My Story and What Helps - Karen’s Hair Loss Story

by admin on November 29, 2007

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My Story and What Helps - Karen's Hair Loss StoryHi, I started to lose hair about when I was 46. It freaked me out as one of my aunts wore a wig and my grandmother had very little hair. I went to a medical hair loss clinic and they said I had genetic hair loss and recommended hair transplants. I asked about taking finasteride (Propecia), which I had read helped men with hair loss and the doctor said no, it was not available to women. His assistant, however, said (when the doctor was out of the room) that they won’t give it to women due to pregnancy problems. I said I was menopausal and highly unlikely to have kids, but it was a no
go.

So I went looking for Hair Loss books and read as much as I could and found out that taking Saw Palmetto worked just as well as Propecia and without any side effects. It does the same stuff and can be enhanced with the use of a couple of other herbs. So I’ve been taking it ever since and my hair loss has really slowed down . I’ve stopped a couple of times and the hair loss increased - so I know it is working for me.

I take 160mg (standardized to contain 85-95% fatty acids and sterols) twice a day. I also take 300 mg of Biotin twice a day and that also seems to help. Both are available from a health food store and come in many brands. I take the cheapest Saw Palmetto. These supplements are often found in the section about men’s prostate health as they work for that too. Propecia was designed for prostate health and was then found, by accident, to also bring back hair growth lost within 2 years.It works on the androgen cycle which causes male hair loss and may also cause female hair loss. I don’t see a lot of research into female hair loss out there which is foolish as many of my female post menopausal friends are experiencing some hair loss now.

Perhaps this info might help someone else…
Karen

*************************

Dear Karen,

Welcome to the site and thank you for sharing your hair loss treatment regimen that you’ve experienced success with. I often hear women say they taken biotin for their hair loss but I never really tried it myself. I do think I’m going to go to the vitamin store tomorrow and get myself a bottle. I looked it up on wikipedia and it stated that its uses are for “hair problems, cradle cap (seborrheic dermatitis), and diabetes.” Under hair problems it says, “Biotin supplements are often recommended as a natural product to counteract the problem of hair loss in both children and adults. There are, however, no studies that show any benefit in any case where the subject is not actually biotin deficient. The signs and symptoms of biotin deficiency include hair loss which progresses in severity to include loss of eye lashes and eye brows in severely deficient subjects. Some shampoos are available that contain biotin, but it is doubtful whether they would have any useful effect, as biotin is not absorbed well through the skin.” Thats good enough for me. If there is any possibility it works then why not.

As far as the saw palmetto, I did previously read that it had some effectiveness in treating hair loss, so I used it early on in my hair loss as well. Unfortunately I didn’t respond to it. It’s really no surprise since I also later took finasteride (propecia) and didn’t respond to that either. My doctor had no problem prescribing it to me at age 22, but he did make it clear that I could not get pregnant while on this drug due to possible complications that could arise. I ended up taking myself off the drug. For some women it definitely works, which is why he had prescribed it to me, without me even asking for it.

I’m so glad to hear that the saw palmetto is working for you and you are having success with your treatments. Your story reminded me again about the biotin and I’m encouraged to give it a try myself.

Thanks again for sharing your story

~Y

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Filed under biotin, hair loss, hair loss story, hair loss success, hair loss treatment, saw palmetto

{ 8 comments… read them below or add one }

1

gypsy 11.30.07 at 10:34 am

hi karen ! nice to see your having success!!!!it gives me hope!i was just curious what kind of test the hiar loss clinic did on you to come up with your diagnoses??????im awaiting a appointement with the derm, not until feb… gee i could be blad by then! hahaha! but anyway i would like to ask her to perform the same test…..
i also went to the health food store and picked up biotin, sawpal.and also sillica…which the sale person recommended…have you tried sillica?????
he also recommended i go see a nutrapath doc, have you concidered that????jsut curious???im considering it ! only after i go see the derm…i wnat to see what she says first…..then i will go see hte natrupath doc… and if all else fails im off to get a hair transplant… but first im trying all other options …im not to keen on surgery, since i dont have a high tolerance to pain, hahahahaah….but what must be done hey!
so nice to hear a happy ending, i finally have a litle hope..
thank you
gypsy

2

Karen 11.30.07 at 11:51 am

Hi
The test I had involved them taking a skin plug out of my scalp and testing it. I am sorry to say I didn’t ask them what they were testing for and how. I guess my emotions were pretty off the wall at that point in my life.

Re: a naturopath, yes, I have used a naturopath - for other reasons - and I told him about my hair. While I was on his remedies I noticed my body hair (legs, under arms) really increased. I mentioned that to him and his comment was surprise as he wasn’t aiming towards that and he remarked how everyone responds differently to treatment. I didn’t stay on it long enough to notice head hair change. The treatments were designed to improve my overall health, which was very poor at that time. The treatments worked well, but I was not good about keeping them up once my health started to improve.But I’ll bet my head hair was better and I have been thinking lately of going back on the treatments as I was much healthier when using them.

Right now I bleach my hair so it is similar in lightness to my scalp and therefore doesn’t show the thinning so much (a suggestion I read about in a book). It also gives my thin hair more body (I keep it quite short) so I can fluff it up somewhat. People often express surprise when I tell them I have very thin hair. My hair is thinner on the sides than the top.

I tried Rogaine but I had some hair loss which never came back on the side I tried it, so I guess we all have very different chemical make-ups.

I don’t use silica. The health food store said it would increase the thickness and strength of my hair - but not increase the number of hairs. Perhaps I should try it again.

Thanks so much for your site!! i think there is way too little attention paid to women’s hair loss and many of us suffer alone out here.
Karen

3

admin 11.30.07 at 2:34 pm

gypsy & karen - speaking of naturopathic medicine. Not too long ago I was doing acupuncture on a weekly basis. I can’t say that I know it helped with my hair but I did have a better overall sense of well being and perhaps a clearer mind which helps for everything. I think anything that can be done to create a more clean, less stressful, healthy, non toxic environment for the body is probably going to be good for the hair as well. So I definitely recommend acupuncture for that. I stopped going because work got so busy and then there is always the money factor as well, as it can get quite expensive to do that weekly, but I’m going to start going in again for treatments because I did feel better when I did them.

Also, gypsy I think you should consider seeing another hair transplant doctor to get a second opinion on your case. As a matter of fact, I’d see several. It is a big thing to get done, and most women aren’t candidates and can end up worse than they did before. The possibility of shock loss exists and you could end up losing even more hair. Just be careful.

Karen, I’m glad you are here, and I and everyone else greatly appreciate all your input. You are very right, there is so little attention paid to women’s hair loss and I suffered alone for nearly a decade. I’m glad the site has been of help and comfort to other women who are also afflicted with hair loss. It has truly been a big source of healing for myself.

~Y

4

Marianne 12.03.07 at 7:53 am

Hi,
I just wanted to comment on the biotin. My dermatologist has me taking 2.5 mg of biotin once daily (there is only 30 mcg of biotin in my everyday vitamin ~only10% of daily value!!) to help with hair growth. While I don’t know if it is helping with the hair yet since I am only in my third month of taking it, my nails are growing like crazy. I cut my nails off regularly since I work outside doing field research. Now I am cutting both my fingernails and toenails more often. So who knows, I might have new hair growth even though I am continuing to shed my hair.

Admin- I am getting ready to hit my third month on synthroid (100mcg), hair still falling out and getting thinner. Keeping my fingers crossed it will stop or slow down one day. I go back to the endo Dec 12 for more thyroid tests. I am just hoping that the synthroid is not the culprit and one day it will level off. Hope you get to stay on your dose of synthroid when you go back for labs since your loss has slowed down. I have talked to a lot of people on thyroid forums and they seem to say that any change in dose can send the hair loss back into overdrive but eventually it levels out. But I guess for some it doesn’t.

Marianne

5

admin 12.03.07 at 11:44 am

Hi Marianne - Things seem to be staying steady with my hair loss as far as the slowing down. It hasn’t slowed much further than my last report but I’m content at where it is staying at which is approximately 30-40 hairs after showering. I tie my hair back for the rest of the day so I don’t really have to count much there, probably have around 1-4 hairs each time I re-tie my ponytail thing throughout the day. To know for absolute sure the real count I’d have to use the hair catcher in the drain in the shower but I don’t feel up to that and don’t think it is necessary. 30-40 hairs post shower is a definite improvement compared to the hundreds I was shedding post shower (not including hair drain catcher) just a few months back.

I’ve weened myself down and from the 112 mcg I was on now am only on the 88mcg and things are looking good. Only time will tell if this was truly the best decision, you know months down the road if I’m still doing well, but my heart already says it is. I had other issues that were occurring as a result of the increase in my synthroid, including erratic periods… which my are usually like clockwork because I’m on the pill. But I was like having 2 periods a month… not good. Also was excessively hot at night, I’d have to get out of bed and go down stairs to cool down. Things just didn’t feel right, I was all out of wack and my hair was shedding more than it ever did in the whole 8 years I’ve lived with hair loss. I’m already feeling better and this month I had only one “normal” period. I will be heading back to the urgent care as promised to the doc who gave me the lower dosage to be rechecked and I’ll let you know what the test says. Really regardless, I’ll be staying at this dosage because I feel better on it. Tests and charts don’t always tell the whole story.

It is true that when transitioning to a different dosage hair shedding can increase and it is “suppose” to return back to normal but I don’t think that is true if you are on too high of a dosage or your body is sensitive to the medication. I was also told that synthroid has Acacia in it and a lot of people may be allergic to that ingredient and have problems with it. I’m like allergy queen so no surprise if the extra dosage was too much for me.

Marianne, make sure you keep close watch on yourself and see another doctor if you feel that the synthroid is contributing to your hair loss. I wish I didn’t wait just about 2 years before making the decision to lower my dosage. I feel I’ve wasted that time and my hair has gotten so thin due to the excessively long shed I went through with no break.

~Y

6

vicky 12.07.07 at 11:59 pm

Hi Karen - Just wanted to ask a question about the saw pal. Are there any side effects? and how long have u being taking them? Were u low in iron at all? and did u finally find out what u were diagnosed with? - I have had 2 biosps -(very painful), but the derm wanted to make sure that she got a correct diagnosis. She told me i have FPB - what an ugly label! ever since i found out i have this, i’ve stressed even more. I’ve tried a couple of meds, had side effects so i had to stop them. So i am interested in trying natural options if they work.

I also have gone very grey/white another thing i am constantly trying to conceal now i have to stress a/b hair loss as well. Just wandering a/b the above questions, would love to hear from u.

Also does anyone have any experience with chinese hebrs/lotions, would like to know.

By the way my mum has thinned out hair (she never ever had a lot of hair, but i suppose was creative with her hair) she is nearly 72y.o and is on anti depressants and and high blood pressure medication and had a hystorectomy at the age of 42y.o (3 kids later) and she has never paided much attention to her hair and as a result hasn’t worried about it - its still there. I take inspiration from her, but there are days where i am obsessive a/b my problem and just can’t stop worrying.

Many thanks to this site, it is very inspirational.

Vick

7

Lisa 02.15.08 at 4:47 am

Karen, I was very interested about your use of Saw Palmetto and Biotin. My story is that up until August of 07 I had very full and thick hair. I started to experience what I thought was my yearly Fall shedding. However, it never stopped and the amount of hair coming out was tremendous. As we all know this is such a frightening experience. I went to an internalist and she ran a bunch of blood test. One of the test was an ANA which came back 1 to 320. She told me that I had to go to a rhemotologist. He retook the test and the ana came back negative. The next step was the dermotologist, since my ownly problem was my hair loss. She did a scalp biopsy which ruled out skin lups but I was diagnosed with Androgenetic Alopcia. This is a diagnosis which is very hard for me to cope with. I am 46 like you and have 1 child under 10 and another who is 13. It’s hard for them to see me go throught with this. My Husband is my rock, friend,and sole mate for life. He stands besisdes me with hair or without hair.
After the scalp biopsy, my rhemotologist asked me to take the ana test again to make sure if it is positive. This time he wants to sent it a rhemotolgy lab in CA. It did come back postive in 3 areas, however the numbers were very low. I did not think androgenetic hair loss is the same hair loss you can get from illness. He put me on prednisone 5mg and Planquinel 200. The later medicine had side effects of hair loss and I would not take it. Went back to the dermotologist with this 2nd positive result and explanined that the scalp biopsy diagnosed the androgenetic alopecia and that is conclusive. It is not related to autoimmuune. My options for treatment are Rogaine, which did not do well with my scalp with both percents. I asked her other options and she downplayed the Aldactone and oral birth control since they are system medicines and have side effects. I am currently taking a premium woman’s vitamin from GNC and Biotin 2500mcg. They also have a Biotin thicking shampoo and conditioner which I am going to try. Please let me know if you are stil using Saw Palmentto and for how long and the exact reaction you have received from it. Does it stop the shedding? Does it grow hair? How long does it take to start seeing a difference? Finally what is the daily dosage, and is there a particular name brand you take? I get most of my vitamins from GNC.. Does a doctor have to see you to run any test while you are taking this
herb.

Thanks for listening to my story and I hope we can help each other through this very difficult disease.

8

P 08.04.08 at 12:30 pm

Girls,

Keep your ferritin up - low ferritin can cause hl mimicking androgenic alopecia. Needs to be at 40 to stop sheds and 70+ for regrowth. Some trichologists recommend levels of 125+ for optimal liver function (to decrease cortisol and therefore testosterone). When supplementing with iron, watch your zinc too.

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