Comments on: Looking For A Hair Loss Support Group

By: k445

k445 — Wed, 21 Oct 2009 18:53:58 +0000

Woman and Avodart: I’ll keep this short and to the point. I started losing my hair at 23. Slowly shedding and shedding everyday. By 30 it had become very obvious .
The emotional pain was almost unbearable. I withdrew and became seriously depressed. I saw a dermatologist and her rx monoxadil. did not work and gave me fierce dandruff. My parents sent me to a hairloss specialized dematologist in NYC. Here is what I learned. 1)90% of all hairloss is genetic. It is doubtful that you have some rare disease or hormonal imbalance. It’s just a genetic family disposition. 2) People with these genetics hairloss is tiggered by DHT(look it up). It was put on Avodart a DHT blocker on the condition that I did not get pregnant. I went to the Gyn and was put on birthcontrol pills. Within 1 month I noticed the shedding stopped. And slowly my hair filled back in over the next year. By 2 years I would say my hair was normal. I’ve now been on Avodart 0.5mg/birthcontrol pills for 6 years now. No side effects so far. Regarding having childern; I was told that if I did want childern I would have to go off BCP and Avodart for a full 6 months before trying. I would lose my hair again and would have to start all over again. Thats my story. I’m telling the forum because I know how I suffered and most Drs don’t help much because it’s not life threatening. They think of it as cosmetic. They don’t want to take the risk of some crazy lawsuit. Do you blame them? Take control. If you want to try it, tell them. You may have to sign a waiver or consent for off label use. Show that you are an informed and responsible adult and your Dr should respond. I hope this helps you.

By: Thea Chassin

Thea Chassin — Wed, 13 May 2009 01:40:40 +0000

Women with alopecia areata are hiding in plain sight!
Please join us and meet women in your area.
Complete invitations and details are posted in the Upcoming List at baldgirlsdolunch.org

Dallas, TX…May 27, 2009
Austin, TX…May 30, 2009
Fort Lauderdale, FL…June 6, 2009
Fort Myers, FL…June 7, 2009
San Diego,CA…July 16, 2009

You will never feel alone again as a woman with alopecia areata. We know what women need and how to get them in control again.

By: Bald Girls Do Lunch

Bald Girls Do Lunch — Tue, 11 Mar 2008 05:10:51 +0000

The most effective, dynamic and relevant meetings for women with alopecia areata are those with a 100% women-centric format. Want to know more? Read what women are saying in the testimonials at baldgirlsdolunch.org

We’re heading to northern California and hope to meet many of you there. Remember to go to our website for your invitation and RSVP information.

Upcoming Brunch, Lunch and Dinners!

March 29, 2008…San Francisco
March 30,2008….Berkeley, CA
April 1, 2008….San Jose, CA
June 1……….Sonoma, CA

http://www.baldgirlsdolunch.org

By the way…women come to our gatherings with hats, hair, wigs, scarves…..and their bald look, too. So wear what you like and let us be the catalyst for new positives in your life. We welcome and cherish meeting all women with alopecia..whether you’re new to this condition or have it a long time.

When: April 26, 2008

What: New England’s first Alopecia Areata Image and Beauty Day…a fund raiser AND beauty workshop event for every woman with alopecia areata. Grand Raffle Prize: one lucky attendee will win a wig valued at up to $3,000!

Where: Takes place in the charming town of Cheshire, Connecticut with consultants for wigs, hair, make-up and image/styling included with your admission.

Need an invitation? Questions? info@baldgirlsdolunch.org

Your complete invitation and RSVP info is posted at http://www.baldgirlsdolunch.org Just link from the bottom of the Upcoming List on the home page.

By: Jennifer Szeto

Jennifer Szeto — Mon, 11 Feb 2008 14:27:55 +0000

Dear Gina,

There are other places you can go for information and support. I lost my hair for the first time when I was 13/14 years old, and it has grown back and fallen out three times in the eleven years since then. The National Alopecia Areata Foundation (NAAF) is a non-profit organization founded in 1982 by women with alopecia areata. It started as a support group and became a national/international organization dedicated to helping people with alopecia areata. The address is http://www.naaf.org. Please check it out. Also, depending on what state you live in, there could be local support groups you can join. I am a member of NAAF and the NAAF Boston support group.

Good luck! I hope this helps.

Best Regards,

Jennifer Szeto

By: Bald Girls Do Lunch

Bald Girls Do Lunch — Sun, 27 Jan 2008 22:09:09 +0000

February Lunches. See baldgirlsdolunch.org for details or contact info@baldgirlsdolunch.org

Feb 2, Cheshire, CT
Feb 9, Reading, PA
Feb 10, Gaithersburg, MD
Feb 11, Washington, DC…details to be posted soon
Feb 23, Chicago area…details to be posted soon

If you live in one of these areas and would like to be interviewed, please let us know. On request, full names are never publicized.

By: Bald Girls Do Lunch

Bald Girls Do Lunch — Sat, 29 Dec 2007 06:23:40 +0000

Interviewees Needed Immediately

Feature writers for several California newspapers have contacted us to interview women ( 18 and over) who live in the general area of one of the lunches listed above. Ideally, it’s a woman who is going to attend a lunch. It could also be a woman who is thinking about going and what her thoughts about that are. Then she would be interviewed afterward, too. The focus for all of these are the human interest factor….telling your story to inspire someone else and telling your story to educate the public.

These interviews are taking place starting January 2 for about a week or so. They are usually done over the phone. Photographs are helpful but not required.

If you wish to be interviewed contact info@baldgirlsdolunch.org with your name, phone and email.

In advance, thank you.

Thea Chassin, founder
BGDL

By: Bald Girls Do Lunch

Bald Girls Do Lunch — Fri, 28 Dec 2007 17:05:55 +0000

Hello Ladies-

We’re delighted to announce that Bald Girls Do Lunch is offering 4 lunches in southern California in January, 2008. Following that we will be in Reading, PA ( Feb 9) and Baltimore, MD ( Feb 10)

Your invitations and all the details are linked for each location from the home page at baldgirlsdolunch.org. Not sure what it’s about? Be sure to read what others have said in our testimonials page.

January schedule:

January 6, Costa Mesa
January 8, Los Angeles
January 13, Woodland Hills
January 16, Rancho Bernardo

For more info, just contact info@baldgirlsdolunch.org

Thea Chassin, founder
BGDL

By: sandra

sandra — Fri, 07 Dec 2007 00:30:05 +0000

Gina

You did not say what city you were in. I’m in the same boat. I have also attended a Bald Girls Luncheon. It was a lot of fun

You can check the NAAF.org website to find a support group in your area.

you may email me if you like

Stay Strong

Cassandra

By: Bald Girls Do Lunch

Bald Girls Do Lunch — Wed, 24 Oct 2007 05:51:56 +0000

The November lunch meeting invitations with details on reserving your space are posted on our website.
http://www.baldgirlsdolunch.org

The November, 2007 dates and locations are:

Philadelphia area, November 3, 2007
Detroit area, November 10, 2007
Salt Lake City area, November 17, 2007

Attendees are only the women with aa. Must be 18 and over. Attendees may not promote any product or service at the lunch.