideas help.

By: Loops

Loops — Wed, 04 Nov 2015 18:47:00 +0000

Hi girls,
I was diagnosed when i was 14, nothing was done for a while and then i was put on the pill which did absolutely nothing for me. I was distressed so I didn’t go back to the doctors for a long while. When i was 24 I was told that if i lost just 10 % of my body weight that i would notice a significant difference – so seeing some hope i lost around 20% – absolutely nothing happened and when i went back to the doctor he said – oh well it doesn’t always work. I’m pretty much a hermit and wish I didn’t have to go to work. I’m 36 now, never had a boyfriend and to be honest from what I have seen and treatment I have received from people its not such a bad thing. I have tried absolutely everything I could to no avail, the next thing to try is this PRP thing I’m guessing, I don’t know how much more money I can spend on this. My family don’t really understand how I feel, all they say is I have to do something about it – I’ve given up trying to explain. I have been bullied most of my life about my weight or my hair or my lack of a decent bosum and when people talk to me at work they prefer to talk to my hairline ( whats left of it) or my chin where my hair grows. (I take thread and tweezers to work) I wish I didn’t have to work and feel i don’t get the same advantages or pay rises as people who are less qualified than me because of this. I wish I could work from home where no one has to see me. Doctor’s don’t really care at all about the person, they just want to accumulate paperwork about your case. I’m sorry I’ve got nothing positive to say about it at all other than you know who your real friends are. Perhaps its a way nature conducts its ‘survival of the fittest’ I’m not likely to have any children and to be honest (my personal opinion) I think it would be so so cruel to pass this on. Lots of love and light to you all.

By: Rubbie J.

Rubbie J. — Mon, 12 Jan 2015 06:50:03 +0000

I haven’t been diagnosed but I’m almost sure I have pcos I have the facial hair, cramps, no menstrual cycle etc…. a good thing for hair loss sold mostly in the African American section but is for all hair types is ORS I used it after my hair fell out due to bleach blonde highlights and I saw results very quickly within 6 months my hair was longer and thicker than it was before it fell out I used their shampoo, conditioner, hair conditioner and fertilizing root serum it really works and it’s inexpensive try it ladies it also has a money back guarantee

By: Rebecca

Rebecca — Sun, 04 Jan 2015 04:35:17 +0000

Here is my PCOS regimen:
5000 mcg Biotin daily
Metformin
Spirnolactone
Finasteride

I have avoided Oral Contraceptives to minimize the number of medications.

In addition, I use TOPPIK products to help cover the thinning spots–can’t tell you how much they have done to boost my confidence in professional and social settings.

Good luck–I know keeping a positive attitude about hair loss is a challenge.

By: Catherine

Catherine — Thu, 06 Nov 2014 01:51:30 +0000

Hi Stacey,
I just read this article today. 11/5/2014.
I would suggest 10mg of Biotin a day (yes- 10,000 mcg) also be careful about eating foods with “Pantothenic acid”– PER> it can also lower levels of biotin in the body.
In 30 days you will see a difference. Your hair will start to grow.
Best wishes.
~Catherine