Comments on: Scalp Pain, sensitivity, burning, and Hair Loss http://www.womenshairlossproject.com/hair-loss/scalp-pain-sensitivity-burning-and-hair-loss/ A Community For Women Dealing With Hair Loss - Help, Hope and Understanding Fri, 08 Aug 2008 18:20:38 +0000 http://wordpress.org/?v=2.5.1 By: eldorado http://www.womenshairlossproject.com/hair-loss/scalp-pain-sensitivity-burning-and-hair-loss/#comment-18324 eldorado Sat, 19 Jul 2008 06:33:42 +0000 http://74.53.155.19/?p=42#comment-18324 Hi Mindy, My regular doctor gave me Lexapro 10 mg. for the scalp burning but it's been a month so maybe it's too soon to judge if it works. Little hairs are finally poking out of the back of my head through the long hairs the last 2 weeks) almost in the order they fell out in Feb and March top, sides then back. The burning sensation is still strong and there are a few bumps on the top of my head that are, too. I had an anxiety disorder way before TE came along. It was the the odd scalp feeling that preceeded it falling out. Gee, I should have known so I could have worried and dreaded it before hand! Hi Mindy,

My regular doctor gave me Lexapro 10 mg. for the scalp burning but it’s been a month so maybe it’s too soon to judge if it works.
Little hairs are finally poking out of the back of my head through the long hairs the last 2 weeks) almost in the order they fell out in Feb and March top, sides then back.
The burning sensation is still strong and there are a few bumps on the top of my head that are, too.
I had an anxiety disorder way before TE came along. It was the the odd scalp feeling that preceeded it falling out. Gee, I should have known so I could have worried and dreaded it before hand!

]]> By: alice http://www.womenshairlossproject.com/hair-loss/scalp-pain-sensitivity-burning-and-hair-loss/#comment-18320 alice Sat, 19 Jul 2008 06:07:10 +0000 http://74.53.155.19/?p=42#comment-18320 Well add me to this. It has been several years now with absolutely no answers. My pain at times is debilitating, scalp gets pink. I have lost about half my hair with a painful reminder of the loss daily in my scalp. Anyone try steroids yet? I can't take much more of this pain Well add me to this. It has been several years now with absolutely no answers. My pain at times is debilitating, scalp gets pink. I have lost about half my hair with a painful reminder of the loss daily in my scalp. Anyone try steroids yet? I can’t take much more of this pain

]]> By: Mindy http://www.womenshairlossproject.com/hair-loss/scalp-pain-sensitivity-burning-and-hair-loss/#comment-17589 Mindy Sat, 12 Jul 2008 20:52:26 +0000 http://74.53.155.19/?p=42#comment-17589 I have had burning scalp for a year. I too have seen many doctors. I did find a dermatolgist who was familiar with this disorder and explained anti-depressants have worked on most of her patients. I take 30mg of Cymbalta along with Omega 6. It has helped to some degree. More than likely it was brought on by stress. I have had burning scalp for a year. I too have seen many doctors. I did find a dermatolgist who was familiar with this disorder and explained anti-depressants have worked on most of her patients. I take 30mg of Cymbalta along with Omega 6. It has helped to some degree. More than likely it was brought on by stress.

]]> By: Pam http://www.womenshairlossproject.com/hair-loss/scalp-pain-sensitivity-burning-and-hair-loss/#comment-17524 Pam Fri, 11 Jul 2008 06:03:55 +0000 http://74.53.155.19/?p=42#comment-17524 It has been so good reading these comments. I have been on HRT for two years or more and recently due to ear problems, was put on gabapentin for eight weeks. I have just recently noticed hair loss, with a burning sensation on my scalp, something I have not experienced before. I am losing a lot of hair at the back of my neck. It hurts so much and am stressing out more due to hair loss. I have stopped all my medications. Your posts have comforted me. It has been so good reading these comments. I have been on HRT for two years or more and recently due to ear problems, was put on gabapentin for eight weeks. I have just recently noticed hair loss, with a burning sensation on my scalp, something I have not experienced before. I am losing a lot of hair at the back of my neck. It hurts so much and am stressing out more due to hair loss. I have stopped all my medications. Your posts have comforted me.

]]> By: cin http://www.womenshairlossproject.com/hair-loss/scalp-pain-sensitivity-burning-and-hair-loss/#comment-17233 cin Sun, 06 Jul 2008 16:06:41 +0000 http://74.53.155.19/?p=42#comment-17233 Burn baby Burn.... Oh I'm so glad to read the comments. I wrote just awhile back, warning about skin weft hair extenions, this is done with a tape glue that bonds to your hair, they say it's safe..(don't do it) As I mentioned I used clip in for years, Sigh...yes it's caused some traction alopecia, but not as bad as the bonding skin wefts!!! I took them out along with loads of hair. Save you the sad story. Since then I'm sheading more hair than usual, (will go to doc.) My hair loss could be a few reasons, 1. I'm 40 yrs. 2. I have already thin hair 3. too med. for back problems, 4. tried Zolof 5mg for depression caused by PMDD. 5. user of hair extenions. All these I think are linked to hair loss. Going back to the what feels like HOT SPOTS, or a burning feeling (no red scalp) sometime itching, mostly top mid back of the head. I have to say I'm very stress out right now due the hair loss...so this could be the cause too. Oh I really want to stress to everyone who are taking Zolof due to hair loss, I read that it can cause more hair loss. Sorry.... I thank everyone for there wonderful words and stories. Cin Burn baby Burn….

Oh I’m so glad to read the comments. I wrote just awhile back, warning about skin weft hair extenions, this is done with a tape glue that bonds to your hair, they say it’s safe..(don’t do it) As I mentioned I used clip in for years, Sigh…yes it’s caused some traction alopecia, but not as bad as the bonding skin wefts!!! I took them out along with loads of hair. Save you the sad story. Since then I’m sheading more hair than usual, (will go to doc.) My hair loss could be a few reasons, 1. I’m 40 yrs. 2. I have already thin hair 3. too med. for back problems, 4. tried Zolof 5mg for depression caused by PMDD. 5. user of hair extenions. All these I think are linked to hair loss.
Going back to the what feels like HOT SPOTS, or a burning feeling (no red scalp) sometime itching, mostly top mid back of the head. I have to say I’m very stress out right now due the hair loss…so this could be the cause too.
Oh I really want to stress to everyone who are taking Zolof due to hair loss, I read that it can cause more hair loss. Sorry….

I thank everyone for there wonderful words and stories.
Cin

]]> By: Blue 1 http://www.womenshairlossproject.com/hair-loss/scalp-pain-sensitivity-burning-and-hair-loss/#comment-15416 Blue 1 Tue, 10 Jun 2008 20:39:52 +0000 http://74.53.155.19/?p=42#comment-15416 Diana and Millie, This is EXACTLY what I'm going through! I felt a sense of relief (and validation) reading your posts because my doctors are baffled by my hair thinning and little hairs constantly growing in that feel like they had been shaved or something) it feels like stubble. Three of my doctors had no clue but gave me Rx's for $200.00 worth of cortisone lotions and potions that made it worse! I was petrified I'd go bald. I felt this ironic because my hair was normally too thick! Now it's scraggly and lifeless and when it's windy I can feel wind on my scalp! My scalp is tingly & numb-ish and burns (at the same time) and I'm always aware of the feeling. I have Telogen Effluvium and today found what Trichodynia was! It's taken 6 months to find out other people have this! I don't have to suffer alone! I think my doctors think I'm crazy! All told me that as women get older their hair thins out. Ha! 1/2 of it? and what about the weird scalp thing? No answer from any of them. Anyway, thank you ALL for your posts. There's a really gentle shampoo my doctor gave me called DHS shampoo that is so gentle and sudsy and makes your hair fluff up when you blow it dry. So far, that's the only thing that's made me feel better. I'm so sorry we have this and hope it will eventually stop. We've got to be optimistic! Blue 1 Diana and Millie,

This is EXACTLY what I’m going through! I felt a sense
of relief (and validation) reading your posts because my doctors are baffled by my hair thinning and little hairs constantly growing in that feel like they had been shaved or something) it feels like stubble. Three of my doctors had no clue but gave me Rx’s for $200.00 worth of cortisone lotions and potions that made it worse! I was petrified I’d go bald. I felt this ironic because my hair was normally too thick! Now it’s scraggly and lifeless and when it’s windy I can feel wind on my scalp!
My scalp is tingly & numb-ish and burns (at the same time) and I’m always aware of the feeling. I have
Telogen Effluvium and today found what Trichodynia
was! It’s taken 6 months to find out other people have this! I don’t have to suffer alone!
I think my doctors think I’m crazy! All told me that as women get older their hair thins out. Ha! 1/2 of it?
and what about the weird scalp thing? No answer from any of them.
Anyway, thank you ALL for your posts. There’s a really gentle shampoo my doctor gave me called DHS shampoo that is so gentle and sudsy and makes your hair fluff up when you blow it dry. So far, that’s the only thing that’s made me feel better.
I’m so sorry we have this and hope it will eventually stop. We’ve got to be optimistic!

Blue 1

]]> By: Regina http://www.womenshairlossproject.com/hair-loss/scalp-pain-sensitivity-burning-and-hair-loss/#comment-9599 Regina Sat, 10 May 2008 12:43:00 +0000 http://74.53.155.19/?p=42#comment-9599 Hi. This is the first time I have had scalp pain with hair loss. I recently (2mo) had a perm. followed by coloring, week/half later. After that my scalp hurts and hair has been falling out and breaking a lot. I use a sticky roller to sweep my clothes after I comb or wash my hair and it is always filled with my precious hair. I wonder if I had this before the perm or if the perm set it all in motion. Thank You, Regina Hi. This is the first time I have had scalp pain with
hair loss. I recently (2mo) had a perm. followed by coloring, week/half later. After that my scalp hurts and hair has been falling out and breaking a lot. I use a sticky roller to sweep my clothes after I comb or wash my hair and it is always filled with my precious hair. I wonder if I had this before the perm or if the perm set it all in motion. Thank You, Regina

]]> By: Pam Tulman http://www.womenshairlossproject.com/hair-loss/scalp-pain-sensitivity-burning-and-hair-loss/#comment-4375 Pam Tulman Mon, 31 Mar 2008 15:10:15 +0000 http://74.53.155.19/?p=42#comment-4375 Millie: What did the doctor say about the burning and pain when you went for your appointment the week of the 17th? Do you, by any chance also have a 'tight' scalp? Suffering right along with your for the past 20+ years, Pam Millie: What did the doctor say about the burning and pain when you went for your appointment the week of the 17th? Do you, by any chance also have a ‘tight’ scalp?

Suffering right along with your for the past 20+ years,

Pam

]]> By: milly http://www.womenshairlossproject.com/hair-loss/scalp-pain-sensitivity-burning-and-hair-loss/#comment-4284 milly Sun, 30 Mar 2008 16:00:48 +0000 http://74.53.155.19/?p=42#comment-4284 I have a similar story to everyone. My scalp hurts so much with a burning sensation that goes away after a little while, or perhaps I ignore it or my tolerance level has increased, I'm not sure. I try to massage my scalp, and it feels good as I'm doing it or as someone else is massaging it for me; but after the massage is done, it hurts even more; the tenderness, the itch, and the burning sensation increased. I have hair on my scalp, but my hair is no longer growing. In fact, it sheds everytime I comb it. When I was in High school, I used to put my hair in tight pony tails. I wonder if I'm paying for that now. This is a hard thing to go through, especially when you're still young. But I managed to gain strength from God, because there are other people who are going through rougher experiences in this life. So thank God for wigs, weaves, and pain management. Be strong, From Milly I have a similar story to everyone. My scalp hurts so much with a burning sensation that goes away after a little while, or perhaps I ignore it or my tolerance level has increased, I’m not sure. I try to massage my scalp, and it feels good as I’m doing it or as someone else is massaging it for me; but after the massage is done, it hurts even more; the tenderness, the itch, and the burning sensation increased. I have hair on my scalp, but my hair is no longer growing. In fact, it sheds everytime I comb it. When I was in High school, I used to put my hair in tight pony tails. I wonder if I’m paying for that now.

This is a hard thing to go through, especially when you’re still young. But I managed to gain strength from God, because there are other people who are going through rougher experiences in this life. So thank God for wigs, weaves, and pain management.

Be strong, From Milly

]]> By: admin http://www.womenshairlossproject.com/hair-loss/scalp-pain-sensitivity-burning-and-hair-loss/#comment-3723 admin Wed, 26 Mar 2008 19:21:00 +0000 http://74.53.155.19/?p=42#comment-3723 Hi Dianna, I really don't what causes this awful painful occurrence but it doesn't usually last forever. I usually have episodes of it that last between a couple days and a week, if I am recalling correctly. But for myself when I do get it, it hurts to wash my hair, touch my scalp or even lie on a pillow. So far the only thing that has made sense to me is what I read on wikipedia "A theory behind the condition is that nerves innervating scalp hair follicles send pain messages back to the brain when the follicle no longer has a hair in it, in a similar way to phantom limb pain. Another theory is that people who have this condition (sometimes called “ponytail syndrome”) have super-sensitive nerves in their scalp." I wish I could help you figure out a definite cause, but I just don't know. I hope you are doing okay. ~Y Hi Dianna,

I really don’t what causes this awful painful occurrence but it doesn’t usually last forever. I usually have episodes of it that last between a couple days and a week, if I am recalling correctly. But for myself when I do get it, it hurts to wash my hair, touch my scalp or even lie on a pillow.

So far the only thing that has made sense to me is what I read on wikipedia “A theory behind the condition is that nerves innervating scalp hair follicles send pain messages back to the brain when the follicle no longer has a hair in it, in a similar way to phantom limb pain. Another theory is that people who have this condition (sometimes called “ponytail syndrome”) have super-sensitive nerves in their scalp.”

I wish I could help you figure out a definite cause, but I just don’t know. I hope you are doing okay.

~Y

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